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dadstimeon

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About dadstimeon

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    Making A Difference With Lung Cancer

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  1. dadstimeon

    Roll Call

    Diagnosed Stage IV NSCLC (BAC) in May of 2002. Almost 7 1/2 years.
  2. Congratulations Patti on 3 years and many many more, way to go! Rich
  3. Fantastic news Joel/Maryanne-- that is wonderful to hear for sure! Rich
  4. Welcome Mariola, Sorry to hear about your dad. I was diagnosed in MAY of 2002 Stage IV with mets to my adrenal glands and I'm still here. My only option is chemo. So there is hope. Stay with us and keep us posted on dad and ask questions/research. Glad you found us. Rich
  5. Diagnosed Stage IV NSCLC (BAC) in May of 2002. Almost 7 1/2 years.
  6. Here is a good site you might find helpful. http://chemocare.com/eatingwell (Managing Eating Problems)
  7. Hi Kimberly, I have tried Provigil, Megace (also increases appetite), Concerta, and Ritalin. Right now on Concerta and does help get me through the day. Exercise helps (ride a stationary bike an hour per day) also. Below is an article on fatigue which is posted on GRACE. Also (see below) posted in Lung Cancer In The News forum is Provigil: Narcolepsy Drug Fights Cancer. I’m on a lot of meds which also can cause fatigue, just a thought. Other reasons lack of nutrition, stress anemia and depression. Worth discussing with Mom’s doctor. Of course everyone is different and reacts differently. Hope
  8. Hope this might be of help. Rich HELPFUL RESOURCES: THE COSTS OF CANCER TREATMENT CAN QUICKLY BECOME OVERWHELMING, EVEN IF YOU HAVE MEDICAL INSURANCE. PATIENT ASSISTANCE PROGRAMS ARE OFFERED BY VARIOUS COMPANIES, NONPROFITS AND GOVERNMENT AGENCIES TO HELP PATIENTS WITH LITTLE OR NO INSURANCE GET ACCESS TO DRUGS AND MONEY FOR OTHER EXPENSES. IF YOU’RE INTERESTED IN ENROLLING IN A PATIENT ASSISTANCE PROGRAM, YOU MUST FIRST GATHER INFORMATION, USUALLY FROM YOUR DOCTOR OR THE MAKER OF THE SPECIFIC DRUG YOU’RE TAKING FOR WHICH YOU NEED ASSISTANCE. A DOCTOR MUST BE INVOLVED IN THE PROCESS BECAUSE
  9. Joy, Glad to see things are looking up. Check out The Wellness Community, they have two in Florida as well Gilda's Place and it's free. Might be one near you. It's important to talk to people in person also who have been there, done that and not to go it alone. Hang in there Rich http://www.thewellnesscommunity.org/Default.aspx (The Wellness Community)
  10. I'm very sorry and saddened to hear about Bucky. She was a sweet down to earth person, every now and then would get a nice PM from her. My condolences to all her family and friends. I will miss her for sure and will always remember her. Rich
  11. Congratulations and way to go! Keep it up and many many more for you.
  12. Welcome Joy, Glad you found us. It's a lot to take in at first and is understandable how you feel but as mentioned (Ned) don't pack it in yet. We have many members who have far out lived their prognoses. Lung Cancer in not a death sentence and one can live with it for many years. Often treated as a chronic (mine is) disease. Stay with us, ask away and keep us posted. Rich PS: I would get a second/ third opinion, your doctor sounds very negative and offers little hope.
  13. dadstimeon

    Tarceva

    Hi Renate, I was on Tarceva for about 7 months and had good success until it stopped working. I developed diarrhea and the rash. Lowered the dosage from 150MG to 100MG and that cleared up the diarrhea. The rash I only had for a short (and was not bad) period and it went away by itself. I never bought into one has to have side effects in order for treatments to work. We have had members with severe side effects and it did not work and members who had no/ or very limited side effects and it did work. Everyone is different and reacts differently, one never know until one tries-- keep the faith.
  14. Well for me knowledge was and is the key. I spent countless hours on the internet (there are plenty of good reputable sites for research) reading anything, everything to learn and understand as much as I could. I think it is important to be as knowledgeable as possible to make decisions along with one’s doctor. I took things as they came down the pike, not getting ahead of myself. I never did and still don’t think lung cancer is a death sentence, that life was, is over or why bother—as far as statistics go they are what they are and was not going to kid myself, anyone or let it stop me. I w
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