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LovesLife

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Posts posted by LovesLife

    Time for Surgery!

    in NSCLC GROUP

    Posted

    Melanie - so glad you have a date and can get on with getting it out! I know you will do just fine, but the pre-surgery jitters are totally to be expected. If you want I can send you my e-mail via pm and if you have a family member let me know, I can let everyone else know how things are going for you. If you'd prefer not, that is totally understandable too.

    Wishing you the best and keeping you firmly in my prayers!

    Luv,

    Linda

    Saturday's Air

    in JUST FOR FUN

    Posted

    Randy - there's no ice on your eyebrows - it can't be that cold?!? I'll admit -you've got some good snow fall, but it sure doesn't look as cold as it is here! Mmm - they say Canadians are so nice and here I am saying we're tougher than you are :) !

    Hope you find your phone Judy! Enjoy the fishing tommorow Bud!

    Have a good weekend everyone.

    Linda

    Update - Fred this time ! UPDATE 1/29

    in MEMBER UPDATES

    Posted

    Kasey - so glad your honey is back home and doing ok. I know when I am stressed I get stomach issues - or perhaps you just have a flu bug? Either way, it's no fun when you are focusing your attention on Fred. So, hopefully that passes quickly for you.

    As to Fred and his nodules, I will be keeping you both in my prayers that everything is still the same. I find it so odd that all the scans have been stable and then all of a sudden there is progression since the December scan? Was this scan done at a different facility?

    It seems like a long trying road to get some answers, but knowing your tenancity they will be forthcoming. I will be impatiently waiting with you for those answers. Try to take care of yourself Kasey.

    Hugs,

    Linda

    Blowing away statistics -

    in MEMBER UPDATES

    Posted

    Becky - what great news! Seven years!!! CONGRATULATIONS!!!! Your story is one of the ones I share with the newly diagnosed in our area. You are truly an inspiration and give hope to so many.

    BTW, if you want a designated driver I'm pretty good (even on ice and snow) and that will free you up to tie one on!

    Linda

    Scan question

    in NSCLC GROUP

    Posted

    Dana - thanks for getting a further update on this issue. I am so happy to hear that we are headed in the right direction! I haven't been on GRACE in over a week so I will check out your posting. Thanks so much again.

    Linda

    It's that time again

    in MEMBER UPDATES

    Posted

    Prayers-check; healing thoughts-check; positive vibes-check! All the above have been done and we will anxiously be awaiting the results with you next Thursday.

    Yep Judy - "squirrely" would be a good way to describe pre-testing jitters...hang in there girl.

    Hugs,

    Linda

    Latest news on my sister

    in HOPE

    Posted

    Cat - what wonderful news! Isn't it great when a tonsil is just a tonsil :) ! BTW, your sister amazes me too. Her attitude is something - I love her comment - "why would I stop now?"...indeed why! Congratulations on this great update.

    Linda

    Update - Fred this time ! UPDATE 1/29

    in MEMBER UPDATES

    Posted

    (((Kasey))) ... Small potatoes my eye! Sounds like you two have been through the wringer the past 6 months. I am glad that Fred is where he needs to be right now - in the hospital where they are searching for and getting answers.

    I am sending you my prayers, my good vibes and all my sincerest "whatevers" to get you guys through these difficult times.

    You are always missed around here - I'm just sorry you haven't been away for more enjoyable reasons.

    Much love and best wishes to both of you!

    Hugs,

    Linda

    Home from Bronchoscopy... GREAT NEWS!!!

    in MEMBER UPDATES

    Posted

    YEE HAW!!!! It sounds like everything went terrific. It is so great that you have a good team of people that make you feel comfortable and cared for. Then you will have your family and friends as a cheerleading section - I think you are covered :D !!

    What amazing news that the tumor is only in the middle lobe...you won't even notice it's gone (unless you are a triathlete-then, maybe so). It is good that she is still going to take out the lymph nodes - it will give you peace of mind down the road. As to not getting the VATS - remember the chant "I am so lucky to have surgery" - yeah, I know it sounds weird, but it is oh, so true. I will admit, you will be the warrior queen after getting the full meal deal and I will be the lowly warrior princess because I got the VATS. Just don't let it go to your head, okay! :)

    Anyhow, this is the best news possible and I am eagerly awaiting news of your surgery date with you. The prayers and support continue my friend.

    Luv,

    Linda

    Scan question

    in NSCLC GROUP

    Posted

    Patti - so great to hear from you!

    Perhaps you're right and he simply checked the incorrect box - sounds like an easy mistake to make.

    I am with you on the opinion it is our right to ask questions (and not get fired for it mind you :shock: ) - I wonder how your onc would have felt if that was a loved family member and the treating doctor got upset when he/she asked questions - jeez! I think you are way better off anyhow - I know I couldn't have any kind of trust in someone with those kind of control issues (I need some control myself-little bit of a freak that way :) )

    Take care Patti,

    Hugs,

    Linda

    Scan question

    in NSCLC GROUP

    Posted

    Hi Dana - no, please don't get me wrong. The whole thing with my questioning the contrast CT scan was simply because I had not been getting the contrast CT in the follow ups since surgery. I had the CT with contrast prior to surgery (which is when they diagnosed possible carcinoma); but since surgery have only had non-contrast CT's. I questioned the whole issue because it changed. Had I been having them all along I am certain I wouldn't have thought twice about it. As well, it was the radiologist who made the changes - not my surgeon. That was another red flag for me. If my surgeon had made the change he would have explained why and I'm pretty certain I would have been just fine with it because I trust him.

    So, I am not against whatever tests are needed - I just knew that for me it changed this time around and I wanted (and demanded) to know why.

    If you read all the answers from the other members Dana - almost ALL of them get CT with contrast. So please, please don't NOT get the testing because of my issue. Have a talk with your doc and ask him why you get the contrast - he should be able to explain this to your satisfaction. Keep in touch and let me know how it goes.

    Hugs,

    Linda

    Scan question

    in NSCLC GROUP

    Posted

    Debi - thanks for giving me the peace of mind that I am not hurting myself by NOT getting the dye. You're right - it's not our job to make their job easier and if it takes a few more minutes to read the scan then so be it.

    I don't think they are used to being questioned and I told my sister I may have quite the wait come scan day if they have a good memory and remember this :)! I don't much care though - I 'll just bring a good book and smile knowing that I got my own way!

    Take care my friend,

    Linda

    Love You Forever

    in GRIEF

    Posted

    Nick - I remember that story all too well from when my children were little. We read that every single night for many, many months. My son would always say at the end of the book "You'll always be my mommy, but I don't think I could carry you like he carries his mommy!" Still makes me smile when I think of it.

    I can certainly understand why the book affected you as it did though - in very few words it takes us through a life time of love between a mother and her child. Sadly, you didn't get enough time and she didn't get to experience all the joy you had to give her - including Sophie. I hope the tears were cathartic in some way, although it would be better if it was a perfect world and you didn't have to be going through the pain of her loss at all.

    Take care Nick,

    Hugs,

    Linda

    Bill Will Be Coming Home

    in CAREGIVER RESOURCE CENTER

    Posted

    Oh dear Barbara - I almost missed this. I am so happy that Bill is back at home now under your loving and watchful care. I, too, would wish to be at home where things are familiar - we all know how that word "home" invokes such a peaceful feeling. I hope that things are going smoothly and that you are managing to take those moments to regenerate yourself. I will be keeping you and Bill in my prayers.

    Luv,

    Linda

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