Ry
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Posts posted by Ry
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Hey Janet,
I am hoping for pneumonia too! My husband is doing well on Iressa, you may too. When it works, it works!
All the best to you! -
Well hell.
I will also be hoping the report is wrong. Take care and know how much we all think of you and appreciate you helping everyone interpret medical things.
Keep us posted.
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My husband also has a small pocket of fluid that they just watch. It has decreased some with time. He hasn't had surgery, I assume it is from the radiation or chemo.
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Welcome home Cheryl!
Take it easy and check in when you're up to it.
Wishing you the best.
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Once signed in you should see a big red CHAT word under "member area". If you don't see your name on top of the main page you are not logged in. If you don't get in tonight there is another chat tomorrow.
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Just want to direct you all to a post in Activism by John titiled "tour of hope". You can make a donation in memory of your loved one and John will match your contribution.
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This is great news!
Your dad's surgery sounds similar to the one David A had. You should get with him and see if it's the same surgeon.
Good wishes coming to you dad.
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Ok John, I clicked on your link and made a contribution under Ada's name (very easy to do!). Good luck with the efforts. Thanks on behalf of everyone! You're great to do this.
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Hey Janet, so glad you are hanging in there and staying strong. God if this thing doesn't make you cry once in awhile what will?! Please keep us up on how you're doing. I wish you lots of time with the wonderful kid of yours.
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Ada Waddell
in GRIEF
I am so sorry to hear about Ada. She was so helpful to me and others on this board. She answered one of my posting with some information she had saved from another site and I have since been able to pass that on to others. She was so helpful to everyone and never gave up.
This is a very sad day.
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Hi Amy,
So sorry to hear about your dad. My husband has been on Iressa for several months and is doing well with it. He has not been ill like your dad but has experienced the diarhea and rash. Your dad needs to make sure he is wearing a sunblock cream as it seems to make you photosensitive. Maybe he swelling is from the sun? Just a guess. My husband is having good results with the Iressa so far, I wish the same for your dad. Make sure he is getting plenty of fluids, he may be dehydrated.
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Oh Janet,
This is what I hate about lung cancer. You don't deserve this, your children don't deserve it. I can't even imagine what you are going through as a single mother. I hope that no matter how you decide to beat this thing that you are here to see your children graduate, get married etc.
I do wish you'd get a 2nd opinion on your staging. I agree with Sam, you sound like a 3b not 4. I am not a physician, but Sam is. It doesn't mean you have to go through radiation & chemo but I think you need to at least know what you're dealing with. Then you can make your battle plan. Lot's of people choose to battle their cancer with diet and supplements.
We're all here for you, to listen and support you. Please keep us updated on how you're doing.
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Hey DAvid!
Yep I can certainly relate to the "feel to good to be sick" comment. My husband appeared to be healthier than ever when he was diagnosed. He had quit smoking several years prior and had lost a lot of weight and was exercising. While the chemo knocked him down for the count several times now that he is past that he seems to feel pretty good, even though the cancer is still there.
Wishing you all the best.
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I think this is wonderful Dave. It is so hard to make arrangements right after a death, I remember doing my fathers after he passed away. It would have been so much better to have known what he wanted or do have it all done. My mother is in her 80's and I wish she would at least write down the facts for her obituary. I don't remember what year she retired etc.
A story:
My cousin was diagnosed with cancer. After living with it for several years, it became apparent there was nothing else to be done. She made all of her arrangements down to picking out the funeral cards, wrote her obituary, picked out the bible readings she wanted, etc. I remember she was writing her obituary and she said to my Aunt, "I'm doing my obituary want me to do yours too?' She had a great sense of humor. We even had a birthday party that was actually a living wake with all her friends in attendance. We all told funny stories about her and had a great time. My daughter made her a card that said, "Happy Birthday, we're really gonna miss ya!' I thought it was wonderful that she did that for her children so they could grieve her without all the additional stuff.
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I think Davids having too much fun on Tuesdays! So I think think the answer is Tuesdays with DavidA and Wednesday with DaveG! Remember the time difference.
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Hey Donna,
I think a chat room night for your little sub-group is a great idea. From reading your earlier descriptions of a pancoast tumor, I am sure my husband is also in your club. Please add him to your membershipt list. Is there dues? Anyway, if you set up a chat night, I'll have him there (his name is John).
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Others are having problems with chat. Maybe Rick (AKA "lips") can do a tutorial when he gets a second. There were instuctions in Technical at one time but they're gone.
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Hey Marlon,
I am so glad you posted. I was wondering about you and your mom. You were in such a bad state last time you posted with your problems with step dad etc. I wondered how you were doing. You were such a help to everyone on here, please pop in more oftern. You been missed.
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You go Judy!
Where is that cheerleader uniform?
So happy to hear surgery was possible and hope it all heals up well.
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OkDebi:
This is the address I use:
Maybe you can make it for Wednesday at 8 DAVE TIME
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If the horse is dead, get off.
Sorry I just couldn't resist.
Seriously, Becky's answer makes perfect sense stastically (is that a word?).
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Calling all chatters,
David A has been unable to join in on the Wed chat because he is taking an electronics class on Monday and Wednesday. He misses his chat! So we'll be meeting in the chat room tonight 8-10 Eastern time. Hope some of you can join us. This does not replace the regular Wed chat hosted by the distinquished DaveG
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It's what you DON'T know that will hurt you!
There are individuals on here that are much younger than you, 18 and 19 years old. Go and find out. Depending on how far along you are with your pregnancy they will be able to x-ray or scan if the baby is fully developed. Blood in your speutum is nothing to ignore. Let us know what happens, we will all be wondering!
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Chills and fever are not good. My husband ended up in the hospital with pneumonia. Call the doctor.
Regarding naming hospitals, I am sure others in your area will be happy to reccomend something to you if you ask.
All the best to you!
No Pnuenoma/Started Irressa
in NSCLC GROUP
Posted
Well Janet my husband is doing very well with the Iressa. It does have side effects like a terrible rash that is like no other rash you've seen, and diarhea. Some have had other problems like pneumonia (Lucie I believe).
If you get the rash, e-mail me and I can give you some info that may help.
He was on several types of chemo and radiation that shrunk the cancer but did not eliminate it. His first scan after starting the Iressa showed almost 1 cm in additional shrinkage. Whatever it is doing, it is stopping the cancer from progressing. I hope it does the same for you!