[Thoughts on these CT Findings]

Karen,

Thanks for the advice.  I greatly appreciate it! I agree that a 4-ish cm thing in my lung deserves attention!  I will see if the oncologist can recommend another thoracic surgeon and press for a biopsy! 

Julie

[Thoughts on these CT Findings]

Tom,

Thanks for the advice! The PET Scan uptake is what concerns me too. I have an appointment with my oncologist on February 14. Thanks again for the advice - it is greatly appreciated it!  Enjoy the cruise!

Julie

 

[New Here]

Justin,

Thanks for the prayers and support.

Julie

 

[New Here]

Lou,

Thanks so very much for the advice. I greatly appreciate it!  I will keep you updated. 

Julie

 

 

 

[New Here]

Hello,

My name is Julie.  On October 31, 2022, I had a CT scan that showed a mass of 4.0 cm x 2.9 cm blocking my airway. It had collapsed my lung. My oxygen levels were extremely low, so I was admitted to the hospital.  I was told that it was highly likely cancer. Had bronchoscopy the next morning. Bronchoscopy was unable to get good biopsy. EBUS procedure scheduled and unfortunately, not able to get good biopsy either. The way it was explained to me was they were getting fluid instead of tissue.  Had PET Scan which showed an uptake of 13.7 but fortunately only in the lung area - had not spread anywhere else.  I was only in the hospital for about 2 days and sent home with 24/7 oxygen because my oxygen levels were so low.  Met with oncologist on November 14 and Pulmonologist prior to that. Both believe that this is cancer, but of course, I need a good biopsy. Tumor board is also involved in my case. VATS procedure scheduled for Jan 5, but was canceled by surgeon the day before surgery. The mass has shrunk 1cm. Now is 4.0 cm x 1.9 cm.  He said that if it were cancer it would not shrink without treatment which is wonderful news! However, because this has been such a long process, I am still concerned. I have a follow up CT scan on April 3. I guess I am asking for opinions. Has anyone else been through this? No one is sure what this mass is.  I am told by the doctors that they have not seen a mass like this before.  I still have a collapsed lung and will probably have surgery for that at some point, but right now they want to monitor the mass. 

[Thoughts on these CT Findings]

My story sounds very similar to Walfredo2001. I have a large mass blocking my airway. It was found on October 31, 2022. It has collapsed my lung. My PET Scan shows an uptake of 13.7. I have had a bronchoscopy and and an EBUS procedure. Neither one was able to get an accurate biopsy.  I was scheduled for the VATS procedure on January 5, but the surgeon canceled it because my CT Scan on January 3 showed that the mass had shrunk an inch without treatment. I'm still not sure what to think. The mass was 4.0 cm x 2.9 cm and is now 3.9 cm x 1.9 cm.  I am open to opinions. I have been on a rollercoaster since October 31.  Thanks.