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cathyr

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Posts posted by cathyr

    PhD awarded

    in GENERAL

    Posted

    Curtis,

    Thank you so much for sharing this achievement of Becky's. It's just a reminder of what a special person she was. This world surely misses the gifts she was preparing to make for it.

    My heart and love goes out to you and your family.

    Hugs,

    CathyR

    Port-A-Cath Risks and Maintenance

    in GENERAL

    Posted

    Bill,

    I had the PortACath under the collarbone for 3 months without trouble. Then, they put iodine through it for a CT scan and it caused terrible pain and eventually infection. I had to have emergency surgery to get it out. It works great when used only for chemo. DO NOT let them use it for anything else.

    Hope that helps. Prayers for your wife!

    CathyR

    Not accepted for clinical trial

    in GENERAL

    Posted

    Thank you all so much for your support. It's been a tough couple of weeks to say the least. I feel a bit better today ( maybe the new pain meds are working better). Yesterday I was very tearful. The City of Hope e-mailed me that they don't currently have any clinical trials available for stage 4 lung cancer. I still am going to have my onc. speak to them directly. He's out of town til the 31st. I am checking into other trials and will let you guys know if I find anything. It's just so hard to sit everyday not doing anything except waiting for this to get worse (which unfortunately, it is).

    I don't know how I would ever get by without you all. This site is such a blessing and although there have been controversy at times, there are more times that it brings out the best in people.

    Hugs to all of you,

    CathyR

    Not accepted for clinical trial

    in GENERAL

    Posted

    I don't mean to sound so negative, but I swear if I didn't have bad luck, I wouldn't have any luck.

    As some of you know, I have been busy doing tests to try to qualify for the GVAX clinical trial at U.C. Davis in Northern California. I have had an ekg, echocardiogram, pet scan, cat scan, pulmonary lung function test and a VQ test. I found out Thursday a.m. that I am not going to be accepted because I only scored a 48% on one of the tests and needed to score 50%. I am devastated by this news. Esentially, I have been on nothing for 3 months because Iressa did not work for me and the cancer is spreading quickly. I have numerous nodules in both lungs, lymph nodes and adrenal glands are also affected. I have pain that is getting worse in my left lung area. The onc. says it is either referral pain or caused by scarring that is impinging on nerves. Anyway, it requires me to have to take my pain medication (percodan 10mg.) every 4 hours.

    I am going to try to get into the City of Hope for a clinical trial, but I am really feeling very discouraged at this point. This is the first time in a long time I just want to cry :cry: .

    I am praying for all of us.

    CathyR

    Lucie Update

    in NSCLC GROUP

    Posted

    As you can see, Don, we have our own "I LOVE LUCY" fan club here. Keep us informed about this marvelous woman and her fight against this beast of a disease.

    Hugs to you both!

    CAthyR

    Xray - Not Good

    in MEMBER UPDATES

    Posted

    Oh Margaret,

    Let's hope the antiboitics work very quickly for you. What a pain in the you-know-what! Stay strong, girlfriend. You will get through this too! Remember, one day at a time.

    My prayers are with you.

    CathyR

    new here

    in INTRODUCE YOURSELF!

    Posted

    Hi Pamm,

    I am so sorry to hear about your mom. I have been on Iressa and also had the same problem your mom does. I took over the counter medicine for the diareah and that really helped. Her doctor could probably suggest a brand for her with just a phone call.

    Please feel free to come to this site and ask any questions you may have. It's the best support system around. These guys and gals are the best.

    Hugs to you,

    CathyR

    My first WBR experience

    in NSCLC GROUP

    Posted

    Cheryl,

    Bless your heart! Thank you for sharing your experience. We are all praying so hard for you. Thank God you have such a good support system. Jack is a

    darling. My heart goes out to you. I hope it gets easier for you. And, I think that anxiety probably played a part in your feeling so discombobulated. I feel like that naturally and I'm not having WBR.

    Just know that this too is temporary. Better times are ahead.

    Stay strong my friend!

    Hugs to you,

    CathyR

    My Son Needs Prayers...

    in HOPE

    Posted

    Fay,

    I justed perused this section and discovered the situation regarding your son. My heart goes out to you. Please, please, please dear God, let Philip be okay!

    Keep us informed, dear friend. We all love and support you!

    CathyR

    Being tested for clinical trial again

    in MEMBER UPDATES

    Posted

    Hi all,

    I'm trying not to get too excited, but I found another clinical trial for GAVX that is open. It's at the University of Ca. Davis (northern Cal.). My onc. spoke to the program doctor who thought I would be a good candidate. Had a pulmonary lung function test today, and have several more tests scheduled for this week. I am so praying I get into this. I will keep you informed. The PLF test came out pretty good. Lung capacity is 65% which is not bad.

    Thank you all for your prayers and good thoughts. I know it helps.

    Hugs to you all,

    CathyR

    (New picture is actually 2 years old when my cats (Sherlock and Watson) were kitties. They're persians and my babies.

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