fillise
-
Posts
2,603 -
Joined
-
Last visited
Content Type
Downloads
Store
Profiles
Forums
Gallery
Blogs
Events
Posts posted by fillise
-
-
-
Happy Mother's Day mom. I'm trying hard to concentrate on the good memories today, but I miss you.
Love,
Susan
-
-
Janet,
So sorry to read this news. I'm betting though that this is a blip and you will be back for another very long run at stable.
Susan
-
Gosh yes--Rich! Miss him so much.
Susan
-
Ernie, Don and Ned.
These were the men I thought of as the LCSC lions. They were always here. They were all very proactive and informed in fighting their disease. They NEVER hesititated to share their knowledge and experiences with the rest of us.
There are so many who I have come to love on this board, but these three men seemed to me like an anchor. They were steady and unmoving. They never seemed to let a setback throw them. Each of their timelines contained volumes of useful information; what they learned they shared with all of us.
Now they have each left us. Ernie in the spring of 2009, Don in the winter of 2009 and Ned just last Friday. The roar of our lions has ceased, but their spirits live on.
Thank you Ernie, thank you Don, and thank you Ned.
Love,
Susan
-
Just wanted to let everyone know that they have blocked access to all "advocavy/political" websites at work and LCSC got caught up in that filter. So my access has been severely limited as my home computer has died and I am shopping for a new one. So my absence is not because I don't love you, I just can't get to you as often as I'd like!
Susan
-
-
In addition to Ned's great response, I also want to emphasize that the prognosis is meaningless on an individual basis. My mom was diagnosed with stage IV lunchg cancer with mets to her spine. I looked at the stats and began preparing myself to lose her within the year. She had other plans. She responded so well to the initial chemo and radiation that she was off all treatment for well over a year. Then she would do another round of chemo and radiation and get some more time off. most of that time she was feeling pretty good and was active. The cancer finally took it's toll, but it was 45 months later. I am grateful for the additional three years beyond what I expected. There is much in your Dad's story that sounds similar to hers so I hope you have that much time and a great deal more.
Susan
-
Rebncor,
It would be helpful to have someone to talk with who is not a family member. Someone who is not relying on you to be strong. Do you have a friend or a paster or even a counselor?
The primary caregiver has to manage not only the patient's fears, but her own and those of her family. It is hard to be that person.
One thing I discovered with my mom was that I was afraid to talk with her for fear of upsetting her and she was afraid to talk with me for fear of upsetting me. But she really needed to talk about her fears and what she wanted to happen. Once we started talking to each other it was much better for both of us. I was better able to help her do the things she wanted to do and to say the things she wanted to say. She relaxed visably and becase less fearful when she felt free to talk about what she was afraid of.
Susan
-
((((Lillian))))
-
Stephanie,
Hope today is better than yesterday and tomorrow is better than today.
Susan
-
Jean,
I am watching my father go through the same thing. He is only three months in, but he lost his wife of almost 56 years. I didn't really think it was as hard for him as it apparently is until he told me is going to the cemetery every day or every other day so he can talk to her.
It sounds like you got good advice from everyone. All I can offer is a hug.
((((Jean))))
Love you,
Susan
-
Nicole,
I am so sorry. It is so hard to let go and say goodbye, even when you know they are ready. From one griving daughter to another, I will keep you in my prayers. Let me know if you need to talk or just cry.
Susan
-
Cathy,
I'd like to wish you a belated welcome to our little corner of the internet. This is a great spot for support and information.
Susan
-
Judy,
At least the node was small and appears to be contained. I will continue my prayers for Dottie that thay got it all and she is cured.
Susan
-
Hi Judy,
HATE the word "progression." LOVE the word "clear." That the lungs and chest are clear is probably more significant than the mild progression in the abdominal wall. Since they aren't rescanning you until March, I suspect your doc thinks that way too.
Love you,
Susan
-
Hi Cody,
I remember you mom. She was always quick to offer support and I miss her a lot on this board. I wish I could help you, but I don't have any of the articles you mentioned.
Susan
-
-
Katy--Good for you! It was a stupid and insensitive question and you answered it very appropriately.
Susan
-
((((Michelle)))
I agree with others here. I don't think the tears are signs of weakness. You are still grieving. Please be gentle with yourself and let the tears come when they need to. The release is good.
Susan
-
((((Jan))))
Thinking of you today,
Susan
-
I'm so sorry. I understand how tender you still are and how much this must be hurting you. Your friends are in my prayers. You are too.
Susan
-
I am in tears every time a get a Christmas card this year. Sometimes they mention mom and other times it is just a card, but every one of them sends a tear or two down my cheeks.
Susan
do you think it's too soon for me?
in GRIEF
Posted
Michelle,
I'm so happy for you. You deserve this love and, like Sue, I think Donald would have approved and maybe have helped it along a little bit. Enjoy every minute of your life!
Susan