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dadstimeon

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Posts posted by dadstimeon

    New to group

    in INTRODUCE YOURSELF!

    Posted

    Welcome Pixie,

    Yes it is scary at the beginning with so much to take in and learn. Learn as much as you can-- KNOWLEDGE is the key. I'm so glad you have a great support group in family/friends. No one can go it alone. Take it one day and one step at a time. There are many here who who are survivors or who have lived many years with lung cancer. It is often treated like a chronic disease, like in my case. You will fine someone here who has been there/done that so ask away. Stay with us and keep us posted. Hope this helps and prayers for the best.

    Rich

    What now?

    in INTRODUCE YOURSELF!

    Posted

    Welcome Lee,

    Sorry to hear you might be dealing with a double edge sword. Don't know the answer, can I live a good quality of life without two upper lobes--perhaps someone else will come along to shed some light and point you in the right direction. The fact you are pro-active in researching is a plus, your right knowledge is power. The wait game is the hardest and hopefully you will have a game plan soon so you can get on with it. Stay with us and keep us posted.

    Good Luck,

    Rich

    Four and one-half years

    in HOPE

    Posted

    Congratulations Kasey thats wonderful to hear! :) Keep it up it gives so many hope and inspiration. And the answer to your question on my post of course I remember meeting you in 05. Hopefully I'll see you at the Boston Walk. I looked for you last year but could not find you. BTW Fred you left one thing out in the (4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED) report a wonderful person!

    Rich

    My Latest Scan

    in MEMBER UPDATES

    Posted

    Hi Patti-- I'm so glad you put that doc in his place, it's your life on the line not his and we all have to be pro (smile at everyone and question everyone) active. I remember that Seinfeld episode, love that show. So glad Navelbine is doing the trick for you and things are turning around. Give them hell Patti!. Take care and have a nice weekend. Rich

    cell lung cancere

    in INTRODUCE YOURSELF!

    Posted

    Hi sorry to hear about you husband. Right now both of you are in shock and rightfully so, it's a lot to take in at first. Hard to tell you based on you brief post what to expect. What type does he have NSCLC or SCLC? What Stage? Go to this link http://lungevity.org/l_community/viewtopic.php?t=40762 and scroll down to Questions to ask your Doctor to help you learn more about your husbands diagnoses. As far as why, don't beat yourself over the head, no one does anything wrong, sometimes it's the cards life gives us. They have come a long way with chemo and meds to off set any side effects from it. Take it one step and one day at a time. Try not to put the cart before the horse. There are many members here who are survivors or who are living many many years with lung cancer. Stay with us and keep us posted. KNOWLEDGE is the key! Lung Cancer is not a DEATH SENTENCE. Hope this helps. Prays for the best.

    Rich

    Hello new here

    in INTRODUCE YOURSELF!

    Posted

    Hi Teri,

    Welcome and sorry to hear about your mom. Everyone reacts differently and there is no one way fits all, it's Lung (learn as one goes along) Cancer 101. You mentioned she was active and healthy until July when she started having pain in her right leg and arm. Is the pain under control because pain certainly changes the playing field in terms of trying to have an active life. Sometimes it takes a while to get used to the new normal. The best thing you can do is to be there for her/dad, offer help/support/encouragement and honor your mom's request. As far as if it was you, your mom would tell you to suck it up. Bottom line is everyone thinks they would know what to say/do etc but until one walks that journey they really don't. Sounds like your mom would benefit from taking to someone, a support group or even a phone buddy. Talking to someone who has been there, done that helps tremendously but of course it's up to mom. Also try living in the now, no one knows what the future lies. Tell mom that I have Stage IV Lung Cancer (can read my story/journey by clicking on the link below, also read others) and seven years later it has been stable since Dec06 and it is the least of my problems so there is always hope. Stay with us and keep us posted. Hope this helps as well all the advice you have been given. Prayers for the best.

    Rich

    Hi, I'm new here

    in INTRODUCE YOURSELF!

    Posted

    Welcome Donny-- I'm glad you found us. All of us are scared and we would not be human if we weren't. As mentioned read other members profiles/stories and you will find that there is hope. Lots of information here so ask away, changes are someone has been there done that. Stay with us and keep us posted on how you are doing.

    Rich

    Writers block...trying to do my fundraising letter

    in GENERAL

    Partial Results - UPDATED 4/23

    in MEMBER UPDATES

    Posted

    Congratulations Barb thats great to hear! Prednisone (over the years) has been very very good to me. :) But seriously the side effects can be YUCKY that's for sure. I have a piece of dry toast or crackers before I (as well all my meds in the am) take it. Hope this helps. Rich

    hola

    in LC SURVIVORS

    Posted

    Glad to see you posting (missed your posts and was worried) Bucky! Enjoy time with your grand kids, they should get you out of your funk. Kids are the greatest and prayers as always for nothing but the best. Rich

    Question on Oxygen...

    in CAREGIVER RESOURCE CENTER

    Posted

    Hi Kristi,

    I'm on oxygen and it makes a big difference. As mentioned by Denise have your father tested. Even if the doctors did not mention it we (patients, caregivers) have to be pro-active. I also have a concentrator (can get the tubbing up to about 40 feet, just need to be careful when walking not to trip over it :) ) for home and use the portable (when out) tanks and carry it (not that heavy) over my shoulder. I have the small (about 12 inches) tanks and use a pulse (one tank last about 3 or 4 hours) regulator (not sure that is the correct name) which releases the gas only when you inhale and cuts it off when you exhale and is not running continuously. The tanks don't last as long running continuously depending on the setting. They had to test me for that also to see if I could go that route. Just a side note my understanding is one has to use it at least 15 hours a day to be effective and of course caution the do's and dont's etc. Like anything else one gets used to it.

    Hope this helps,

    Rich

    Mom recently diagnosed

    in INTRODUCE YOURSELF!

    Posted

    Hi Deb,

    Very sorry to hear about your mom. It is a lot to take in at the beginning. Take it one step and one day at a time. Stay positive and focused. Lung Cancer is not a death sentence and one can (seven years @ STAGE IV next month) live with lung cancer for many many years. Research, research and more research-- KNOWLEDGE is the key. Stay with us and keep us posted on how your mom/you are doing. Hope this helps. Prayers for the best.

    Rich

    PS: Below is a link you might find helpful and also has a section questions to ask the doctor.

    http://lungevity.org/l_community/viewto ... 585#163585

    My neighbor!!!

    in GENERAL

    Posted

    She travels a bit so perhaps she is away. Hopefully you will hear something soon to set your mind at ease. Your a good guy for caring! Enjoy your weekend buddy!

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