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fillise

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Posts posted by fillise

  1. Stephanie,

    Ugh--not the news you wanted to hear I'm sure. I'm joining in the prayers that it is nothing. Please keep us updated. Till then, I'm sitting right here and waiting with you. Want to play some cards while we wait? :wink:

    Susan

  2. Jassen,

    I am so sorry you are in this situation with your mother. It is never easy, but she is so lucky to have you to make sure she does not suffer. I've been where you are and it is not a good place to be. You just have to know you are making the best decisions you can with the information you have. That is all you can do. I know it doesn't feel like it is enough, but for your mom it is everything. She knows you love her and want the best for her.

    Susan

  3. Jassen,

    I understand as I have been there. It's an increadibly diccucult position to be in. Your mother is lucky to have both you and your wife advocating and caring for her. Stick to your guns about making sure her wishes are honored.

    Check with hospice organizations in your area. Some will allow patients to be undergoing palliative treatment (e.g. treatment with the intent to lessen pain and/or improve the quality of life as opposed to curing the diease) while enrolled in hospice. It sure sounds like you and your wife could use the support provided by hospice.

    Susan

  4. Jassen,

    I'm sorry to hear of your mother's situation. Having recently been in your shoes I will tell you all you can do is all you can do. Ned's advice is good. Get away somewhere and scream, cry and let your emotions out. You have to take care of yourself in order to function for your mother and your family.

    We are here for you when you need us.

    Susan

  5. Jassen,

    I'm sorry to read about your mother's dx, but so glad you have found us. I've been where you are. The shock and pain at the new dx is normal. You've gotten good responses from others about the side effects of the radiation. The good thing is that many of the side effects are temporary. The fatigue is certainly one that should get better once the radiation is complete.

    We are here for you. Not just for information about your mom, but to help you as well. Come here with any questions or just to vent. We understand.

    Susan

  6. Ronnie,

    Maybe those of us who are coming up to our first holidays without out loved ones can help each other through. We have Thanksgiving over here next Thursday and then Christmas. I was just thinking how hard the next month or so will be.

    Susan

  7. Ronnie,

    Saturday morning I poured myself a cup of coffee and then realized that on Saturdays I would pour myself a cup and call mom for a long conversation. Needless to say, I lost it then and pratty much bawled my way through the morning.

    You are not alone.

    Susan

  8. Tony--not the best news, but we have many long-term stage IV survivors. Radiation then chemo is a good plan. Radiation help get those nasty mets and then the chemo comes in for the rest. Attitude is half the battle and I'd say you've won that half already!

    Susan

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