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hollyanne

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Posts posted by hollyanne

  1. Jill -

    Welcome. For my mom it was different due on the area. For her back, it took about 7 days...for her ribs less than three days. Due ask about increasing the fractions of the radiation (stronger doses) -- I don't think they will do that for the lung...but can often for other areas....and tell the doctor she needs something else for pain. Different drugs work diferently for people..the fentanyl patch was life saver for us.

    Love,

    Holly

  2. Kasey -

    I love you, I really do. The reason I stay on the board is for the exact reasons you just explained. For women/girls going through this with their moms, I do understand -- the way Val and Kelly and Loi understood when I was going through it...and reached out to me. My friends were as supportive as they could be, but really didn't know what to do -- didn't understand scans or staging or whatever.

    This week has been so brutal for this board - I don't understand why it comes in waves....

    Thank you for being Kasey.

    Love,

    Holly

  3. Don -

    I can't say anything that hasn't already been said. Both of you were such an inspiration when my mom was diagnosed...I can't even explain how powerful your story is.

    All my love at this time. You are incredible.

    Holly

  4. Lori -

    You should be so proud. No mom could have a better daughter. You all battled so very hard. My heart aches for you. You have been here for so many of us who lost our moms...we will be here for you when you need us.

    Love always,

    Holly

  5. Everyone has already given you the advice I would....but I will stress tell the doctors that the pain is simply not acceptable. He is on low doses of pain relief in comparison to what my mom a 110lb woman was on. Maryanne is right, the Duragesic patches work wonders for some people...did for my mom. The number one goal has to be to control the pain. You could look into hospice, then he could have the morphine pump at home....

    Thinking of you,

    Holly

  6. Welcome - I am so sorry you are here. This disease is terrifying...yet you will feel a little sense of control once treatment gets started. Don M, Cindi O'h and other will give you the best first hand advice for SOB and treatments....the rest of us will give you whatever emotional support you need. Many, too many of us have gone through this with our moms who are/were our best friend. The panic for me never subsided, I was scared of what each morning would bring...yet I learned to cope with it better on some days than others. Arm yourself with as much info as you can...and love your mom each and every day.

    We are here for you.

    Holly

  7. Robyn -

    It does get easier...it never goes way. I thought it was so ridiculous when people said the only thing that helps is "time" -- but now I have to agree. Eight months ago I lost my best friend in the world...I miss her every single day, but I also know that she would want me to live life to its fullest -- which I am trying to do...although I am not very good at it yet. you WILL get through each day, some days more easily than others. Time, Robyn, it takes time.

    Love,

    Holly

  8. Sis -

    Want you to know that I am thinking of you and your sister at this terrifying time...I am hopeful you will get better information and some peace of mind next Thursday...there are more combinations that they can try...don't give up. I do encourage you to go see your sister and brother-in-law...you will feel better...and I am sure your sister will as well.

    Holly

  9. Melinda -

    I wish I could give you some comfort. Your mom doesn't seem to be in pain (right?) which is a huge blessing. The jibberish is part of the process as the body starts to slow down.....I just talked to to my mom's hospice nurse who is now when of my best friends..Deb said that ativan should be the goal. You don't want your mom to be agitated or nervous...her body and mind are coming to terms with what what is going on. Melinda, you WILL make it through all of this. My heart is breaking for you as I remember the panic and the "please make this all stop" feeling that is overwhelming. I remember being scared to wake up and get out of bed (the times when I slept.) You can't control this...what you can do is make sure that everything you have ever wanted to say is said.

    I pray so hard that you and your family and of course your mom will have peace and strength in the coming days and weeks.

    I am sick for you. Just take each minute as it comes.

    Love,

    Holly

  10. Lynda -

    I understand. So many of we "daughters" who have close relationships with our moms know exactly what you are talking about. I thought my mom would be with me for so many more years, and her diagnosis and death were the most devastating thing I could ever imagine going through...yet Lynda, I made it. You will too. I can't tell you it is easy, becuase it certainly is not.

    You have time with your mom. Share your love. Talk. talk and talk. Make sure nothing is left unsaid.

    As fas as your husband goes, would you consider som kind of counseling? You are going to need him more than ever in the upcoming months....grief and illness are tough on the strongest relationships.

    God WILL give you the strength to take each day as it comes and to be thankful for what you have.

    Love,

    Holly

  11. Mary -

    I am sorry you had to find us...but you WILL get so much support here. I was in a very similar situation with my parents...I promise you that your dad will find a way to process everything. All you can do is love both your mom and dad every day. I will send you a PM as well.

    Take each day as it comes. Your mom is not a statistic...every case has HOPE.

    Welcome.

  12. Lori --

    There is SO much more they can do. My mom had mets everywhere in the bones and was in terrible pain until we did Fetanyl (she was taking percocet every two hours and liquid morphine before this) -- and then the morphine pump was a God send. Your mom should not be in pain...should NOT. Please tell the doctors that this simply unacceptable.

    All my love to you during this so very difficult time.

    Holly

  13. Oh Jen. I am so very sorry, yet so very happy that it was all as he wished. We will be here for you when everything calms down. Your faith will certainly get you through this.

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