Jump to content

angelofcharlie20

Members
 View Profile  See their activity

  • Posts

    260

  • Joined

  • Last visited

 Content Type 

Posts posted by angelofcharlie20

    How Will I Get Through This

    in CAREGIVER RESOURCE CENTER

    Posted

    Hi Lynda,

    Sorry that you had to find us here, but thankful that you did. It sounds like your mom is still well enough to keep up teaching which is awesome. I'm so happy to hear that she has a positive outlook.

    I think I live fairly near you (southern Mass).

    Good luck with everything,

    Shirley

    MRI 2 month follow up -- and the results are....

    in MEMBER UPDATES

    Posted

    It's a good test!!!!!!!!!! :P

    The doc compared the two MRIs and said that the mets are either invisible or completely wiped out. There was a fuzzy spot on the new one but he thinks that it's a met that's still in the process of dying.

    He said to call on Monday when the official report comes out.

    The prayers worked another miracle.

    Thanks all,

    Shirley

    low appetite

    in GENERAL

    Posted

    Hi All,

    Just wanted some feedback from all you folks. My mother had asked me to buy some Ensure for my father because he has been having problems with his appetite lately. With daughter's intuition, I had already bought some from Walmart over the weekend. My mother said that he recently bought himself some whole milk and has been drinking that. I guess he feels really bloated and full after only eating a little. This is the first I've heard of his appetite problems.

    Just wondering what other people's experience is with this. Of course, paranoid me is thinking the worse and that this is a big indication of bigger complications to come.

    A common side effect of cyberknife is low appetite, but he his last treatment of that was the first week of August.

    Another thought is that there is some cancer near his pancreatic region. Is this an indication that it this area is advancing.

    Just a little overwhelmed right now. Any suggestions would be greatly appreciated.

    Thanks a bundle,

    Shirley[/code]

    MRI - 2 month gammaknife check up

    in MEMBER UPDATES

    Posted

    Hi All,

    My Father is going to have an MRI on Thursday to see if the gammaknife worked. I'm hoping and praying that there it did and that there are no new mets.

    I know how powerful all your thoughts and prayers can be and am hoping that an extra one can be said for my Father cause I know that we need everything we can get.

    And if there are new mets, a prayer for treatment options?

    Thanks so much in advance,

    Shirley

    Western Massachusetts

    in SUPPORT GROUPS

    Posted

    Hi Ladies,

    I hope everyone is doing well and enjoyed the weekend. Hoping that the terrential rain falls didn't cause too much damage. Luckily, it only poured at night when we were down the Cape.

    My Father still has a little fatigue, but not as bad as before. He's even been to the casino a few times. However, on Saturday I heard that he had a terrible headache earlier in the day that left him bedridden. Luckily it didn't last too long. Thoughts? Feelings? We were going to have it checked out if it happened again but thankfully it didn't. I'm thinking about asking the neuro-oncologist when we go see them on Thursday.

    My Father is going to have another MRI to see if the gammaknife worked. Good Lord - I'm praying so hard that it did. I'm trying to remain hopeful that it did and that new mets did not form. Since gammaknife is only a localized radiation, I'm afraid that new ones have sprouted since the last MRI 2 months ago. Argghhhhh. I'm hoping that there are more treatment options if there are no new mets. Please no new mets. :cry:

    Praying, praying and more praying.

    Shirley

    Just waiting...

    in CAREGIVER RESOURCE CENTER

    Posted

    Hi Kat,

    I know it's easier said than done - but please try not to worry and stress yourself out. I can completely relate to what you are feeling and will get really nervous when any test or scan needs to be done. At one point, I started to feel anxious a few weeks before the scheduled test!

    I'm so sorry to hear the adversities you have faced in this short time. Oftentimes I think we don't think that we can handle anymore but we end up doing it anyway. My new mottos are: "Take it minute by minute" and "Tomorrow is a whole new day."

    Praying for good news on Thursday,

    Shirley

    Hello

    in INTRODUCE YOURSELF!

    Posted

    Sharon,

    What a strong woman you must be! I am so glad that you found this site and had decided to posted. You could not be anymore on target with this forum being made up of great people. I hope all continues to go well with you.

    Best,

    Shirley

    Decadron, Gammaknife and still Headaches

    in GENERAL

    Posted

    Hi There,

    Just wanted to let everyone know that I asked my Father's med oncologist this question and she said that the continued headaches is not an indication that the gammaknife did not work. :wink: She said that some people continue to experience headaches even after the head is clear.

    Bye now,

    Shirley

    Decadron=Heavy Legs?

    in NSCLC GROUP

    Posted

    Hi There,

    Just wanted to let you know that my Father and I just came back from the doctor's today and we had asked the same question about the heavy legs - especially when climbing stairs.

    The doctor explained that it is a side effect of Decadron and that steroids tend to weaken the muscles. Once he is off of it, his strength will return. The doctor is weaning my Father off of it and said that it's best that people not be on Decadron for a long time.

    Hope this helps,k

    Shirley

    Western Massachusetts

    in SUPPORT GROUPS

    Posted

    Hi All,

    My Father went to see the med onc at Commonwealth today.

    Things that were accomplished:

    refilled prescription for Ambien

    set apointment for chemo to start - Sept. 5th

    got an explanation about the side effects of Decadron - ends up the fatigue and the feeling of not being able to pick up your legs is very common. Funny how no other doctor explained this one. The doctor is also going to wean my Father off of the steroid. Hopefully the fatigue and the insomnia will go with it as well.

    My Father always thought that the Decadron is for his headaches but it's only to reduce the swelling of the brain. The doc prescribed him Oxycodone instead to use if Tylenol doesn't cut it.

    The low grade fevers are common after cyberknife - again courtesy of Dr. Mulvey. The fevers are caused by the cancer cells being killed by the radiation. I guess low grade fever can be a good thing - I think it makes sense. Again - no one really explained that it was a common side effect. In fact we were told by Beth Israel that it is not. Go figure.

    I think that's it for now. My Father really likes his new doctor. She takes the time to examine him, answer our questions and is willing to offer treatment options.

    Hope everyone had a graet day,

    Shirley

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept