Jump to content

Patti B

Members
 View Profile  See their activity

  • Posts

    3,023

  • Joined

  • Last visited

 Content Type 

Posts posted by Patti B

    His pain is over

    in GRIEF

    Posted

    Bonnie-

    I am so sorry to hear of the passing of your husband. Please accept my sincere condolensces. I wish you peace and strength for the days ahead.

    Hugs - Patti B.

    Am I wimping out ?

    in GENERAL

    Posted

    Barbara-

    I agree 100% with Ry. You can always stop or even ask for a change to another chemo that is easier to tolerate.

    I was on Alimta for about 8 months at which point I showed progression. I had a fairly easy time on it - some SOB and fatigue but not enough to stop me from doing anything - I still gardened that whole summer and painted my bathroon.

    Everyone IS different but maybe you will be lucky like I was and have an easy go with it.

    Good luck!!!

    Hugs - Patti B.

    Patti B is moving on up!

    in GENERAL

    Posted

    Hi everyone-

    Thanks so much!!! This was a nice surprise.

    I know I don't post a lot but you all know I am rooting for each and every one of you. Its just been crazy here what with the holidays, being active on Nicks swim team and going to a million swim meets and doing some LC advocacy work.

    To catch everyone up - I had the WBR in August and am still waiting for some parts of my head to sprout some hair - am worried it won't all come back in. I look like someone ran a lawn mower right down the middle of my head!!! LOL!!!!

    I have been feeling good - had to have a couple of chemos cancelled because after 3+ years, my blood counts went to hell. Now I am on Gemzar every other week and my blood counts are bouncing back.

    I finally had to break down and have a port put in - that was one thing I never ever wanted. But all my veins were shot and they were worried the time would come when they would have to send me home because they couldn't access a vein (the last time prior to the port they had to stick me 9 times).

    I go for a scan Monday and results on Tuesday so of course my scanxiety is building. Will let everyone know the results of that.

    I just want to say, esp. for the newly diagnosed - I was given 12 months tops and just passed my 40 month mark. STAY POSITIVE AND ENJOY LIFE. PLEASE DON'T LISTEN TO STATISTICS!!!!

    Hugs- Patti B.

    Epidurals...how painful?

    in NSCLC GROUP

    Posted

    Melanie-

    I had an epidural when I had whats called a "cerclage" when I was pregnant. Needle stick was nothing!!!! You'll be fine!!!

    As far as the catheter goes - remember that once they remove it, many woman come down with urinary tract infections so if you have any burning or anything, contact your doc for antibiotics.

    I know we've all said this - but I want to say once again that your attitude is absolutely terrific.

    YOU ARE GONNA ROCK THIS SURGERY!!!!!!!!!

    Please keep us updated!!

    Hugs - Patti B

    Time for Surgery!

    in NSCLC GROUP

    Posted

    Melanie-

    I never had surgery so I cannot relate to that or give you any advice on it but I do know that your outlook is wonderful and I know you will come through none the worse for wear. Keep up that positive attitude - you will learn how important that is.

    Good luck and keep us posted.

    Hugs - Patti B.

    Scan question

    in NSCLC GROUP

    Posted

    Linda-

    I couldn't stand that onc. When he told me that he was "terminating our doctor-patient relationship" If not for the IV in my arm I would have done cartwheels across the chemo room!!! Abd I did tell him once when he was acting like God - "I can't go home at 5 pm and turn the light off - I live with this 24/7".

    We have to be our own best advocates or have someone who will be - should be our docs but it doesn't work out that way!!!!

    Good luck with your scan!!!

    Hugs - Patti B.

    Scan question

    in NSCLC GROUP

    Posted

    Linda-

    Good for you for demanding answers to your questions. Its your body and you are allowed to ask ANYTHING (at least in my opinion but then remember I was the one who got fired by my last onc for asking too much).

    Anyway, I have always had the contrast, too. The doc has to mark on the request with or without contrast - wonder if your doc just doesn't know what box to check - LOL!!!!

    Glad you won that one!!!

    Hugs - Patti B.

    Short Term Memory loss

    in GENERAL

    Posted

    Don-

    I had WBR in August and placed on a clinical trial using an approved Alzheimers drug (Memantine) to see if it helps with cognitive thinking and short term memory. I just finished the trial - you are only on it for 5 months - and I have had no memory loss - or at least none that I can remember - LOL!!!

    Hope the drug works!!!!

    Hugs - Patti B.

    4 to 0 in 2 yrs flat!!

    in HOPE

    Posted

    Denise-

    How did I miss this wonderful post. Congrats and a great big hug to Tom.

    Remember what I always told you about him - you can't keep a good man down!!!!

    I am just thrilled for you both!!

    Hugs - Patti B.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept