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MsC1210

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    NHL's Pat Burns dealing with cancer for a third time

    in LUNG CANCER IN THE NEWS

    Posted

    Pat Burns dealing with cancer for a third time

    TSN.ca Staff

    1/21/2009 3:07:22 PM

    Former NHL head coach Pat Burns is battling cancer for a third time.

    Burns told Montreal's La Presse he was informed he had lung cancer after returning from the World Hockey Championship this past spring.

    Burns elected to undergo chemotherapy in his first two bouts with the disease but, according to La Presse, he has chosen not to go that route this time. He told the newspaper he will try other methods to battle the disease.

    He was first diagnosed with colon cancer back in the 2003-04 NHL season and then found out he had liver cancer in 2005.

    Burns was an NHL head coach for 14 seasons, including stints with the Montreal Canadiens, Toronto Maple Leafs, Boston Bruins and New Jersey Devils. He guided the Devils to a Stanley Cup victory in 2003, and won the Jack Adams Award three times (Canadiens - 1988-89, Maple Leafs 1992-93, Bruins - 1997-98).

    How to give Dad hope?

    in INTRODUCE YOURSELF!

    Posted

    Hello Hope and welcome to the "family"

    I'm so sorry about all of the trials you and your family have been faced with! Please know that you have come to a wonderful place to find the support, information, advice and HOPE you need!

    I can see one HUGE ray of hope in your post already, and that was the doctor saying that the type of lung cancer your dad has is the kind that responds well to radiation and chemo!

    Once the treatment plan is in place and begins, things will become a bit more routine for you all.

    One word of advice... please get a small notebook or planner and write down ALL the questions you have for the doctor. You can then write his answers down and keep notes on the appts etc. Also, ask for and obtain copies of ALL tests and results, treatments and meds. Keep all of this information in one place, all together so it is easily accessible for future needs.

    Keep posting here and let us know how we can be of help.

    Warmly

    Christine

    New Member w/ a sick dad.

    in INTRODUCE YOURSELF!

    Posted

    Hello and welcome mll0727

    I'm sorry to hear about your Dad but so glad you found this site and have joined us. This is a great community and you will find a lot of great information and advice here as well as support.

    Please let us know how we can help and know that someone is always here to listen,

    Warmly,

    Christine

    bac

    in INTRODUCE YOURSELF!

    Posted

    Hello Diane and welcome!

    I'm sorry you had reason to find a site like this but I am glad you've joined us.

    There are members here who have been diagnosed with BAC and I am sure that they will be along to share their stories. In the meantime, please feel free to read through the various forums here and don't be afraid to ask any questions you may have.

    Warmly

    Christine

    New member

    in INTRODUCE YOURSELF!

    Posted

    Here is the post from mwga... it is in the LC survivors forum on Connies Survivor thread....

    mwga

    Joined: 20 Jan 2009

    Posts: 3

    Posted: Tue Jan 20, 2009 1:53 pm Post subject: Two Time LC Survivor

    --------------------------------------------------------------------------------

    I'm new to this site and saw your request for lung cancer survivors to share their stories, so here goes.

    In Dec. 1998, I was diagnosed with lung cancer in my left lung. Treatment was chemo (Taxol and Carboplatin) a treatment every 3 weeks for 3 treatments and 6 weeks of radiation. Treatment was based on possiblity of cancer in the plueral wall as well as left lung and they wanted to reduce the size if that was the case. I finished the treatments in January, 1999 and was scheduled for surgery but had to wait because of low white cell count. Had surgery March 3, 1999 and had 1/5th to 1/4 th of my left lung removed. Surgeon said he got it all and stated that my chance of getting cancer again was no more than anyone else.

    In October 2001, my husband was diagnosed with lung cancer and told that it had progressed so much that surgery was not an option. He was told that he could live for approximately a year, but he got pneumonia and died 6 weeks later.

    The first of April 2004, I had severe stomach pains and my doctor decided to do a ctscan of my abdomen. I suggested that we might as well do one of my chest at the same time since I had not had one done on my chest for a couple of years. I still do not know why I had the stomach pains, but know that God works in mysterious ways. The ctscan of my chest showed a small mass on my right lung. A needle biopsy was done and was inconclusive. I had to wait a month for a petscan which showed "activity" in the upper lobe of the right lung and in the hylar node. At the end of May 2004, I had surgery to remove the upper lobe of my right lung. My doctor told me that this was a completely new cancer not related to the previous one at all but a new primary. I contracted double pneumonia while still in the hospital and ended up on a ventilator for 5 days, but recovered and after 24 days in the hospital was released. I stayed with my sister who cared for me and helped me to recuperate. In August 2004, I had another petscan as a follow up and it showed "activity" still in the hylar node. My oncologist said that this might be a result of the surgery (my surgeon had checked the hylar node when he removed the upper lobe), but that he didn't think we should take that chance. He suggested chemotherapy (gemcitabine and taxatere) which was administered 1 time per week for 3 weeks, then off a week, then another 3 weeks on, etc. for 6 months. I lost my hair again, but that is such a small thing in comparison to the larger picture that I was not affected by loss of hair. I bought a beautiful auburn wig (the color my hair had been when I was younger), which caused my sister to comment, "You look just like you did 20 years ago." I don't know what I would have done without her. She is a great sister.

    As a result of the chemo, I ended up on oxygen 24 hours per day toward the end of the 6 months. I had pneumonia again after finishing chemo and then a month later I had pneumonia again. I decided that I would not be on oxygen 24 hourse per day for the rest of my life and worked to build my lungs back up so I could get off of it, which I did about 8 months later.

    I have been cancer "free" now for over 4 years and remarried a year and a half ago to a wonderful man who lost his wife to lung cancer. We enjoy life together and make each day count. He was an avid golfer and at 70 years of age, I started learning to play golf. I enjoy playing and we play 3 or 4 times per week.

    There is life after lung cancer, but you have to think positive, have faith that you will survive, and be determined to live a normal life and not dwell on the past.

    If I give hope to even one person, I will be happy for hope is the first step to recovery.

    TS's introduction

    in INTRODUCE YOURSELF!

    Posted

    Hello Stephanie and welcome to the "family"

    I am so sorry you've had reason to find a site such as this but very happy you have joined us and shared your story.

    As you can see, this is a very wonderful site, full of support and hope. Please let us know how we can help you and know that we will do our very best.

    I like the advice Judy gave you about how far treatments have come! And remember, there are new breakthroughs every day, too! Hold tight to the Hope!

    Warmly

    Christine

    No Surgery...

    in CAREGIVER RESOURCE CENTER

    Posted

    Aww sweetie such a full plate you have right now.

    As for Mom, I am sure the oncologist has her best interest at hand when he tells her that they cannot operate... Lets concentrate on treatment to shrink it and keep it at bay at least for now. I am SURE that you will get some much better information on GRACE later...

    Now... CONGRATULATIONS on your new baby!!! How much did he weigh? How long is he? What did you name him??? HE will be one of the biggest joys in your Moms life and one of her biggest incentives to fight this damn cancer with all she has. What a blessing for you all!!!! Now, I cannot wait to see pictures!!!

    Keep the hope Jackie and remember you need to take EXCELLENT care of you right now. Life is so overwhelming for you now but we are here for you and we will continue to be here for you... Just keep posting as you can and let us know what you need.

    Lots of hugs!!

    Christine

    ACRONYMS??

    in GENERAL

    Posted

    I've just skimmed through the site quickly this morning and compiled a list of commonly used acronymns. I posted it as a "sticky" in the INTRODUCE YOURSELF forum.

    Hopefully, since I am sure I missed more than a few of the abbreviations used on here, members will post additional information on that thread.

    ~Christine

    List of some commonly used acronyms on this site

    in INTRODUCE YOURSELF!

    Posted

    Here is a list of commonly used acronyms that are found throughout this site. I am SURE I missed a lot so I hope that as others come across more they will add them to this tread.

    Warmly

    Christine

    lc, lung cancer

    sclc, small cell lung cancer

    nsclc, non small cell lung cancer

    SOB, shortness of breath

    NED, no evidence of disease

    Dx or dx diagnosis

    Tx or tx treatment

    B-I-L, M-I-L, F-I-L, S-I-L, Brother, mother, father, or sister in-law

    SO significant other

    DH dear hubby

    ONC, oncologist

    PCP primary care physician

    METS, metastasis

    VATS, video assisted thoracoscopic surgery

    WBR, whole brain radiation

    SUV, "standardized uptake value," which is based on the amount of metabolic activity resulting from the pre-scan injection of irradiated sugar

    ACRONYMS??

    in GENERAL

    Posted

    Hello Candy and welcome..

    Here is a short list of some of the common abbreviations you may find here.. this is from an earlier post in the Introduction forum from our Muriel.

    I'm in a hurry, but here's a quick list of some of them:

    Dx or dx diagnosis

    Tx or tx treatment

    B-I-l, M-I-L, F-I-L, S-I-L, Brother, mother, father, or sister in-law

    SO significant other

    DH dear hubby ( I think)

    Onc oncologist. Might also find an abbreviations for pulmonologist

    PCP primary care physician

    I will add,

    SOB is shortness of breath

    I'm sorry you've had the need to find a site like this but I am glad you've joined us! Please keep us posted and let us know how we can help!

    Warmly

    Christine

    Scan Results

    in MEMBER UPDATES

    Posted

    ((((Patti))))

    I told you so!! lol

    I am so glad that there is no change on the lungs but so angry for you that the radiation didn't work for that hip met. Keep your chin up my dear friend, there are options open for that little bugger!

    I am sure you will sleep much better tonight and so will I now!!!

    Lots of hugs and love!!

    Chris

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