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close to the edge

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Posts posted by close to the edge

    Cheryl are you ok

    in GENERAL

    Posted

    Greetings Cheryl

    we havent heard from you in a while and we all know you are fighting hard I just wanted you to know we are praying for you. and we think of you often. know we are fighting with you

    Ann

    Fatigue, Food after Chemo/Rad/PCI

    in SCLC GROUP

    Posted

    greetings

    i could not drink ensure/carnation etc

    what i ended up drinking to get neutrition was a protean drink from the vitamin store. i used MYLOPLEX its a powder i would make shakes from it with milk juce fruit yogurt stuff like that in it in a blender

    i could make it any flavor i wanted and even if i only drank 1/2 of it i thought that was good. i would only use half the package as the whole package made it so thick i couldnet drink it, this was recomended to me from a body builder she said along with any solid food you can eat it will add neutrition and callories to gain weight. at the very minimum you will be drinking netrition that will help you heal you could even add it tto smoothies if you wanted

    hope this helps

    Middle of the night / tired / alone / SOB / scared

    in GENERAL

    Posted

    the middle of the night is my best time for a mental breakdown

    somehow during the hectic days it just dosent seam to come on

    but once i lay down and start to ponder whomp

    you gotta admit a good cry can sure make you feel better

    heres hoping today is a better day

    and tomarrow will be better than that!!!!!!!

    fondly Ann

    Office Depot Selling Wrist Bands for Profit

    in GENERAL

    Posted

    i think we should all call the president of office depot and tell him how we feel. i have made complaints on line to other companys on other issues and never never even was heard. i think they just deleate them. however when i called the president of the company that is when i saw results. the issue was rectified imediatly. i for one am going to call today

    Thoughts in the middle of the night....more join us

    in NSCLC GROUP

    Posted

    katieb

    you are very right in many ways

    and yes i can tell true concern

    but this thoughtless woman was clearly looking for gossip

    this is a woman i have known for 20 years she never called, sent a card flowers, nothing and then at this party she wants me to get personal about my cancer... she didnt care enough when i was at my lowest during treatment why all of a sudden at this party is she my confiedant

    and no she is not invited to my party

    it is such a fine line to right and wrong in a sticky situation

    but personaly as a patient i dont want to talk about it!!!!!!!

    i dont want to go over it again and again what i went thru

    i am happy to have all that behind me

    i want to focus on the positive and be happy while i still can

    because everything could change again for the worse overnight

    Hey close to the edge--

    in NSCLC GROUP

    Posted

    i definatly got the good cheer intended and it is very very much appreciated

    and by the way

    it is mild 60digrees and raining

    i too wish it was snow

    but the storm cloud is not over my head

    i am determined to make it a happy christmas

    may we all hold close the people we love and may we cherish the memories of the dearly departed

    happy christmas to all

    :D

    Thoughts in the middle of the night....more join us

    in NSCLC GROUP

    Posted

    my hair grew back and people still put there feet in there mouth

    i was at a party this weekend all i wanted to do was crawl in a dark corner and disapear. i cant tell you how many people came up to me and said stupid things. i know its because they dont know what to say but it still made me feel like crying. i almost did several times. not sure if the person could see i was welling up :lol: i am trying to desensitize myself from these thoughtless remarks "you look great" thats nice cause every day there is something that hurts,nausea from the meds that take care of what hurts,and constant worrying the beast will come back. and "your hair looks great" I'm glad you think so. i stoped coloring my hair upon dx after loosing most of it, it has grown back all gray i am 47 yrs old and look 100. im greatfull my hair is back but i by no means feel attractive. but thanks for telling me my hair looks great. or how about

    " how are you feeling" do you REALY want to know...... i dont think so. I had one woman who cornered me and repeatedly asked that question.heres the conversation

    hi great to see you - great to see you

    how are you - great

    really - yea great

    you look great - thank you

    your hair looks great - thank you

    how are you feeling - great

    no really how are you feeling - big fake grin great

    you sure your feeling ok - yea great

    so what now - nothin

    realy nothing - yea

    i feel great

    then i politely said - i'm hungry - to get away from her

    my daughter was standing next to me and heared me away from this woman

    this woman did not get it that i came to this party to have fun not talk about my cancer, how i looked, how i felt ,or what my drs were doing

    after that party i dont want to go to another one

    I am hosting a party on sunday

    i swear if anyone brings it up i am going to burst into tears :cry:

    i just want to have fun and talk about the weather

    which by the way is very cold!!!!!!

    crappy

    in NSCLC GROUP

    Posted

    i am doing my best to improve my stamina

    i excercise even if i get out of breath or weeze

    i think keeping active has saved my sanity and given me more energy

    i walk,do yoga, i am starting a new excercise program to help strengthen my bones ( i was just diagnosed with oseopenia (sp)) and ride my horse 5 days a week weather permiting. do i get tiered yes sometimes. i just listen to my body and rest when i feel i need to . i try not to take naps during the day but i can sleep 9 hours or more (not straight thru i wake up 2 to 3 times a nite not because of anything in particular i just wake up)

    remember the guy on the dirt bike how well he is doing and just won some bike riding competition? i dont remember his name but i find all my inspiration from him.

    i think ya gotta push yourself a little to gain fitness and stamina

    just listen to your body.........

    thats all for now gotta go to work

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