Ellen B.
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Posts posted by Ellen B.
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Prayers for you and your dad. Ellen.
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Hello Michelle.
Several people here with pancoast. Henk is one of them. He's inoperable b/c 3 vertebrae are involved. He was in severe pain before the chemo/radiation treatment, but after 2 weeks of radiation the pain was gone.
Ask the doc about the radiation!
Ellen.
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Linzy,
Welcome!
I think it's a good idea to have a second opinion.
If you have questions about the availability of Tarceva in the UK, you can ask Deanne (user-name JenkazMrs).
She also has a website:
http://www.lc-action4life.co.uk
Ellen.
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I'm so sorry, Teri! Ellen.
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Wonderful news. Congratulations, Kasey! Ellen.
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What a beautiful girl! Congratulations! Ellen.
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Praying for you and your Mom! Ellen.
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Welcome Charlotte!
My friend also has a pancoast tumor. He's stage IIIB. He (and his docs!) also thought that he had a pulled muscle.
This board is wonderful. Lots of info and support here. I see Kasey has posted already. She has helped us a lot!
Ellen.
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Praying for Joanie and her family. Ellen.
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We don't have a rule of thumb but a rule of fist. Poor Dutch women!
Ellen.
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Prayers for you and your Mom, Ellen.
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Just got the answer from the Dutch LC board Doc. They don't give pneumonia shots in Holland 'because there is no proof that this can prevent pneumonia'. Well, I can't believe it! I'll ask Dr. West if this is true.
I hope that we can go to Belgium and get the shot there. Not sure if this is possible....
Kasey, thank you for asking. Apart from the pneumonia, Henk is doing well. We think and hope that the tumor isn't growing. But we're not sure about this, because Henk doesn't get CT-scans or PET-scans. Only X-rays, bloodwork etc. He had an X-ray last week and his Doc was pleased with the results. He's going to see the radiologist next Thursday.
Ellen.
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Ann, I love it! Seeing this in the middle of the night... First time you posted, I tried to see them in the morning. My mistake, I overlooked the time difference.
. Ellen. -
Congratulations Katie! Ellen.
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Thank you so much Jackie and Jamie!
Henk didn't have a pneumonia shot. In fact, I'm not sure if this is available in Holland. I've seen that the shot is available in Belgium but can't find it on Dutch websites. I've decided to ask this in the Dutch LC board. And, of course, we'll ask the Docs about it. We consider to travel to Belgium if it's not available here. Ellen.
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Henk has had several bouts of pneumonia (or radiation pneumonitis???) since September. We don't know how to prevent this from happening again and again. It starts with a simple 'cold'. A couple of days later, he has pneumonia. Any suggestions how to prevent the pneumonia?
Ellen.
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Flowergirlie, I'm so very sorry! Praying for you and your family. Ellen.
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Oh Flowergirlie!
I don't know what to say.
I'm thinking of you and praying for both of you and for your family.
Ellen.
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48% Yankee! Well..... I'm 100% Dutch! Ellen.
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Prayers and love, Ellen.
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Congratulations to you and your Mom!
And thank you for the question about Tarceva.
Dr. West, thank you for answering this question.
Ellen.
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Difficult for me. Probably someone in the UK? ellen.
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Grace, Praying for you and your family. Ellen.
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Congratulations, Kasey!
Thank you for being there.
Ellen.
. Ellen.
No more limited sclc
in MEMBER UPDATES
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Praying for you. Ellen.