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karen335

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Posts posted by karen335

    I was grieving, but your responses have helped...thanks

    in GRIEF

    Posted

    For all,

    Cheryl has a LOT of information to share.... Clinical trials, Holistic, Brain just to name a few. The past is the past and is gone, we love her...

    Cheryl, please don't go away, stay and share it's so important; she is a BLESSING...Thank you for sharing the last few years of your treatments with me. You were truly missed and the incident is not for others...It's a new day!!!

    Karen

    Cyberknife treatment Scheduled

    in MEMBER UPDATES

    Posted

    Don,

    Sending prayers, yuour in great hands.. Consider it dead... Yes, it does take 4-7 months or less for results...

    I am getting treatment at Stanford CK for 3x7mm spine met.

    Pleasekeep us posted, you are such an inspiration and advocate.

    Prayers,

    Karen

    One Very Small Brain Met

    in CAREGIVER RESOURCE CENTER

    Posted

    What I meant was, I am not a doctor and I try and share my experiences with others... All I want is for everyone to get the best and leading edge treatment available. No harm to others, but you also have to be a good advocate. Research is so very, very important. I didn't mean to offend anyone. Each person makes their own decisions, but not without research. Would you buy a new car, house or major purchase without researching it first?

    Not looking for special treatment or thanks.Ony want others to find as much info. that you can. This is one of the key elements, just don't accept all that doctors tell you, it's still business...but it's you or your loved ones life...

    Sending prayers and blessings for

    you andyour family,

    I love you all,

    survivor since March 2003

    two brain surgeries and cyberknife

    now @ Stanford getting cyberknife to the spine3mm x 7mm @ C1 top of spine/neck

    I was grieving, but your responses have helped...thanks

    in GRIEF

    Posted

    Cheryl,

    Always cared about you and Jack. Sad these things happen, that's why I don't post as much any more, I can't deal with the games and gossip. I am not perfect, but I am sincere. Don't mean anything harmful or hateful to anyone. I have enough to deal with just want to be happy and get well.

    Cheryl and Jack you are in my prayers every day!!!!I am and still am soooo happy to see you posting and sharing your experiences with others, oh if only they would hear what our experiences have been and what we have endured, we just want to share so that it may help others..

    Diagnosed March 2003

    TWO brain surgeries and Cyberknife, now spine met and treatment at Stanford (cyberknife)....

    Love Ya!!!

    Woman of Faith

    Karen

    4little brain mets

    in HOPE

    Posted

    Had two open surgeries, SRS for residual after 1st surgery...Had CK in SEPT. 2006, UCLA says tumor in brain is so dead and gone (YEAH!!!)

    Sending prayers and please keep us posted.

    Karen :wink:

    4little brain mets

    in HOPE

    Posted

    Cyberknife is sooooo worth checking out, not WBR. This is from articles written and documented @ Stanford University in California. WBR is antiquated treatment.

    Whatever you decide, wishing you the best and sending up prayers.......

    Karen

    Bad News--Nodules on the Brain

    in CAREGIVER RESOURCE CENTER

    Posted

    Leslie,

    I had open surgery 2004 2006. Had Cyberknife in Oct 2006. Tumor was in the Cerebellum 6.5CM. Went to San Diego Cyberknife for 5 fractionated treatments. Went to UCLA last week for MRI and Pet scan of head. They said tumor is gone and deader than a doornail...

    Just stay positive and keep the faith. You will beat this thing. Have no fear, we are here for you... Sending lots' of prayers and strength...

    Karen

    Game Plan for Brain Met

    in MEMBER UPDATES

    Posted

    MC,

    I have had two brain surgeries, 2/2004 for one met almost 3.5 Cm. Had SRS after for any residual leftover cells. City of Hope, California. Second surgery 2/2006 to remove recurrance in same place (grew back). Had Cyberknife in San Diego Oct 2006... It worked (6 CM) was growing rapidly They killed it with 5 fractionated treatments Woooo Hoooo... Only side effects was Lot's and Lot's of fatigue (finally over that and doing excellent.....

    Sending well wishes and prayers...

    Stay positive.

    please keep us posted...

    Karen

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