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jaminkw

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Posts posted by jaminkw


  1. I had my first CT/PET done at a diagnostic facility set up by my PCP. He said has referred patients there and it would be the least expensive way to go. Since I am uninsured, I asked my MDACC oncologist if I could have my follow up there in late March. I admit I've been a little nervous about that decision (she said o.k.). The results of my first one (see my profile 10/9/07) was the reason I was so stunned at the IIIB lung cancer dx. Now I've been reading Blaze101's experience and am having third thoughts. Can there really be that much difference?

    Judy in Key West


  2. Snowflake:

    Sounds good. I'll try it after I edit yet again. Funny, but I forgot to add the doc visit where they told me "not cureable but manageable." I keep trying not to hear/remember that.

    Thanks for the tech help.

    Judy in Key West


  3. Thanks again Betts. I got the font right and went in today and edited my profile. I took out most of the dialogue and it should be tidier and easier to read now.

    Ned, I'll be ready any time now for color!

    Judy in Key West


  4. Ned, Yeh, I did it but it seems like I put too much in and left a lot out that would describe my disease better for others. But you know, it was traumatic for me for some reason to put it in print. So, I'm proud I did it. Now I'm going out with a friend to have some fun. When I'm ready, I'll take stuff out and put stuff in and then, yes, how did you guess? I was admiring the colors!

    Judy in Key West


  5. Peachy: I don't know anything about the hospital you mention in Clearwater. The Moffitt Cancer Center, however, was one of the top choices my daughter researched for my diagnosis and treatment. She is a registered nurse who works on an onlcology floor in a hospital in Port St Lucie. She said she's known a number of patients who have gone there are were very satisfied with the facility. I picked MDACC because of my doctor's recommendation and because it was closer for me than Moffitt.

    Good luck and happy retirement in Florida!

    Judy in Key West


  6. Thanks for the feedback. It took me three months to get myself to sit down and record it. I think it will take awhile before I'm ready to edit it down. In the meantime, making it much much smaller will help me and not draw attention to my wordiness.


  7. Am really happy to see the guys feeling comfortable enough to share their seemingly embarrassing boob stories. That's a real sign of trust that we women won't turn that into a joke.

    Judy in Key West


  8. Carrie: It's very early in the morning and I've gotten off my pity pot to wish your mom and all "scrapper" moms see the tides turn and gently carry them back to a more comfortable place. Broken bones are really painful. Hope they are helping your mom out with the pain.

    Judy in Key West


  9. Geri, I'm a relative newcomer but want to add my voice to the well-wishers rallying around you. You are obviously a strong woman to have battled cancer only to be called back into the ring again and come out swinging.

    Judy in Key West


  10. "When the going gets tough, the tough get waterproof mascara" (assuming you have eyelashes left after chemo!)

    I can say "bald is beautiful" until the cows come home but don't really believe it. I have worked up to going out to get my mail or paper without hair. I even let some neighbors in the house when I'm walking around bald. When I go out anywhere else, though, I still do a wig or scarf. It's not the worst though. The worst is my eyelashes. I would say my eyes were my biggest vanity when I was young. I'd already started thinking they were thinning with age before I was diagnosed. Now with only spikes here and there and little eyebrows to speak of, I look in the mirror and am a pale shadow of myself. I don't expect to be beautiful or even particularly pretty at age 64, I would just like to reconize myself! Oh, in time they tell me....

    Judy in Key West


  11. Colleen: Good one. I had to check out the "Just for Fun" forum after opening and reading a really offensive email from someone I consider really intelligent but inexplicitly really racist. This involved Denmark that I recently saw named the country with the happiest people and am trying to choose to not believe the stuff I read there that are allegedly happening to that wonderful country because of immigrants who refuse to assimilate. Yuck.

    I like the funny valentine!

    Judy in Key West


  12. Carrie and Nicole: Recent posts about your moms are inspiring to me. I'm one of those moms people always pointed to as having an indomintable spirit but the last couple of days, I felt I lost it. I went to bed early last night (so of course up at four am) further depressed that my inlaws are insisting on coming for an inpromptu visit in between chemos. It's hard to schedule company between infusions when the recovery isn't going so well but they are very pushy and my husband never has been able to stand up to them. They won't be staying with us but nearby and I have to stand my ground that I'm not responsible for entertaining my sisters-in-laws. When I feel like socializing, I will and when I don't, I'll lay on the couch.

    This morning I decided I would put my appointments and visits from out-of-towners (best friend coming later in March are so welcome as the visit has been planned for months) on my laptop calendar. I had tried to read the schedule from my doctor once before but my brain was not ready to process. Surprise, surprise!!! It looks like my March 11 chemo has not been scheduled. I thought it would be an Avastin maintenance. I'll do the cocktail Feb 19, skip the March 11 in favor of the late March CT/PET and then a visit to Dr Tseng for the results on April 1. I'm almost afraid to wish. Maybe the improvement of Jan 8, if continued, may suspend the treatments for awhile. I just don't know and am not ready to ask yet. The PA I spoke to about treatment the day of my dx responded to my "are we looking at years here?" with a "maybe, but maybe they'll just go in a zap it and then she'll just follow you. Again, I'm not sure they are sure what triggered my single infusion and I'm going back on line to research the likelihood the pneumonia or falls did and perhaps the cancer is earlier stage than the infusion suggested. I'm also going to ask for radiology reports done at MDACC so I can compare the CT/PET in particular with the previous one that said "low level malignancy." I needed to fuel my optomism again and going over the schedule did the trick.

    Judy in Key West


  13. Preachy: Didn't have radiation but Taxol/Carboplatin/Avastin took all my hair after one infusion. My husband keeps telling me that after five infusions, it's growing back. Bull, what's there doesn't even amount to peach fuzz and I'm looking at it in a magnifying make-up mirror. Fortunately, two people recently referred to social situations where women are showing up sans hair voluntarily???? It's supposed to be "in" right now. Go figure.

    Judy in Key West

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