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Connie B

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Posts posted by Connie B

  1. Congrates on the GOOD NEWS!!! This is what we LOVE to hear.

    Yep, the living every 3 months gets old after a while, but one day you'll look back and say, wow, where did the time go??? Just remember, it could be worse!!!!!!!

    Let me also say, when they tell you they no longer want to see you, your going to do a double take and that too will scare you out of your mind. WHAT LEAVE MY DOCTOR'S and NOT BE WATCHED??? :roll::wink:

    It's a roller-coaster ride. Hold on tight, you'll get through it all.

  2. Bobbi, are they doing PCI on you? This isn't the same from my understanding as WBR. This is PREVENTATIVE radiation and it's not as strong of dose as WBR. BUT, I'm not the doc here! This is my understanding of it.

    I can tell you that I know of MANY that have had it that have Small Cell. Not ONE of them is sorry they did it. They don't offer this to Nonsmall Cell cancer patients. They reason they offer to you is because Small Cell is noted to travel to the brain, and they have found that this DOES help to stop it from doing that. Is it 100% full proof? Well my dear, you know in this journey nothing is, but IF it were ME in your shoes, I would go for it! Better to be ahead of the game then behind it.

    The ones that I know that have had it had I think it was 12 treatments and that was it. Back when they did it, (8, 9 etc.,etc., years ago) they were told they would be given a lower doseage of radiation being it was Preventative. So, that's my two cents worth. As I said, No one I know who did it, is sorry they did. They are all pleased with it and they are ALL doing WELL today!!!!!!!

    Hugs,

    Connie

  3. And then there was LIGHT! There IS Light at the end of the tunnel! Lights are on, is anyone home??? Lights or no Lights, I'm just happy to see you back!!!!! :wink: Welcome HOME!!!!!!! We left a LIGHT ON FOR YOU!! :wink:

  4. Hey Rich,

    It's good to see you and to hear from you, but I'm sure sorry to hear your having other health issues. I can totally relate what it's like to have other ishy health issues too! :roll: BUMMER!! But, we tend to find the strength to move on. Guess we're stronger then we thought we were! :wink:

    I'm sending you Get Well Wishes my friend. Sorry your under the weather, but I'm glad it's not cancer! :roll::wink: Prayers that you'll be feeling better soon coming you way!

  5. Welcome Gaye T. Sorry you have to need to be here.

    If you go over to the side of the board you'll see a purple list of things. One of them is (About Lung Cancer) You'll find infomration there about NSCLC and SCLC.

    I can share with you that Small Cell (Oat Cell) is more aggressive then Non Small Cell's (Andeocarinoma, Squamous Cell, Large Cell, BAC, Meso).

    I can also tell you that Small Cell repsonds well to chemo. I have two SCLC Survivors in my In Person LC Support Group here in Minnesota one is a 9 year survivor of SCLC and the other is an 8 year survivor of SCLC. The 9 year survivor's cancer had spread to her liver and she is STILL cancer free to this day after undergoing chemo 9 years ago. My 8 year friend also is cancer free to this day. There are many people that survivor small cell and non small cell.

  6. Oh Sweet Kasey, How well I DO remember the beginning of your journey. The best part of your journey is, YOUR STILL HERE WITH US not to mention all the wonderful support and love you have given to so MANY others. :D And to that I say CONGRATULATIONS on 4 bumpy but Wonderful Years!!!!!!!! :wink:

    The best part of these four years is your determination to FIGHT this monster and to BEAT IT!!! You Go GIRL!!!!!

    Lets Toast to 4 Years and we'll add a toast to 4 More Years to come, and so on, and so on.................. :D:D:D:D

  7. Wow it sure feel empty not having her post. I hope she gets things up and running by Sunday, but most of all I'm just glad they are okay!

    Thanks Christine for keeping us posted. Your a GEM!!!!! :wink:

  8. HAPPY (4) Years Pam!!!!!!

    :D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:D:wink::wink:

    We haven't chatted on the phone for a while and I know we're WAY over due, but it sure is great to see your doing so good and that you hit the 4 year mark! Way to Go Girlfriend!!

    Thanks for checking in Pam. We sure have a LOT of our wonderful friends here missing and I hope and pray they will take a minute or two and check in with all of us. I'm very happy they are all living life to the fullest but we do tend to worry about them when they disappear.

  9. Okay Kids, I have noticed that we have MANY MANY MANY of our WONDERFUL FRIENDS Missing in Action here at LCSC.

    The friends that are missing our all LC Survivors who USE to post on this board pretty often.

    Here are some of our friends who I noticed are missing and haven't posted in sometime now.

    Jan (User Name: jang)

    MaryAnn (User Name: mhutch1366)

    Alisa (User Name: Alisa)

    Lilly ( User Name: Ursol)

    Renate (User Name: ....)

    Ralph ( Use Name rvillella)

    Barb (blaze100....)

    Rich (User Name dadstimeon)

    Dazy (User name Dazy)

    Trish (User Name: trish2418)

    NancyB (User Name; NancyB)

    Pam (User Name Nonni)

    Joanie ( User Name daggiesmon)

    Mary ( User Name: myrnalu)

    Bucky ( User name alexan)

    close to edge

    John (User Name: twodogs)

    Max (User Name; Max)

    Geri

    Now mind you, I know some of you may even be a part of the Chat Group, but not all of us go to the Chat room. So we would LOVE to hear from all our friends who are missing in Action.

    I have some of the phone numbers to members, and if we don't hear from those that haven't posted in a while, I am going to start making Phone calls next week.

    If any of you think of others that I am missing, (I'm sorry if I missed some of our wonderful friends) PLEASE post those missing names here. If any of you know how someone may or may not be doing, PLEASE post what you may know here.

    THANK YOU ALL for your love and support.

    Hugs,

  10. Kasey,

    I just wanted to share with you that my hubby has been dealing with a LOT of back pain the last 2 years for disc problems, etc., He too got a shot, and they gave him contrast etc., etc., however his did have steriod meds in the shot. Nor here nor there, but I will say this, he has gotten relief from it. Pain is on and off, more off then on, but he feels so much better he said.

    I would diffently seek an IV expert. That I know of, veins do come back, but like you I have small veins in my hands too. At my last heart surgery I was black and blue all over my hands and arms. OY!! So, I know what your talking about. But I did find 3 IV people that could do me and do me right the first time.

    Oh, my hubby also has numbness in his left thigh. That's still numb but it's not painful. He is just happy to be able to walk more then 3 blocks without having pain.

    Good luck and I hope you feel better soon.

  11. Oh Teresa, I'm sorry to hear dad's not doing to good. I know how he feels though. It gets old going back and forth to the hospital and watching what we put our loving families through. It's hard for him and it's hard for all of you. The roller-coaster emotions SUCK!

    Lots of TLC is in order right now for all of you. My prayers are also with all of you during this time. I'll continue to think positive for all of you and not give up hope. ((((((Teresa))))))

  12. Hi Jeanne,

    Welcome, sorry you had the need to find us, but am very glad you did.

    Congrates on the 30 AA recovery. Good for YOU!!

    We're a great bunch of people here if I must say so myself! :wink:

    You'll find great comfort and wonderful helpful information as well.

    You can read about be below, and then click onto MY STORY if you wish too.

    Please take a minute or two to share with us as much as you know at this time about what kind of lung cancer you have been dx.d with, and maybe a little back ground on you. It helps us to better help you if we have a clear picture and more information.

    If you would like a Phone Buddy, I would be more the willing to lend me as a phone buddy. I have a VERY CLOSE friend who I met as a Phone Buddy from Bettendorf, Iowa 8 years ago. She and I are very close friends to this day. :wink: She is also cancer free as am I.

    I will PM (Private Message) you my phone number and you can do the same. Please don't post your phone number on the board though. Private is better. :wink:

    Welcome again, and hang in there, your not alone!!!

  13. Hi Carol Ann, Nice to meet you. I'm Connie and I'm from Minnesota and I too am a One Lunger. You can read my PROFILE below and click on to my story as well.

    Welcome to the Best site around. You'll find some wonderful folks here and tons of support and information. We all walk this walk together and it works out pretty darn good too! :wink:

    Congratulations on being a LC Survivor. I look forward to getting to know you better.

  14. Dear Shrimp,

    I am very sorry to hear this sad news. The ending journey is never easy.

    Try to keep you dad comfortable and pain free best you/they can. These meds can change us so much, but know that your dad has no control over his actions with some of these medications.

    You are all in my prayers. May God guide you though this very difficult time.

  15. Caren, This is VERY NORMAL that he gets tired with his treatments. That chemo knocks us on our butts. Chemo is a POWERFUL POWERFUL med., so don't fret the small stuff. They tell us when we start our journey that we will lose energy and we will probably get very tired so please know this isn't going to change what the chemo does. His rest IS VERY important during this time as well. He's energy will come back when we completes his treatments.

    They always hand out written info as to what to look for when a person is doing chemo's. Take a minute and read that over.

    He's be fine. (((((((((CAREN))))))))))))

  16. Slippers. My feet always got cold. My wonderful Aunt made me slippers all the time and they were so nice and soft and warm. I loved them and still do! :D

    My hands & arms use to get cold and they would have to put a heating pad on me before they stuck the needle in for my chemo, maybe something a person can put on there hands/arms before getting chemo.

    Good luck! It's a wonderful thing that your doing. :wink:

  17. May I make a suggestion Patti? I think maybe you should repost your message about the (not so good news) on a new thread in a different forum. People aren't going to know this because they are going to assume that others are just adding to the GOOD NEWS thread.

    I'm sorry this wasn't the greatest news, but I'm STILL going to hold out for GOOD NEWS on the next MRI!

    (((((((((((((((PATTI)))))))))))))))

    Tarceva is a good drug and I'm going to keep praying for you.

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