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simplyklb

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  1. I just got home from the hospital. Dad was admitted this morning. He is in a considerable amount of pain. Five milligrams of morphine as needed is not working. My mom and I told the nurse and she is going to try to another cocktail. I will be heading back to the hospital this evening with my youngest brother.

    We met the oncologist. The consult was ordered because the nurse told me at one point. At 12:30, the oncologist came in and spoke with my parents and I for the first time. We all three really like him. The oncologist was very upfront with us, which we really appreciated. We learned about the treatment plan and got the results of the PET scan. The PET scan pretty much revealed what we knew... There is spread to the liver (couple of spots) and the some of the bones. The prognosis is 1 to 2 years with treatment. Without treatment, it would be a month or two. We are not looking for a cure. There's a chance that the treatment will fail my dad. The oncologist said that he has only seen this in a handful of patients. The oncologist wants to do radiation first to help decrease my dad's pain. He is guessing 10 to 15 sessions. He will get a radiation doc into see him either today or tomorrow. Could possibly start radiation before he is discharged from the hospital. Chemo will start after radiation begins. I asked the oncologist about what would be used... He told me Carboplatin and VP-16.

    Dad is having an MRI this afternoon. They are doing an MRI of the brain and spine. The internist will be by to see him after 5 PM (after office hours).

    Our immediate goal is to get my dad to my oldest niece's wedding on Sat., June 14th. Quality of life is still the main goal.

    We are in the process of getting his advance directive set up. I am one of the alternate agents along with my oldest brother.

    That's where we are now.

    Kristi

  2. It's OK to be angry. It's one of the stages of grief.

    I get angry at times because my dad is being diagnosed with lung cancer. It's not fair. I always thought that he would die from emphysema. I never thought that cancer, nonetheless lung cancer. I am a realist about my dad's situation.

    Lots of prayers are going up for you!

    Kristi

  3. Hi All,

    Thank you for the welcomes, prayers, and good thoughts. They are much appreciated.

    I will know a little more late tomorrow. That's when we are suppose to get the results from last Friday's bronchoscopy. I will post when I know the results of the biopsy. We won't hear anything about the staging until after the PET scan. I am not looking for the PET scan results to be available until Friday or Monday. Again, I will post the results of the PET scan when I get them.

    As I get results, I am sure that I will have questions.

    Kristi

  4. Hi All,

    I am new here and my dad is in the process of being diagnosed with lung cancer. I have cried many tears over the last week. Dad is 70, He was diagnosed with emphysema in late 1994 or early 1995. Dad was diagnosed with emphysema after experiencing shortness of breath. He smoked for nearly 40 years when he stopped smoking in Feb. 1993.

    What has led us to now... Back in April, Dad said that he needed to go see the doctor. Mom was coughing and couldn't get rid of her cough. She made appts. for both of them to see the doctor on Thurs., April 10th. Dad had a chest x-ray and a spot showed up on the x-ray. He had pneumonia. We were puzzled because Dad had a pneumonia shot last fall. He went back to the doctor on Fri., April 18th. The doctor ordered chest x-ray and then a CT scan on Dad. Dad went in for the CT scan on April 23rd. We did not get the results until Mon., April 28th. The CT scan revealed a tumor on the right lung along with a few enlarged lymph nodes. A spot on the liver along with an enlarged lymph node was noted as well as. An appt. was scheduled for May 9th with a pulmonary specialist. A CT scan of the abdomen was ordered. On Wed., April 30th, Dad underwent the abdominal CT scan. Dad's primary care physician called us and told us that Dad needed to get into the pulmonary specialist ASAP. On Thurs., May 1st, my oldest brother went to the pulmonary specialist with our parents. The news was not good. The pulmonary specialist ordered a bronchoscopy and a PET scan. The bronchoscopy was performed on Fri., May 2nd. My middle brother and I took Dad to the appt. After the biopsy, the doctor who performed the scope came out and talked to us. She told us that the tumor looked angry and that it was blocking his right bronchial tube. She took several biopsies. Angry tells me that the cancer is aggressive. We should have the results of the biopsy late tomorrow. Dad's PET scan is scheduled for Wed. afternoon. Surgery is not an option for Dad because he has less than 50% of his lung capacity. He did OK with the bronchoscopy. I believed that they used Versed and Fenatyl to sedate him.

    That is where we are now.

    I have been researching the various types of lung cancer online. I know that Dad's prognosis is not good. His lungs are not in good shape due to the emphysema. I am not a pessimist... just a realist.

    We have a support system in place. The immediate family lives in close proximity. I am one of four kids. The oldest is 47 and the youngest is 42. I will be 44 next mon th.

    I feel terrible for my oldest niece (Dad's oldest granddaughter) as she is getting married next month. She is very close to her grandpa. This is having a huge damper on what should be one of the happiest moments of her life.

    Kristi near KCMO

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