Ry
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Posts posted by Ry
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All I can say is thank God for your family doctor. A PET scan should be done to find out what the spot is on the liver. If you read throught some of the posts you will find one (from John I think, but not positive) stating the new research reccomends chemo after surgery to make sure they get all the cancer. Hope all is well.
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It does not take much to be dehydrated. In addition to the pinch test, you can tell by the urine. If it's dark, they're dehydrated. Urine should be nice and clear. If a person is not urinating frequently, they may be dehydrated. Push the water, it will make him feel much better. My husband found the more he was able to drink, the better he felt and it reduced the muscle pain he got from chemo.
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Dave, Dave, Dave, what am I gonna do with you? You are in for a major a__ whooping! I am going to have Estelle drive to your house and slap you silly. How many times are we going to do this dehydration thing?Drink drink and drink till you can't stand it.
You are really in for it on Wednesday.
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Forget the candy bars, what about the shrinking cereal boxes? Do they think we're stupid??
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Oh Louise, I feel so bad for you. It is so hard in the beginning, such shock, devastation and the feeling that your whole world fell apart. I thought I'd never stop crying. Little by little it will get better, the shock will give way to determination. You are fortuate that he is feeling well and has a good attitude, that will take you far.
We're here for you.
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So far Iressa seems to be working for my husband, John (knock on wood). At his check up the onc said his lungs are clearer than last time. He feels well, has more energy. He has a CT scan July 9th so we'll know more then. Hopefully Tim won't get the rash.
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I am so sorry Shannon. I know you are devastated by Mikes passing. We are all here for you when you need us.
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I will never complain about the Recipe forum again.
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So glad you posted about your mom, I have been wondering how her surgery went. Tell her we expect her back on the board as soon as she's home.
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Karen, the situation you speak of almost happened to my husband. The radiologist was not informed that they were going to consider surgery if the tumor shrunk enough. Luckily we brought this up before he had the maximum dose (don't ask me what that is). They stopped radiation, he was evaluated for surgery and it was not possible. He then went ahead with the radiation. The problem is that once an area has the maximum radiation it will not heal. It was a hard decesion for us because we knew once we went that far there was no going back. It is frustrating when the different doctors don't communicate with each other.
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So happy to hear about your wifes improvement! Go Blue!
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So glad to see you on the board again! We have all been so worried about you! I am so sorry about what's happened to you and the loss of your mom at such a young age. My deepest sympathy.
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Lori, thanks so much for reminding everyone why we're all here. Welcome to the wives club no one wants to belong to. We're all here for you.
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Shannon, you are so right to cut these people off from updates. You need to get all the negativity out of your life that you can. If they can't be supportive and positive OUT THEY GO! You need only positive energy right now. We are all pulling for you and Mike. Hang in there and know that all of us in the "wives club" are here with you.
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Shordy, We have a friend with liver cancer (mets from colon cancer). he was given 3 months to live due to the liver being in such bad shape. He went for a 2nd opinion at the University of Michigan hospital and they did a procedure where they put a port in that sends chemo via a pump directly to the liver. He now has 2years+ and doesn't feel too bad from the chemo. Is this an option?
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What Judy said only much nicer
(kidding Judy)You should check into shots for the white count. My husband got pneumonia letting his get too low so be careful.
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Ray, for my husband he was fine with most of the chemos he had until the 3rd day after. On the 3rd day (probably as blood counts started to drop) he was extremely tired and had body aches. With one chemo (I think the Gemzar) it was the 2nd day. So don't expect it to bother you right away. He was never really ill just extremely tired.
The more water he drank the better he felt. So DON'T PULL A DAVEG ON US AND GET DEHYDRATED.
DRINK DRINK AND DRINK SOME MORE.
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Just remember how many people here would love to trade places with you and be able to have surgery. You are very fortunate. Take care. We will all be thinking of you and join us at the chat room as soon as you're up to it.
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Michelle I forgot to add that it is safer for him to have the tube if he is not swallowing properly or reguritating. If he aspirates it is extrememly dangerous and canl lead to aspiration pneumonia. They may have wanted the tube to prevent aspiration.
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Michelle,
I work with several individuals with feeding tubes and a friend of ours with throat cancer had to have one during his treatments. It's not anything to worry about. Some use a pump and some gravity (a pole with the bag). It takes a while to get the liquid in. He will have a tube coming out of his tomach with a little cap. They can be pulled out but usually are easily re-inserted. Just need to be careful not to catch it when it's connected to the bag and pull it. He'll do fine and so will you.
Best wishes.
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This is a great idea. I wish I were closer so I could participate. Keep everyone posted about the kick off date.
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Well Laurie there is always a back door. Many times with my husbands illness and his insurance company I've had to get creative and find another way to get what I want done, a back door so to speak. If I were you I would just ask the family doctor to order it. The oncologist isn't the only person that can order a scan. If you have a good family doc, let him know your concerns and he'll do it. Our family doctor has ordered several things for us. We can get to him faster than the oncologists.
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Michelle,
My husband has been on Iressa approximately 3 months, it appears to be working but we won't know for sure until July when he has a CT scan. The doctor says his lungs are getting clearer and he thinks he is getting shrinkage of his tumors. If nothing else he certainly feels better and has a better quality of life. Hopefully your husband will get a good result too.
Have you read Bernie Siegels books? If not, they are great to listen to on tape and very inspirational for your husband. He should try the visualizatin techniques with the Iressa (visualize it killing his tumor) and see if it helps him. All the best to you both.
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Surgery Again
in NSCLC GROUP
Posted
Let me also say how much I have appreciated your posts and e-mails regarding dealing with the Iressa (you call that a rash?!) rash. I am sorry to hear it has not helped but will be very anxious to see where you go from here. As you said, as soon as you have a battle plan you'll feel better.