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EileenM

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Everything posted by EileenM

  1. EileenM

    Posture

    HI All this poking and discomfort I am having on my right side has had one positive side effect - it has improved my posture while sitting. I don't slouch as often as I used to. Will be glad when all that goes away - sometimes it makes me really really grouchy. Just needed to tell someone who has been there --- now maybe I won't be soooo grouchy! Thanks for listening! EileenM
  2. Hi David W Welcome to this most wonderful, helpful site - I was admitted to the hospital the end of March this year for Atrial Fibrillation and part of the admittance was having a chest x-ray done and a nodule was found. Once the ole heart was back to being normal, I was able to focus on the lung. Glad you are feeling good and again this is the site to come to for support! Eileen
  3. EileenM

    Katie and Rick

    Glad Rick and Katie are here to stay. This is a wonderful site. I am a newbie and have found this site to be very helpful. My thoughts and prayers go out to everyone! EileenM DX:NSCLC on July 23, 2003 Stage 1A T1 N0 M0 l.x x 1l5 cm pulmonary nodule in right upper lobe Upper right lobectomy Bronchioalveolar Carcinoma (BAC) Lifelong NonSmoker Begin Catscan follow-ups in November 2003
  4. EileenM

    Scan

    That is wonderful news!! EileenM DX:NSCLC on July 23, 2003 Stage 1A T1 N0 M0 l.x x 1l5 cm pulmonary nodule in right upper lobe Upper right lobectomy Bronchioalveolar Carcinoma (BAC) Lifelong NonSmoker
  5. Hi _meksvanh I went to the website you referred me to. Lots of good information. From what I have read so far, it seems that the followup catscans and CEA blood tests are the things to be doing now. The website is a good one to go back to for updates on treatment. I have my list of questions going for the doctor. I have to review my list and answers from my first followup visit because I think some of my "new" questions were already answered. I sure wish we knew what caused this BAC - at least I could do something to help prevent it from happening again. So far we've had another RADON test done in the house and in process of having our water tested again. I also have made improvements in my diet - so far I've eliminated Diet Sodas and increased my fruits and veggies. Got to do something positive other than just going for the followup Catscans and blood tests. Still find it hard to believe this happened! Well I will go back to reading more of the info on the website. Thanks again. EileenM DX:NSCLC on July 23, 2003 Stage 1A T1 N0 M0 l.x x 1l5 cm pulmonary nodule in right upper lobe Upper right lobectomy Bronchioalveolar Carcinoma (BAC) Lifelong NonSmoker
  6. Hi Thanks for all your replies. At least I know I am not alone feeling those pokes, burning sensations and just downright unpleasantness. I dread riding in a car - so my trips to the malls are fewer - saving money now! haha I go for my second post-surgical checkup next week. Was suppose to go tomorrow but the surgeon had to reschedule. In reply to s-mekevanh -------I also went to an Oncologist for a second opinion about follow-up treatment and asked about chemotherapy and radiation. He said right now the treatment for BAC Stage 1A T1 N0 M0 was surgery with followup Catscans and CEA blood tests. The surgeon says the same thing. The surgeon is doing the follow-up. Are there any specific sites you can list so I can read and be ready to ask additional questions next week about BAC? EileenM Dx: NSCLC on July 23, 2003 Stage 1A T1 N0 M0 1.3 x 1.5 cm pulmonary nodule in right upper lobe Upper right lobectomy Bronchioalveolar Carcinoma (BAC)
  7. Hi - am 5 weeks into recovery from having my upper right lobe removed. I am Stage IA BAC and am fortunate not to need chemo or radiation. I am wondering if anyone ever experienced a burning sensation of the skin in the area below the right boobie and on my right side - it is there all the time. Especially when clothing touches the skin. Have put off calling the doctor because I keep thinking it will go away. Thanks! EileenM
  8. Posted: Wed Aug 13, 2003 3:24 pm Post subject: -------------------------------------------------------------------------------- Hi Dave, Debi, Jeannie, Becky, Bob & Gail Thank you all for your kind words and support. I guess because I don't have to face having any further treatment other than the Catscans and Bloodwork, I really don't feel like I'm entitled to think of myself as a Survivor. I'm interested in learning about the Bear Story. I'm guessing that the bear is for hugging not beating up on? Where do I go to read about it? Time for another hot shower - I think tomorrow I will call the doctor to see if he will prescribe something other than Tylenol. I am on Coumadin so am limited in what I can take for pain. Thanks again, everyone. Eileen
  9. Hi Dave, Debi, Jeannie, Becky, Bob & Gail Thank you all for your kind words and support. I guess because I don't have to face having any further treatment other than the Catscans and Bloodwork, I really don't feel like I'm entitled to think of myself as a Survivor. I'm interested in learning about the Bear Story. I'm guessing that the bear is for hugging not beating up on? Where do I go to read about it? Time for another hot shower - I think tomorrow I will call the doctor to see if he will prescribe something other than Tylenol. I am on Coumadin so am limited in what I can take for pain. Thanks again, everyone. Eileen
  10. Hi. I had surgery 2 weeks ago - upper right lobe removed - Stage 1A BAC. Quite fortunate that the cancer did not spread to the lymph nodes. Mine was found when I was admitted to the hospital 4 months ago for Atrial Fibrillation and had a routine chest x-ray done. I knew as soon as I was told the nodule was there that I was going to have it removed - had no intentions of following it through catscans. Had more Chest x-rays, Catscans and Petscan - all indicated benign. As soon as I had a CardioVersion done and back into Normal Sinus Rhythm, I zeroed in on having the nodule removed. I was quite shocked but strangely calm when my husband broke the news that it was Cancer to me in pre-op. Had asked the Oncology Surgeon to allow my husband to tell me if it was found to be Cancerous. I don't think it has fully hit me yet. Guess because I don't have to face Chemo or Radiation Therapy. My follow-ups will be Catscans and CEA blood tests. When I am alone and think about this, I do get upset but it hurts too much physically to cry so I just swallow hard and get composed. I never smoked and as far as I know I haven't been exposed to anything environmentally. The nodule was 1" x 1.5". Doctors considered it small. But to me it seems monstrous! To put my mind at ease we are having a Radon test done in our house. Was done when we moved in several years ago but I want another one done. Had VATS - Video Assisted Thoracic Surgery. So have 5 incisions (one for the Chest Tube). The only incision that is large and bothersome is the one used to remove the lobe. Have cut back on the Dilaudid to one at night. I still don't sleep well - maybe 4 hours. I am very uncomfortable during the day with a burning/tingling sensation on the right side of chest and a "poking" or "tugging" feeling in the middle part of that area. Tylenol doesn't really help. Any suggestions for coping with this discomfort from someone who has had similar surgery? Doctor suggested occasional hot showers - but I could turn into a prune if I took anymore and Tylenol. I have been walking since day of surgery. Am up to 2 miles almost every day - depending on the weather and if I have someone to walk with me. My breathing is getting better, I huff and puff when I climb the stairs or when I walk and talk. Walking and sleeping was alot better when I was taking the Dilaudid more often, but was told I should cut back from the 4 times a day to once a day. So I have gradually cut back but as I did the discomfort increased. Sure is a scarey thing to happen. Reading how other people get nervous when they go for their follow-ups is helpful. I think I will be on pins and needles waiting for those results when I begin going. Thanks for listening. I think when I can finally cry without physically hurting it will help me alot. I think I will stock up on tissues in the meantime. Eileen
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