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Justin1970

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  1. I am a breast cancer survivor and have been cancer free for 12 years. In 2018 a 3mm nodule was found on one of my many routine scans. Fast forward March 2022 my nodule grown to 8mm and was concerning for new primary. I saw a pulmonologist who told me the nodule on my lung is likely a low grade adenocarcinoma. Today I get a call from the cardio thoracic surgeons office to get scheduled to have the thing removed. I am worried and have lots of questions!

    1. Justin1970

      Justin1970

      Hi Chris 

      I'm so sorry your going through this all again I hope you can find the strength and will to get through this part of the journey you know you can as you had to before, once they remove the problem you will get back on track and living your life as you should be, I was diagnosed last August with lung cancer and had chemotherapy and radiotherapy and thought everything was going well until 4 weeks ago I had a seizure and they found 2 small brain mets which I have had gamma knife radiosurgery for last week, I was also going through a rough time and got very low and depressed but I have turned a corner of sorts because I do want to be a survivor, please try and stay strong and positive you will get through this and everyone on here will help you 

      Take care Justin x 

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  2. Hi Tom I'm really struggling to come to terms with the latest results of brain mets I keep reading online some great survivors stories but my oncologist team seem to be on the side of me me not getting much time at all, I would like to change oncologists but there is a waiting period and treatment would be be put on hold I really am at a crossroads and not sure what to do in some ways I just wish it was over now, sorry for depressing message 

    Kind regards Justin 

    1. Justin1970

      Justin1970

      I haven't started any of the brain mets treatment yet, by the sound of things they want to get on with it because they are only small one 1.3cm the other is 2mm I think the oncology team are hoping to get it all under control but obviously don't want to commit hence all the different prognosis from each one I talk to, one says people can live years with it another says only months, but all have said I haven't been told to go home and get comfortable with palliative care,  when you had your cancer did you have brain mets aswell 

      Regards Justin 

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