jaminkw
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Posts posted by jaminkw
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Don't mean to highjack this thread but thanks to tiredmom. I figured out how to do the search for people but had a rough go of it--it didn't always work but now at least I know I was doing it right. Maybe getting the screen name wrong.
Randy, great job, and Patti, that's the method I resort to when the Search doesn't work. But dummy me, sometimes I have a terrible time finding the recent post.
Judy in Key West
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Chris, Thank goodness they got that machine fixed. It's just awful that a cancer patient should have to wait for treatment until a damn machine get fixed. Hope Jerry gets home real soon and that you all are able to find another hospital real soon. I do think the facility and the doctor make all the difference.
How wonderful you read the posts to your mother. Tell her for me we're all rooting for Jerry and his family.
Many good thoughts your way, Judy in Key West
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Hey Patti, I was up half the night last night stressing or excited about the trip. Am not sure which. I will enjoy it if it kills me but I already have stress I don't need trying to schedule people and events without overbooking myself. Anybody living away from family relate? I told my sister in an email last night I've been looking forward to this trip as a chance to just chill and do something or nothing. If I'm giving up internet and cable, I need some nature time. Patti, I know you can appreciate this time of year up North with the flowers and the greenery. I love KW but miss some of the nature stuff we don't have down here.
If there's email in my box when I get to a hotspot Patti you know I'll be thrilled to answer it. You're terrific.
Judy in Key West
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Lynn, Since it's after eleven and I'm back on because I can't sleep (really am excited about my trip), cold turkey it may be.
Judy
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I'm going to try not to ramble. I'm very sad tonight. I went into the live chat and couldn't really participate. I realized the last couple of days that this site is more than an addiction (which I've been telling myself lately). I've been really busy, pushing myself more than I should probably, trying to get ready for a five-week absence from home during hurricane season. When I would sit down for a rest, I'd go online and click the posts since my last visit and try to catch up on everybody. Because I've been so tired, half the time I'd read posts and then click the X insteat of the arrow and take myself off. Then when I came back in couldn't get the posts missed back again.
Trying to make this long story shorter, I've been sad because I've missed rough times my friends here have had. I guess I've been so tied to the site that it feels awful to find out someone has had a bad time and I wasn't there to add my voice to the support and encouragement of other site members. I'm feeling this now because I know it's going to be really awful for me when I'm gone on vacation. I'll probably get on briefly here and there at hot spots but I will miss "talking" with you all on a daily (sometimes hourly) basis.
I'm leaving Saturday but will try to begin to wean myself off the next couple of days. Think I can do it? Not all all sure!
Judy in Key West soon to be Judy on the Rancocas River with the birds and the beavers.\
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Ry, When I saw this post subject come up I couldn't get to it fast enough. Rich has to be one of the most inspirational people I've ever met--oh, I haven't really met him but you know what I mean. I will keep him in my heart and thoughts with wishes for a quick recovery from that rash. I know when he gets the procedure he needs, he'll bounce back in no time.
Judy in Key West
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Gail, Sounds like a tiny bit of sense of humor creeping in again and I'm really glad. That Hank's tolerating the Alimta is really good and the doctors at least have a plan. Here's hoping he gets results from the new antibiotic. It's been a long haul for the two of you but I've seen so many people on this site up against it and then just turn a positive corner.
Sending positive thoughts and feelings your way.
Judy in Key West
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Lynn, Here's hoping for the best possible results for Larry. I agree it's better to find out what's going on if your intuition is telling you all may not be well. Here's hoping it something very manageable.
Judy in Key West
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Chris, I am so sorry. It's just not fair. You just look like you and your family are starting to catch a break and it all falls apart again.
Hope things look up again--like you said for more than 24 hours--and real soon.
Judy in Key West
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I can hear your pain and frustration. I don't understand or like your neurologist. Why would he tell you that. I didn't have neuropathy but I know people on the site have and it has last for varying degrees but it has gone away. I don't understand how he can tell you it's only going to get worse and will not get better once you are off the chemo.
It wasn't like what you are dealing with but I can relate with my experience with Avastin. I was having raging headaches I eventually found out were probably from the Avastin in my chemo cocktail. By the time I went into remission and they put me on Avastin maintenance I was spiking stroke-time blood pressure levels. I was really mad and didn't want to do it but my doctor promised to level my bp and told me to stay on the treatment. He did and I did. Your doctors don't appear to be handling this with a lot of understanding or compassion. Get mad but maybe also get a second opinion on the neuropathy.
I really am so so sorry you are having to go through this. Please come here and vent and get any info you can from people who have been through it.
Judy in Key West
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Sandra, After your reply to my pm I came here and can't believe I missed this yesterday. I can't believe you haven't heard anything today but I'm sure the update would be here if you did.
Well, at least if you haven't gotten the results yet I can still keep hoping and crossing my fingers for you. I'm so sorry you have to go through this waiting and worrying.
Judy in Key West
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Oh Patti, CONGRATULATIONS!!!! I'll be there to toast you at the Pub too. Sandra's pub sounds fab. Imagine, a summer of no worry. Hope they get on top of that leg thing soon though so you can really hoe those rows with full vigor.
So happy for you, Judy in Key West
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Dar, I am so so sorry to hear this sad news this morning.
Judy in Key West
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I can't believe I went for a massage and missed all this fun. Sandra, I read the first post and though, wow, I love that kind of stuff. Ya all just kinda chimed in and it got really crazy!
I'm right handed, have (lung) cancer in the left chest wall and my brain can't really decide most of the time if it wants to lean to the right or the left. Frankly I really like Patti B's idea.
What a great bunch.
Judy in Key West
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Carole, I am so glad you're going off the Alimta and have to trust you will find a more appropriate treatment plan. I didn't want to tell you and sound like an alarmist but I went on the cancergrace site yesterday a couple of times looking answers to your symptoms and any link with Alimta. I was really worried about you.
Am so glad you've been in touch with Dr West. He's saved my emotional life a few times. I don't know what I would have done between visits to MDACC without Dr West to bounce things off of. He's the best! I'll be checking in there later.
Besides the temp, are you feeling any better at all. Hang in there friend and know I'm here for you.
Judy in Key West
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Sandra, I was really out of it and rambling yesterday but you pretty much got it. We all find our way of handling the fear so it doesn't dominant our lives. I was observing my myself, though, how sometimes I think I see it lurking as I go through the sites and listen to people and try to inform myself about cancer and treatments and side effects. I think I'm trying to do better next time around--they say it will come back. Will I see it coming this time? I just believe that when something feels off, we really really want to know is this a side effect or is it the cancer acting up again.
I like what you said about peace of mind. I find it much easier post dx to just let things go with people I'm close to that I've had issues with. Life's too short is right there at the top of my responses. Those choices about treatment options are always still a sticking point for me though. I never know what I'm going to do until I'm up against it.
I appreciate your musings.
Judy in Key West
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Now that's funny!!!!
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Carole, I've been on and off the site all day and don't know how I missed this post you did early this morning. Hope you got to talk with your sister and found some comfort in missing your Dad.
Wishing you a peaceful evening, Judy in Key West
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Phil, I always thought nodule meant small and in this arena small is good and possible is even better.
We'll wait for an update.
Judy in Key West
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Debi, I haven't been around long enough to have known you when...but I wish I had. Such beautiful sentiments so eloquently spoken. Congratulations on your five years of freedom.
Judy in Key West
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Dar, I'm so sorry. I wish there was more I could say but there isn't. I'm hoping others with pain management experience will come in and offer some advice. From what I read on the sites, it is sometimes challenging to find that balance between having someone's pain under control and not having them seem out of it.
Hang tough. Hope hospice comes in tomorrow and helps.
Judy in Key West
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Connie, thanks. Nothing I do surprises me these days. I'm suffering from what appears to be real chemo-brain and am only on one maintenance chemo drug! What other excuse do I have?
Judy in Key West
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Mitch, Welthy used my exact words when I saw your new pics: Look at YOU! Congratulations on your personal triumphs. Awesome. And I'm so happy for your mom and her great test results. I'm glad she's filing a complaint for the blatant harrassment in the face of her medical issues. I've always said people get away with that stuff because other people allow them too.
Continue on your positive course--both you and your mom.
Judy in Key West
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Patti, Hard not to stress. You've got me in your corner girl and it looks like that corner is full of well-wishers.
We'll be waiting to hear the results--all good, we know.
Judy in Key West
Missing you already!
in LC SURVIVORS
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Jen, Didn't mean to skip over your reply. Thanks, as we often say it's nice to know others have felt like we do. Like I told Patti, I'm going to enjoy this trip if it kills me.
Judy in Key West