fillise
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Posts posted by fillise
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Congratulations on reaching this milestone with your wife! I hope she has a great year with the 5th graders who are very lucky to have her as their teacher.
Susan
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Bare Excentuals has introduced a limited edition eye shadow color with proceeds going to the Lung Cancer Alliance. It's not Lungevity, but I am grateful for all of the folks out there advocating for victims of lung cancer.
http://bareescentuals.com/BE%20Cares%20 ... andingPage
Susan
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Judy--Mom dealt with the low maganesium too. it really made her loopy for awhile. They had to give her a couple of infusions before they got it up again. That could actually explain a lot.
Let us know when you find out info from your scan. Praying there is nothing there except for what is supposed to be there!
Susan
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Thinking about you Andrea and your dad. Let us know what the scans show--praying for the best!
Susan
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Steph--I am in Montgomery frequently. I'd love to get together the next time I'm down that way. I'm going to PM you with my contact info.
Susan
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Ronnie--thanks for sharing Pat's photo and that beautiful photo. I know you miss her. We are here for you.
Susan
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Congratulations Burce--that is AWESOME!!!!!!
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WHEW! Love that NED!
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Judy--not long after mom was diagnosed she started having blurred vision. I was sure she had a brain tumor. Turns out she was having optical migranes. She's been having them for years, but after LC everything become ominious.
All of which is to say, it is probably the same old headaches you have always been having.
I'm keeping my fingers crossed just to be on the safe side.
Susan
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Steph--I'm glad you found us, but sorry you had to. I think you are probably in better shape than your brother when he was diagnosed. For sure there are a lot of weapons in the LC arsenal and more coming. My mom was diagnosed at stage iv in January 2007 and just passed her 43 month mark. Your tunors are very tiny so that's encouraging.
You mentioned getting results from UAB, are you in Alabama? I'm in Auburn and would be happy to help you in any way I can.
Susan
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I agree that you might want to consider getting hospice involved. Hospice is designed to help individuals with a terminal diagnosis live with a higher quality of life. Notice the emphasis on "live."
Susan
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It took my mom a long time after radiation and chemo before she was back up to speed. Your dad's body is working hard to fight the bad cells and to rebuild after chemo so it is no surprise that he would have some fatigue.
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Welcome--I can't help you with any surgery information, but I see you've gotten two reassuring replies already. One other thing to mention. Stage 1 and surgery offers the best chance for cure. While no one is "fortunate" to get lung cancer, you have many more options than those who are diagnosed at later stages. In LC world--we are grateful for every good thing that comes our way!
Susan
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David--I think you are one of the first around here on Crizotinib. Thanks for letting us know how you are doing. Naps every afternoon are a good thing!
Susan
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keli--shrinkage is GOOD! Sometimes you have to try some treatments before you find the ones that work for you.
Susan
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Don't be afraid to ask questions. Ask your mom's doctors, ask us, ask the docs at Grace. . . .don't think any question is stupid or insignificant.
We are here for you.
Susan
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Mom got he scan results on Thursday. The primary tumor in her right lung has grown from 2.6 to 3 cm. There is no other change which means that the lesions on her liver and left lung are still not visible. There is also no change in her bones, which is good.
The Onc. is upping her Tarceva from 75 mg to 100. She goes back in two weeks and I think if she tolerates that he might up it again. There was some talk about doing chemo again, but mom is talking like she doesn't want to do chemo again. I guess we will try the increased dosage and see if that stabalizes things.
Overall it's not the best news, but it could have been a lot worse. The primary is still half the size it was in November of last year and Mom is still feeling good with lots of energy. So cause for concern, but no one is hitting the panic button yet.
Susan
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Thinking of you. . . .
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Love that NED!
Love you too Bud--now live life! No more scans for a year--WOO HOO!!!!!
Susan
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Mary--Don't stop living and don't stop thinking about the future. If you are early stage one there is every reason to believe that you can be cured and you can live a long and happy life. Too many people think the worst when they hear "lung cancer" but my own mom was diagnosed at stage IV and is doing well after 3 1/2 years. You can rock this!
Susan
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Keli,
I'm praying that your fears about the nodes are eased. Radiation can have different effects so maybe it is a side effect of the treatment. All you can do is all you can do. Right now fighting for your health and your life is most important.
We are here for you.
Susan
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Hello! I'm so sorry you had to seek us out, but glad you found us. I think we can all identify with the late night searches for information about this stupid disease.
Has your mom received any treatment at all to this point? A lot of treatment decisions are made taking into account the patient's overall health at the time of disgnosis. My own mom was 76 at diagnosis with stage IC NSCLC. She was terrified of the chemo (carbo-taxol), but found it easier than she feared. Not that it was fun, but it was something she could handle. I wonder if your mom's response is based on a belief that (1) nothing will help and (2) that the chemo will be too unpleasant.
A lot depends on her overall health otherwise. Is she ambulatory? Does she care for herself? Her oncologist will take all of those things into consideration.
Another option might be Tarceva. It is an oral targeted treatment. It has some side effects, but many folks on this board have had a very good response to it.
Finally, there is another source of excellent information about Lung Cancer and its treatments. www.cancergrace.org is a physician mediated site with information about treatments and the latest research and doctors who will answer your questions.
Let us know how your mom does and don't forget that we are here to support you as you support your mom through this journey.
Susan
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You got 'm! Wished for Good luck and prayers are headed your way.
Susan
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Judy,
I think you are just fine too. In every way possible.
Enjoy your travels and try to have some fun.
Susan
I'm on my own at last......
in MEMBER UPDATES
Posted
Yeah Geri!!!!! You and NED make such a terrific couple. And don't worry, you will always have your buddies here at LCSC to cheer you on.
Susan