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karen335

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Posts posted by karen335

    First round chemo, what to expect now?

    in CAREGIVER RESOURCE CENTER

    Posted

    Jon Renau are good wigs. They look and feel so real. They are synthetic, very light and comfortable good price too, 10/26TT is a good color, dark brown under with light golden highlights...very very natural. I have four in this color - Style is Gaby, love them. Bought them at maxwigs.com also have one Sammy. Like it too. I didn't pay special handling charge, got mine in 5 days...

    Hugs and prayers,

    Karen

    2nd Opinion for Stage IV

    in NSCLC GROUP

    Posted

    I had 4 opinions also, I am in California. I would recommend UCLA - Santa Monica, Hoag - Newport Beach... NOT City of Hope...,went there two times, considered me, NO HOPE. Didn't go back. Yikes!!! :)

    Good Luck,

    Blessings and prayers,

    Karen

    Update and questions

    in GENERAL

    Posted

    Nancy,

    Glad to see your post. Sorry you are having these problems. Broncoscopy, have had two, done by Pulmonary doctor under anesthesia no problems. Can a CT or PET show what is blocking the airway? have you considered Cyberknife if it's a tumor? I just had it to the brain in San Diego.

    San Diego Cberknife. Great doctors there, Don M is familiar with this treatment...

    Saying prayers for you each day! You are a strong woman, Jesus loves you and so do I. Keep on fighting and as Lance Armstrong says "Live Strong"...

    God Bless and gentle hugs,

    Karen

    brain metastasis

    in LC SURVIVORS

    Posted

    Hi law,

    I had my first surgery for single brain met March, 2004. Had 2nd surgery Feb 2006, one met again, same place didn't work...Just had Cyberknife (5) fractionated treatments here in California , go for MRI Nov. 13th. Odds are 100% effective 80-90% of the time. I can feel the results. As Martha would say, it's a good thing, lol.

    Stay positive and you will survive and prevail..

    God Bless and prayers

    PS, Go to cyberknifesupport.org/forum

    You can ask real doctors about this treatment at no cost to you...

    Living with uncertainty...

    in LC SURVIVORS

    Posted

    Hi law,

    I had my first surgery for single brain met March, 2004. Had 2nd surgery Feb 2006, one met again, same place didn't work...Just had Cyberknife (5) fractionated treatments here in California , go for MRI Nov. 13th. Odds are 100% effective 80-90% of the time. I can feel the results. As Martha would say, it's a good thing, lol.

    Stay positive and you will survive and prevail..

    God Bless and prayers

    PS, Go to cyberknifesupport.org/forum

    You can ask real doctors about this treatment at no cost to you...

    When do you know it's time?

    in CAREGIVER RESOURCE CENTER

    Posted

    Jill,

    I am so sorry your mom is going through this. What city are you in and don't give up. Get a 2nd opinion. This disese is very treatable. Don't give up. That is terrible what the doctor said, in it for the money. Oh my gosh, run out of that place don't walk...

    Can you update your mom's profile so we can help you...There are too many treatments out there...

    Hugs and prayers,

    Karen

    The roller coaster girl....

    in NSCLC GROUP

    Posted

    Hi Tracey,

    I live in Corona, We may have the same doctors. I can share my experience with you.I have been to UCLA and Hoag, I am a LC survivor for almost 4 years now...

    Karen

    PS Waiting is the hard part, They are right (UCLA) it may not be LC. Must have a biopsy first..I PM'd you...

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