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babylove91297

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  1. Hi Renate, I haven't posted much on these boards in awhile, but I do know about some of the side effects of the radiation. I took 35 treatments to my chest and back starting in July of last year. After the first week of radiation I had to take a week break because of the burns to my esophagus (sp?), I had lost about 10 pounds, it was hard to swallow anything, but I felt better by the time I started back, and the changed the position of the radiation so it didn't happen again. I did however get bad burns on my chest and back, they gave ointment for it. Also it was hard to be out in the sun for any length of time. And yes it does zap a lot of your energy, but I worked the whole time while I was doing my radiation. I hope this helps, Bobbie
  2. Hi everyone, So sorry it has been so long since I have posted.... God has it really been almost a year. I guess I am guilty of throwing myself head-on into living every moment to the fullest. I will be celebrating 2 years survivorship at the end of the month and I just found out about a week ago that I am still cancer free that marks 11 months now. When I was first diagnosed I didn't think I would make it this far, I put my life on hold and so did my oldest daughter. She was supposed to go away to school but because of my diagnosis she stayed home, well on the 1st of January she finally was able to live her dream and move to Las Vegas where she is going to school. Life is good today, nothing like it was when I was first diagnosed, but the new norm that everyone is always talking about. I'm enjoying it to it's fullest. I've learned not to take things for granted, and truly believe that cancer is a word and not a sentence.
  3. Hi everybody, I am sorry it has taken me so long to update you all, but here I am.....finally. I recieved the results of my latest pet/ct scan almost 2 weeks ago, and I am in remission. I never thought I would hear those words a year ago, and I am overjoyed that I finally heard them. Again I am sorry it took so long to let you all know but I guess I just needed for it to sink in for awhile. I also decided against having the pci for now. I just don't believe that the odds of it working were that great. But if I change my mind my radiation oncologist told me just to call him back and we would set it up. I have been keeping myself busy lately at work and at home. I am starting to enjoy life again, and that makes me very happy. It's definitely been a long road, but I am surviving it. Thank all of you for your prayers, and for caring. God bless you all. Bobbie
  4. Hi everyone, I have to go back to my radiology oncologist on Monday and I still haven't decided whether or not to have the whole brain radiation. I understand why they want to do it, but I still don't know if I want to put myself through it if I really don't need it. I have talked to all of my family and friends about it and I have gotten mixed feelings on it. I mean are the chances really that great that it will definitely go to my brain without it. If I put myself through the radiation does that mean that it will never go to my brain??? I am so confused about this. I really don't know what to do, and Dr. T. wants my answer Monday. I have a niece who tells me that I am being selfish if I don't do it. She lost her father to cancer a few years ago, and she says that if there is any chance at all that this will save my life that I owe it to my children to have it done. I really understand her, but I still want proof that it is needed for me to survive. I wish I just had a magic answer to this, or that I could pull one out of a hat, this is so nerve wracking. I go for my pet/ct scan on next Thursday, and that has got me nervous as it is. Any insight on this would be greatly appreciated. And I am so sorry for rambling on, I really didn't mean for it to be this long. Thanks everybody! Bobbie
  5. Hi Gaye, I know first hand how scary that sclc can be, but as you have been told there are many long term survivors, I am a one year survivor myself. You have come to the right place, there is so much wisdom and kindness on these boards. I will pray for you and your sister. Hugs, Bobbie
  6. I have been through a fire....about 8 years ago, we lost everything, including a cat, a turtle, and a rabbit, but God spared our 4 daughters and my husbands mother who were home when the fire broke out. When I lived in Oklahoma, I saw many tornadoes, and here in Illinois we have had our share of them also. We had a small earthquake here a few months ago. It shook my house a little, but thats about it (thank God) Bobbie
  7. Congratulations Tom, I pray you have many more anniversaries. Bobbie
  8. Congratulations to both of you....and here's to many, many more!!!! Hugs, Bobbie
  9. babylove91297

    Survivor

    Today marks 1 year since the date of my diagnosis. When they first told me I had sclc I thought for sure if just hearing that didn't kill me that I probably wouldn't make it a year. Then I found this site and all of you here, you made me realize that I wasn't alone, and that I didn't have to become another statistic. I am thankful that God led me to this site and to all of you. You have all taught me a lot. I don't know what the future holds, but I am not afraid to face it and if need be fight my way through it. You are all a blessing to me, and all your kind words have meant the world to me. I wanted to have a party today, but, I have to be to work in an hour so I figured that I would just have a big party on my birthday (the 16th of next month). Thank you all for your support over the last year. Bobbie
  10. Good for you Ned!!!! I myself will be celebrating my 1 year surviorship in just 3 days. It's been a long a tough road, but I made it....with the help of all the other survivors here.... Thank you all!! Bobbie
  11. Hi Netlyn, I'm so sorry that you had to find this sight, but at the same time I'm glad that you did. You will find a lot of encouragement and insight on this site. I too have small cell lung cancer. I am almost 1 year from diagnosis. I just finished 6 weeks (a total of 33) radiation treatments on this past Monday. Compared to the chemo they were a breeze. I did experience burning of the esophagus, and some burning of the skin, but all and all it was the easiest part of the whole process to get rid of this dreaded disease. As you will hear from others on this sight, sclc responds well to chemo. And the radiation will help to get rid of what is left after the chemo. Try not to be afraid, we will all be here for you. You will be in my prayers, if I can help in any way just pm me. Hugs, Bobbie
  12. I just close my eyes and think of that "special someone", it usually works unless its him who stressed me out...lol.
  13. Sherri, you by all means are not alone. I also have sclc, I was diagnosed in August 07. It has not been an easy road, but it is do-able, and I am feeling really good. I know that it is scary, but like Randy said there are many long term surviors of sclc. And you have come to the right place for hope. If you need anything or just want to talk pm me. I will keep you in my prayers. Bobbie
  14. Hi Bob, Welcome, so sorry that you needed to find us, but glad that you did. This site is a great place for support and hope. You sound as if you have a positive attitude going in, which is a good thing. I will say an extra prayer for you on Tuesday. God bless you. Bobbie
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