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angelofcharlie20

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Posts posted by angelofcharlie20

    Prayers needed again.

    in HOPE

    Posted

    Update: The fevers have come down a lot. I think he's had a fever of 99 the last two days which is a far cry from the 104.

    CT scans came back showing that the infection in the lungs, whatever it may be - still think it's pneumonia have improved.

    However, his white blood counts are still real high and the docs need to find where the infection is.

    Also, they did an abdomen and pelvis CT scan yesterday and the doc said that compared to the May scans the liver was 4 cm, now it's 6 cm. The lymph nodes near the pancreas are still large. :oops: He did have a scan done in Aug. I believe after the seed placement. I forgot to ask how big it was then. I'm very disappointed that the cyberknife did not work. I'm actually having a hard time accepting it since gammaknife was effective with the brain mets. I think I'm in denial.....

    I hate this so much. So hard to think positive and think that my Father will bounce back from this. And of course we can't pursue any treatment until he's clear from infection. What to do?

    Shirley

    Pneumonia

    in NSCLC GROUP

    Posted

    Hi All,

    My Father has been in the hospital since last Sunday for pneumonia. They've done a few diagnostic tests for verification. He's been on antibiotics since Sunday, but nothing has worked. He had a bronchoscopy on Saturday and the results still aren't back yet.

    I'm just so afraid that this will do him in. Anyone experience this before that can help?

    Sorry if the post is a little choppy...

    Shirley

    Prayers needed again.

    in HOPE

    Posted

    Update: Still not any better, in fact a little worse.

    My Father had a temp of 104 last night and has been having chills.

    Why isn't this getting any better? Anyone else who's experienced pneumonia before?

    Shirley

    Prayers needed again.

    in HOPE

    Posted

    Hi All,

    The doctor's can't figure out why my Father still has fevers even after starting on 2 kinds of antibiotics. I think he had what is called a bronchoscopy today to take a look. No results yet.

    Please pray that they find the right antibiotic for the pneumonia.

    Shirley

    The news is bad update 9/5

    in CAREGIVER RESOURCE CENTER

    Posted

    (((Grace)))

    Good Lord - I am speechless. Your post definitely moved me. I am so sorry that you are going through this right now. I cannot even begin to imagine the position you're in right now and honestly do not know if I would be able to handle it as well as you have so far.

    I know that it seems like there is no hope, but there must be something else out there for your husband. I know you like your onc. lots, but maybe if he can't drum up anything a second, third opinion are in order.

    Praying for more uplifting news and strength for you and your family.

    Best,

    Shirley

    Prayers needed again.

    in HOPE

    Posted

    Update for the day...

    I spent about 10 hrs at the hospital today to keep my Father company. The doc had ordered a CT scan to get a more accurate look at the lungs and to verify the pneumonia. He said that typically fevers don't occur after 48 hrs of being on antibiotics.

    Thankfully, the CT scan showed that he has pneumonia and that it's not cancer activity. His symptoms tends to be chills, fever then followed by sweating. After the sweating stage he feels much better. He had a temp of 101 this morning and then normal for the majority of the day. Once I left, he developed another 101 temp. He has a little SOB when he has the fever, fatigue. He also has low potassium and magnesium levels so he took some potassium pills and had a magnesium drip.

    We had a student nurse for the beginning of the evening. He was very attentive - but unfortunately he made my Father scream in pain when he repeatedly try to put another IV in - since that was unsuccessful we ended up using the old IV site. Ugh. The nurse who gave the heparin shot wasn't gently either in the morning - it was literally a stab to the stomach.

    It also took an hr to get an ice pack for the fever. I ended up running down to CVS and bought some no freezer needed disposable packs. Then the nurse brought a pack that was just cool.

    Sorry, definitely rambling right now. Thanks for listening though.

    Best,

    Shirley

    Chest pains

    in NSCLC GROUP

    Posted

    Amanda,

    I'm not sure what those symptoms are about, but I would give the doctor a call "just in case." I know that fatigue is one of the symptoms of stopping Decadron, I'm not sure if the doctor told us if there were any more.

    Good luck,

    Shirley

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