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SandraL

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Posts posted by SandraL

  1. Hi Joe. Very glad to hear our news. Thanks for all your support to folks on this site. You are an inspiration. Prayers for you and your family.

  2. Hi Gail. You seem to have a great attitude. The thought of chemo I think can sometimes be scarier than actually getting it. And the wondering about side effects. I found the nurses so caring and actually had lots of laughs in that room. Take care

  3. Hi there John. If you are like me it will take you awhile to get used to all the information on this site. But there is lots of it, lots of inspirational stories, and lots of support. Take your time, look around, and ask any questions you would like.

  4. Thanks yet again for all your support and good wishes. I have now seen it in writing with my own eyes, NED.

    And better yet, now that I have gotten my blood pressure under control I have been cleared to go on a clinical trial. It's a vaccinne intended to prevent it from going back...go away and stay away please (and thank you).

    My med onc confirmed what a lucky girl I am. Agreed with me that I should go buy a lottery ticket.

    Now if only my analytical mind can convince myself that I am not receiving placebo on clinical trial. One out of three chance of that.

  5. Hi there. I have had several exploratory surgical procedures including lymph node biopsy. Your mom will be in pain for sure and they will give her pain medication. Make sure she takes it on time and watch out for constipation from pain meds. It actually took me some time to recover from exploratory surgery, couldn't drive etc. But, they will find out exactly what is going on so you can move on with treatment. This is a very scary time in the journey. But it does get better..hang in there.

  6. I think you have good reason to be excited. And I agree, the benefits from radiation can take awhile to unfold. I am still getting more positive results from radiation months later. Hope you have continued good reports.

  7. Please know there is always hope. And the oncologists know what they are doing. Ask lots of question, ask what all the options are and get actively involved in treatment. It is so very scary at first...but it does get better. God bless you and take care.

    Read my signature, I have been very lucky so far...

  8. What I have found through my my journey so far is that it is best for me to give my doctors or nurses feedback when they have disappointed me. Not that I necessarily want different ones, more because I think they need to hear feedback from a patients perspective. Most times they have done something without thinking about it from that perspective. So far, all have appreciated hearing my feedback. And it can be done very diplomatically. I have found it makes me feel better as well, because if I don't say something then it can bother me for a long time...and we sure don't need things bothering us when we are fighting this thing!

  9. Hi Barbara. It sounds like you have had an interesting journey with your hubby. I am sure you have lots to contribute. Welcome

    What other support site did you belong to? I haven't explored any others since finding this one. There is probably more information I should be reading.

  10. And yet another chemo grad! Not a diploma any of us would have wanted to get but what the heck...just must feel darn good to be done. You have certainly dealt with alot in the last while! Take care

  11. and I am an excitable gal! In mid February I received results after CT scan on results of my 1st line chemo radiation treatment. And the news then was that my response was "excellent" and "that I could possibly have had a complete positive response". Well I of course was thrilled by that and now....

    I had another CT scan this week, as part of establishing a baseline for a critical trial I am wanting to get on. So, I of course have been a little anxious about those results but was thinking things couldn't have changed that much.

    Well my GP who gets copied on results called me tonight (way after his normal working hours) and told me he "wanted to thank me for the gift I had given to him and his staff in his office". I said thank you but what gift would he be referring to. He said he had written report from my CT scan this week and it is even more positive than the last. He read it to me and I am pretty sure he said the words "no evidence" several times. And that he can't quite believe it either, quite remarkable he said.

    I think I am now starting to really believe it. I am a conservative accountant by profession so have been holding out on really absorbing even my previous great news. But WOW I am excited now. I now don't have to be a bit nervous going to see medical oncologist next week...I will just tell her the good news first!

    I cannot believe that I have been so blessed and do not know why I have been chosen to be so lucky. But I'll take it. I am going dancing tonight and hope I don't step on any one's toes in my excitement. And then I will be having a nice glass of wine at the pub. (Now that I have figured out this virtual pub thing).

    Thank you all for listening, I do go on.

  12. I was walking down the street when I was accosted by a particularly dirty and shabby-looking homeless woman who asked me for a couple of dollars for dinner.

    I took out my wallet, got out ten dollars and asked, "If I give you this money, will you buy wine with it instead of dinner?"

    "No, I had to stop drinking years ago", the homeless woman told me.

    "Will you use it to go shopping instead of buying food?" I asked.

    "No, I don't waste time shopping," the homeless woman said.

    "I need to spend all my time trying to stay alive."

    "Will you spend this on a beauty salon instead of food?" I asked.

    "Are you NUTS !" replied the homeless woman. " I haven't had my hair done in 20 years!"

    "Well," I said, "I'm not going to give you the money.

    Instead, I'm going to take you out for dinner with my husband and me tonight."

    The homeless Woman was shocked. "Won't your husband be furious with you for doing that? I know I'm dirty, and I probably smell pretty disgusting."

    I said, "That's okay. It's important for him to see what a woman looks like after she has given up shopping, hair appointments, and wine."

  13. Hi there Janette from a fellow Canadian. I would simply not listen to the curable versus treatable. Read my signature below for my history and treatment. I am also stage 3b. There were some risks with me receiving chemo but I weighed them up and went for it. And I survived it quite nicely, and am now even back at work. Ask lots of questions of medical oncologist on Monday. Everyone's circumstances are different though. Feel free to send me a private message and I can explain more details on decision making for me. The first bit is tough...it does get better though. Take care

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