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dadstimeon

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Posts posted by dadstimeon

    3rd chemo cycle blues

    in GENERAL

    Posted

    I worked 8 months after I was (did not start treatment until 6 months after my diagnosis) diagnosed and could no longer do it. My job was not hard at all but it was 12 hour shifts,weekly overtime and on call 24/7 so was hard to keep up that schedule. I took it in steps first working as long as I could, going on short term disability then long term disability and then finnally realized I had to retire on SSD. I had 35 years into the system and being Stage IV is automatic so no problem there. I felt that it was not fair to go to work, collect a paycheck, benefits etc when I could no longer perform my tasks and not fair to expect my co-workers to do it for me. It's lung cancer 101 and you learn as you go along. Your right it is important to keep busy and have as much a normal life as possible. There are other things I did, joined this message board, got together with other members here and started the Boston Walk, do things around the house/yard when I can and do things with my family/friends when I can. Also keep in mind you will find people are long on talk and short on walk, what they say to ones face and what they say behind ones back is two different things. You have to do what you think is best in your (if you have company benefits work with your Boss/HR Department and have them advise you on what steps you need to take that best helps your situation as well your employer) situation and what you think is the right thing to do. It's a full time job battling lung cancer/other health issues, staying alive and then add on everyday life so one should not feel guilty if one cannot do things the same way or keep up with everyone/everything. Hope this helps. Good Luck.

    New to the Site

    in INTRODUCE YOURSELF!

    Posted

    Welcome Mary,

    Sounds like you are putting the cart before the horse. Your doctor is taking the right steps by keeping and eye on it with regular scans. Could turn out to be nothing. Try not to add to your stress, just because you smoked or you know someone who has lung cancer does not mean you have it. Wait until you cross that (if you do) bridge. Have you tried exercising (walk, ride a stationary bike) to release stress, that really helps and makes a difference. I know it's hard to wait, the best thing to do is keep busy and get on with life. Hang in there, keep us posted and take care.

    Rich

    Clueless

    in INTRODUCE YOURSELF!

    Posted

    Welcome to the board,

    Let us know more about your mom and why she opted out for treatment. Lung Cancer is not a death sentence and one can live with it for many years and still have a life. They have come a long way in treatments and meds to offset side effects. As long as there is life there is hope! Again welcome.

    Rich

    Question for Tarceva Users

    in NSCLC GROUP

    Posted

    Hi Barbara,

    When I was on Tarceva my rash only lasted (if memory serves me right) about 2 or 3 months and went away on it's own and never came back. I did have severe diarrhea and had the dosage lowered from 150MG to 100MG, stayed on the lower dosage and still had great results. My understanding talking to my doctor that lowering the dosage does not effect the out (can still get good results) come, of course everyone is different. If nothing is working for Bill might want to ask your doctor about lowering the dosage to get some relief. There also is a number you can call Genentech to ask questions, see below.

    Contact Us

    Clinical Trial Information Support Line

    For inquiries about our pipeline products and clinical trials, please submit a request through our information request form or call (888) 662-6728.

    Tarceva Access Solutions

    Tarceva Access Solutions provides coverage and reimbursement support, patient assistance and informational resources for both health care providers and their patients.

    Phone: (888) 249-4918

    Fax: (888) 249-4970

    Hours Available (Pacific Time): 6AM-5PM M-F

    Web: www.TarcevaAccessSolutions.com

    Drug Safety / Adverse Events

    Contact the Drug Safety Department at OSI Pharmaceuticals at (877) 827-2382 to report any adverse events experienced by patients receiving Tarceva.

    Hours Available (Pacific Time): 7:30AM-4:00PM M-F

    Voice Mail available 24 hours a day, 7 days a week

    Hope this helps,

    Rich

    bac

    in INTRODUCE YOURSELF!

    Posted

    Hi Diane, I'm at StageIV and have BAC. Was diagnosed May 2002. Not sure why you were told chemo does not usually work for BAC, if you read my profile I had very good success with all my chemos but one-- you might want to revisit that with your oncologists. It's understandable how you feel. Please feel free to PM me if you have any questions or need someone to talk to, no need to go it alone. Welcome to the site and glad you found us. Prayers for the best. Rich

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