fillise
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Posts posted by fillise
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Ronnie,
It sounds your wife has some positive developments. Every day these little steps build on each other and in a few weeks you have major progress!
Susan
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I am positive the neurologist will get to the bottom of it too!!!!
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Well, shoot. I want them to tell you something they can do to help you! On the tonic water--try it with a squeeze of lime and a little sweetner. It is a refreshing limeade. Or lime and vodka. you, know for medicinal purposes.
Susan
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So sorry to hear that the last tests weren't better. Hopefully the Tarceva will help or she will be a candidate for the ALK trial. I suspect she teaches because that is her way of trying to keep some normalcy. Like if she quits the cancer wins something important. Good for her to refusing to give in, but I do hope she can get the rest she needs to let her body heal.
Susan
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I'm so sorry your mom is having such a rough time. Perhaps you can ask about the Lyrica and see if it might give your mom some relief. Doctor's defeatest attitude doesn't help. Sheesh.
Susan
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Good luck Robert! Let us know how it goes.
Susan
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Dang Geri--I thought you were behaving yourself! I'm so glad that you are on the upswing now though. I'm sure your energy will come back and hopelly you'll get that independence too.
Susan
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Marshall--what fabulous news! It's good to hear that your mom is doing so well and that you are too. We always love to hear from you so stop in whenever you can.
Susan
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Hi Ronnie--and welcome. Feel free to ask any questions you wish. Chances are someone here has experience or knowledge that can help you. This is also a great place for support. As your wife's caregiver, you need support too. We are here to help both of you.
Susan
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Judy--you will be happy to know that Mom met one of her big goals a couple of weeks ago. She has always wanted to see her grandaughters graduate this spring. The oldest graduated from college on the 15th and mom was not only there, she was feeling so good that she partied till midnight with the rest of the family.
Do not fear the Tarceva!!!!! That rash was rough at first, but was well worth getting through for the improvement in her health and stamina.
Susan
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Andres--good news about your mom. I'm sorry about the newd evelopment for your dad, but I suppose it's better that it is indolent (the things we have to be "grateful" for in cancer world).
I love following the exploits of the dynamic duo!
Susan
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Welcome Robert!
I wouldn't pay that onc much mind. This board is full of long-timers who were told they only had a short time. I hope you get into the trial. Let us know. Many of us are following that trial closely.
Susan
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Hi!
It sounds like you have handled the situation with your dad very well. You might suggest that he stay over a few days after his treatments and then he can return home when he feels bettwe. When mom got her chemo she would feel good the first and secod day and then crash on days 3-5. After that she would bounce back pretty quickly. You can work it out as you go along.
Oh--and on that caregiver question. When mom was first diagnosed I would have to walk outside sometimes and have a cry and then come back in and talk to her. I tried to educate myself as much as possible to help her understand her treatments and side effects. Finding this board made it much easier to deal with the issues related to her illness without falling apart. After I read the stories of all the survivors here it was much easier. I'll tell you one other small but significat change in my thinking. It is very common to begin mourning for your loved one as soon as you find out he/she has lung cancer. I was doing that. Then it dawned on me that instead of being sad, I should be grateful for every day I had with my mom. I can't tell you what a difference that made. Every day is a celebration--a reason to smile. I've had a lot less "falling apart" spells since then.
Susan
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Vortex,
I am late in welcoming you as well. It sounds like you know more about the situation now that you have visited. I'm also a long distance daughter to a mom with stage IV LC. It's really tough being away--I understand.
It sounds like it is understandably tough on your dad as well. Most hospice organizations offer care for the caregivers as well as the patient. You might check to see if they have support for your father. It sounds like he might need a safe place to vent his frustrations and fears and express his sadness without upsetting your mom.
Susan
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Hi Barb!
Welcome to our little corner of the internet. I'm sorry you are on this journey, but you've found a great place to get your questions answered, learn as much as you can, and get support from folks who know what you are going through.
Let us know what you can about your dad's dx and treatment. All is not lost. My mom was dx with stage IV NSCLC over 40 months ago and a couple of weekends ago she met one of her goals by seeing her gandaughter graduate from college. When she was first diagnosed, we didn't think it would be possible.
Every patient is different so don't put too much stock into the statistics. There are many people on this board told they only had a few mmonths to live and are here many years later.
Susan
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It feels like I've been away from this board forever. I should have submitted my hall pass last Thursday. I flew to NC for my niece's college graduation and now I'm in San Diego on business. I'll be away until Sunday the 23rd and my ability to post will be limited.
So everyone BEHAVE yourselves while I'm gone!
Susan
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Horray for good news--or at least not bad news. Hopefully they can get your mom's pain under control. I'm thinking about your mom and about you!
Susan
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Barbara,
I am praying for your recovery. I'm also sending a great big'ol hug. ((((Barb)))).
Love,
Susan
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Judy--You can count on me for all the prayers, good thoughts and cyberhugs you need! I know this is not what you wanted to hear, and you are right--it could be a lot worse. Think about how much ceelebrating we will do when you get the next scan 9 weeks from now and, as you suspect, it really isn't anything! The drinks will be on me.
Susan
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I'm glad you mom is out of ICU and will be seeing a geriatric oncologist. He is right there are people with very slow growing cancers who do well for long periods of time without treatment. You will feel better knowing you mom's case is being reviewed by someone who can take into account your mom's age, health and diagnosis inrecommending the next steps.
I went into a months long depression after my mom was diagnosed. In some ways I think I reacted more negatively than she did to her diagnosis. It's normal and you will learn the "new normal."
Susan
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Come back and let us know how the treatments are going. We will be here to answer questions and to cheer you on!
Susan
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Hi
My mom was 76 when she was diagnosed and is 80 now. The chemo was doable for her. It really does depend more on her overall health status than on her age. At the very least, I'd seek a second opinion. At some point you are going to have to tell your mom because she is really the only one who can make the decision on whether to undergo treatment or even any more tests.
Susan
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Sending good thoughts your way!
That waiting a week is a b#$%h though.
Susan
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Love that NED!!!!!
Whoo Hoo--Way to go!
Susan
Really? 3 Years Already?
in GRIEF
Posted
Hello Missy!
It is so good to hear from you. I have often wondered how you have been doing.
I'm glad you thought to come back to us to talk about your mom. I was new here three years ago so impressed by you and by your mom and so sad with you when she passed. I can tell you that your mom wouldn't want you to be sad, but you feel what you feel. There is nothing wrong with continuing to miss your mom and grieving her loss.
You know we will always he here for you,
Susan