Nancy B
-
Posts
945 -
Joined
-
Last visited
Content Type
Downloads
Store
Profiles
Forums
Gallery
Blogs
Events
Posts posted by Nancy B
-
-
Robin, hang on - there are lots of us on here that can help you through this. Just give us more information when you get it, more about your diagnosis, what type of lc, etc. Mine have all been in the left lung also. We have all been through this and are plenty willing to do anything we can to help you.
Take care and you are in my prayers tonight.
Hugs,
Nancy B
-
Welcome, sorry you have to be here. What chemo are you receiving? I have been through two episodes of sclc, chemo and radiation and I am doing just fine. I am still on chemo for about 2 more months.
Let us know what we can do to help you - please keep in touch. There are caregivers on here too that can help your wife.
Nancy B
-
Hi Kevin, I have had nsclc and 2 bouts of sclc and I have yet to have any symptoms at all. No cough, feeling good, plenty of energy. Of course, that kinda changed after surgery and chemo, but everything is looking good right now. Are you having some symptoms of something?
Nancy B
-
Welcome Gerald, sorry you have to be here but....we are a great group, glad you joined us.
I had carboplatin and etoposide (VP16)two years ago, no radiation and this latest time, Cisplatin and radiation and now I am on Navelbine and Gemzar. I have been living with lung cancer for over 6 years now and I plan on keeping on. Be sure to drink lots of water, don't let yourself get dehydrated and the drugs for nausea work really well.
Let us know how we can help you.
Take care,
Nancy B
-
Welcome, Russ. Hope we can be of help to you. There are alot of very knowledgable and caring people here.
Nancy B
-
Hi Teri, welcome but sorry you have to be here. I had the same chemo 2 years ago. I found that I got dehydrated very easily so watch for that. Eat small meals (snacks) as often as he wants or can. Soup always tasted good, ice cream (not the low fat variety), toast with peanut butter. If I can remember anything else I will let you know.
I am in the La Canada/Pasadena area. Huntington Hospital has a nutritionist available, I just haven't used them yet - maybe someday. If you have any other questions, just pm me and I will give you my phone #. I am doing chemo once a week for the next 3-4 months. In the past 6 years I have had nsclc, and sclc twice (limited), 3 lung surgeries, chemo, PCI brain radiation and lung radiation. I am still working and right now, feeling really good. There is plenty of hope. Just let us know what we can do to help you guys.
Hugs and prayers to you both.
Nancy B
-
This may be alittle long, so I apologize. I finished 6 weeks of radiation along with 6 weekly chemos of Cisplatin. After 3 weeks I started on Navelbine and Gemzar. Chemo No. 2, blood counts were down so got only a half dose of Gemzar with the Navelbine. Did not get #3 as blood counts are awful. The next week I have extreme SOB and pain in the chest area.
No chemo once again, sent for a ct scan and put on 30 mg of Predisone daily. This was yesterday, feel much better today, til the doctor called. They are concerned as there is something in the airway that is blocking the air to what is left of my left lung and causing it to deflate. I am seeing a surgeon tomorrow and they will do a bronchoscopy and use a laser or put in a stent to open this up. Not sure when this will happen. There is always a chance that it is a tumor, could be radiation scarring or ????
I am really nervous about this - this is my 3rd time around for lc. Has anyone been through this?
Thanks for "listening" and know that all of you are in my prayers every day.
Nancy B
-
Good luck Debi, I know you will do just fine. Many good thoughts and prayers going along with you.
Hugs,
Nancy B
-
Three weeks ago I finished 6 weeks of radiation along with 6 weekly treatments of Cisplatin. Today I started weekly chemos of Gemzar and Navelbine (for 3 months).
I see where people have these chemos for nsclc - has anyone had them for sclc? Two years ago, I had the tumor (small cell) sent for chemo sensitivity testing and these 2 came up as best for this go-around. First time I had Carboplatin and Etoposide (VP16) - two years later-recurrence.
Thanks,
Nancy B
-
From California: "Your opinion of me is none of my business"
-
Don and Lucie, many prayers for both of you.
Hugs,
Nancy B
-
No chemo again today, all counts are still down, wbc still at 1.9, got a shot of Neupogen today and will go tomorrow for a booster, blood work on Wedn. and hopefully chemo on Thursday and 1 more week of radiation. Then 4 weeks or so off and either Navelbine or Topotecan (sp) for 4 to 6 months. A little further down the road I will probably have more questions - so very glad you guys are here.
Love and hugs,
Nancy B
-
I just got my second copy today - it is full of good stuff. They have some pages at the back of the magazine called "Resources" and lists lots of different kinds of cancer - we need to get this site listed under Lung Cancer. Tracy, you and your family are in my prayers.
Hugs,
Nancy B
-
Dehydration
in HOPE
Don, Lucie and you are in my prayers. Hope she is much better and home soon.
Hugs,
Nancy B
-
Hi Andrea, your Dad is still in my prayers.
The Los Angeles Times puts out a "Health Section" every Monday. I e-mailed them last year but think I was too late. (latimes.com/health)) Just a thought.
Hugs,
Nancy B
-
Hi Jen's sister, I have sclc also and Jen and I talked on the phone acouple of times. I wish I could have gotten to know her better and meet her in person. I am not Irish, but it sounds like we are alot alike. I miss her and you and all of Jen's family are in my prayers.
Hugs,
Nancy B
-
Hi guys, thanks for asking. I haven't posted as I didn't want to sound like a whiner. The chemo/radiation combo has just about done me in. I have 10 radiation treatments left and 2 chemo, but my blood counts are pretty low so they cancelled this weeks chemo. Will get checked again tomorrow. I have had a really hard time getting the nausea and vomiting under control. Just generally feeling sh""ty. They may have to do a platelet transfusion, my port is on the radiated side (burned) - see what I mean about whining! I do check on you guys daily and all of you are in my prayers.
Hugs,
Nancy B
-
I was born and raised in Missouri which has a high incidence of radon in the ground...I had radiation therapy to my upper chest and face for acne as a teenager...I have lived in air polluted Los Angeles for 30 years, oh, and I smoked - quit 20 years ago.
I have had nsclc and now on my 2nd time of sclc (same lung). So, WHAT CAUSED MY CANCER? I don't care, I just care that I have it and I don't want it. I am so sick of the stigma, I don't feel like I should have to explain "why" I have lung cancer. It makes my cry sometimes.
-
Hi Marco Jo, I am having the same problem with this chemo. My onc. nurse said it is ocular edema, sometimes it just happens but will clear up so don't change your eyeglass prescription. I am on Cisplatin. Hope this helps.
Hugs,
Nancy B
-
Thanks Chris,
This may be something I will have to look into. Thanks for the info. and a big thanks for all the caring notes you have sent my way.
Love and hugs,
Nancy B
-
Hi guys, haven't been on here much. I have radiation every day and chemo every Thursday. We have tried (lst time) Emend and Zofran, besides what they put in the bag with the fluids. Extreme nausea Friday, Sat and Sun. Next time, Zofran and went in the next day for extra fluids and Aloxi. Still sick, can't eat for 3 days, vomiting Sat night and Sun morning.
My onc doc told me that Cisplatin is worse as far as nausea goes - he wasn't kidding!. I can't even watch a food commercial on tv. My onc nurse said it is hard to force yourself to eat anything when you are ready to "toss your cookies" all the time.
I average a yogurt and maybe a piece of toast by Monday morning, but that is it. I did get a Boost down Sunday night. I am feeling really weak, but that may be from the chemo/radiation combo. Anybody got any suggestions?
I am sorry I haven't posted, but I think about you all and pray for you daily.
Love and hugs,
Nancy B
-
Many prayers for Joanie and you too Brian. Please give Joanie a big hug from all of us.
Take care,
Nancy B
-
Hi Andrea, I e-mailed a pic - did you get it? I might have done it wrong. Thanks
-
Jen, I don't think you need to apologize. I have seen "sending prayers, sending good thoughts", and some even quote scripture (which is just fine with me). I firmly believe that prayer has gotten me through 3 bouts of this disease and without God and Jesus, I don't think I could handle this. However, this is my belief.
I think we can honor everyone's beliefs, or non beliefs, here. We all have our own ways to get through this life and we need to respect each of those ways.
God Bless you too,
Nancy B
To Port or Not to Port????
in GENERAL
Posted
My chemo nurses said they wouldn't put chemo through it if they couldn't get blood out of it too. There is a prescription cream "Emla" I think it is called. Put a big glob on the port about an hour before chemo and cover it with that plastic wrap that sticks to things. I don't even feel the stick in or removal. My port was on my radiation side so it is pretty tender.