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Posts posted by close to the edge
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T
what a difference a specialist makes
I have been seeing a pain management specialist since one month post op to magage missmanaged pain from my operation. she has done wonders to help me thru it all and very understanding
lets hope they can help you. if ya can call the office every day and see if they have a cancelation see if they can bump you up. can hurt to ask
at least that way they will know you when y ou show up. maybe even have them post the paper work and get that out of the way. cant hurt to try good luck
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best wishes
hugs
prayers
luv & light
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dust off those boxing gloves and get ready for another fight
all of us here know you can do it
you've done it before
now do it again
we are all sending you prayers and support
good luck
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just wanted to let you all know i am done with the chemo treatments for now. i am scheduled for a ct in august and God willing it will be clear. I am beginning to feel better every day. boy does it feel good!!!!I am so glad to post good news!!!!Luv & light to all
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HELP
in NSCLC GROUP
my first week was the worst week
yours seams more intense than mine
it does get better but the only advise i can give is
write all your symptoms down to tell your onc
take the meds even if you feel better
and drink plenty of water
eat whatever and whenever you want
rest
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comfort and prayers being sent your way
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I am so sorry to hear your dad is having a rough time
I too had some major pain management problem right out of the OR
creaps wouldnt beleave me when I said i was feeling pain!!!HELLO whos body is this anyway!!!! only advise I can give is dont let the nurse leave unless she/he takes care of the problem. They have to follow certain proticol to get things done but it is doable you just cant give in. if they leave and say they will be right back keep pushing the panic button. bug them until they take care of your problem. Let them know you will bug them all night/day in a nice way untill your problem is taken care of.
My pain management nightmare is a whole other story for another time
as for the morphine, with major surgery like this if it works and dosnt make you violently sick take it. if it works and only causes mild nausea and you can take anti nausea meds take it. however if you want to go home quicker you need to get off the drip meds and on the oral meds TAKE THE MEDS. you will feel better and be up and moving around sooner which will make you feel better which will make your family and nurses feel better which makes every one feel better so feel better!!!!!!!!!!!!
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boy do I feel better after reading all your posts
I thought it was only me that couldnt shake the fatigue syndrom
some days if I over do it it takes me 2 days to recover
glad to hear its normal
if there is such a thing as normal
still gotta take it day by day
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Goes without saying
many prayers being beamed your way
luv & light
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hate mail my god
whats the matter with you people you know who you are
i to visitied and found the site down
but I knew right away there were tec problems
no way this site would just shut down
come on folks .....get a grip
its not like someone did it on purpose
as far as i'm concerned with out the people who help run this site none of us would be here suporting each other - keep up the great work!!!!
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my only concerns would be the heat and humidity in DC in august
my son was in college there and it can be really hot and humid. I know the heat and humidity zaps the energy right out of me. perhaps the fall might be better?
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and I thought that beer truck only hit me!!!!!I'm kinda getting use to it. sure wish i could give it a flat tire to slow it down on it delivery route that way maybe it would give you all an extra good day. Cheers to the good days!!!
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I had major pain management problems right from the recovery room from muscle spasams and nerve damage. I have never in all my life experience so much pain.
as others have said it can take a long time to recover and the nerve recovery is constantly changing. I my self took the advice of one of the resendent docs upon discharge to see a pain management specialist. she has been the best help. she explained the entire surgery process and what your muscles and nerves have gone thru. it is no wonder we all hurt so much . some hurt more than others. she put me on zonegran. this medication is taken at night and aparently is good for getting the nerves to repair themselves faster. I am not taking as much of the pain meds now but do take them occasionaly when i am really uncomfortable (like yesterday)the pain manag specialist said it could take up to a year for it all to go away even on the meds.. what i can say for sure is my pain management team in the hospital for surgery let me down big time. -
I say we all meet in DC and show the world we are a force to be recond with! we could have our own convention on the elipse with the washington monument and the white house as back drops invite the press and show cure mag we need more print space!!!!!after all isn't lung cancer the biggest killer, more than brest cancer & prostate cancer combined. so why do we get the least amount of print space? wear your bald heads with pride, paint your posters and ride your wheel chairs but hey lets get people to stop feeling sorry for us and start supporting us!!!!POWER TO THE PEOPLE
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just imagine that the elepant that is crushing you is crusing all the bad c in you too. I hear ya. I am on the same roller coaster.........
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so sorry to hear of your pain. I can somewhat relate. after my surgery I had such excruciating pain, only trouble was the docs didnt listen and said "oh thats so Rair" sent me home but i only returned 5 hrs later with worse pain
couldnt speak let alone cry I pray this gets sorted out for you sooner than later. I was not pain free for 10 weeks after my surgery. sure it got better but it was that nagging pain that never went away. every day I would cry & pray for it to go away. One thing that did help was I went to see a pain management specialist about 3 weeks after surgery. She has been a tremendous help. ask your anesteseologist (sp) if they can recomend someone. when it comes to pain you'll try anything for releif good luck..............ann -
somehow the man upstairs knows when you can take no more
I am so glad it was not bad news for you
hang in there prayers all around for you and everyone out there
luv & light to all
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This is my week of rest from chemo But in general I am doing better. thank you all for your advice
the hair is comming out big time now and it is freekin me out but other than that I'm ok. I go back for blood work only today, Vampires they are!!!! Next week is the toxic week. just wanted to give you all a short update on my progress. take care luv & light to all -
during the spring when it is high pollen count dont open the windows and keep the air on especialy at night. this should really help with alergy symptoms....... hope you are all as well as can be out there
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OMG the nausea is so bad. even with the meds 24-7(compazine)
got progresavily better over the week but it will start all over again tomarrow with more chemo tomarrow. am trying to eat small meals that dont smell before you cook them. bananas/jello/salty foods/gingeraile/ if any one has any other suggestions it would be great. feeling tiered too. guess that goes with the territory. including tomarrow 8 more therapy's to go............. best wishes to all luv & light -
Hello to all I have been visiting often and waiting for C day
Kind of anxious but hey cant be half as bad as the lobectomy & all the pain I had right 
Just wanted to give all you wonderful people a little update on what is going on with me. I will let you know in a few days how my body takes the toxic waist 
as always my prayers are with you all my heart shares your recent loss and i send luv & light to all- ITS A BEAUTIFUL DAY MAKE THE BEST OF IT -
Hi every body I go for my post op tomarrow and i am sure the surgeon is going to sign off on me. I continue to have lingering discomfort from the surgery. nerve damage but I am consulting with a pain management specialist on that. It is getting more tolerable every day. I have yet to have a pain free day. some days this has really draged my spirit down. but I accent the POSSITIVE!!!!I had my consult with the onc and we have decided to go with 3 rounds of chemo once a week for 3 weeks on one week off for 3 rounds using paraplatin/carboplatin and taxol/paclitaxel
before i went in for my surgery i asked for advice and you all were so helpfull so again i turn to you for help What can I do to help keep the side effects to a minimum? any advice would be greatly apreciaatled
many thanks in advance luv & light to all
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check out the post WHAT TO EXPECT i asked the same question before surgery. under that post is alot of great advice. good luck on the surgery cause its no walk in the park.....only thing i can add is bring a lolli pop to the hospital you can lick the pop and suck the ice chips. it will at least give it a little flavor.... luv & light being sent your way
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Greetings to all
I have wonderful news the cancer was only in my lower left lobe.
pathology report states it was not in any of the lymph nodes they tested(they took 4) My post op is on March 19th. Its not the official word but it looks like stage 1A YAHOO
I saw a pain management specialist today because I continue to have problems with pain in the chest and under arm area& back. 
apairentyly(sp) due to nerve /muscle trauma. I am currently reserching thoracic oncologist in my area to get an opinion about where to go from here. Thank you all for all the good advice and prayers. I did everything from your good advice which paid off. and your prayers were answered , Many thankss
as others have said it can take a long time to recover and the nerve recovery is constantly changing. I my self took the advice of one of the resendent docs upon discharge to see a pain management specialist. she has been the best help. she explained the entire surgery process and what your muscles and nerves have gone thru. it is no wonder we all hurt so much . some hurt more than others. she put me on zonegran. this medication is taken at night and aparently is good for getting the nerves to repair themselves faster. I am not taking as much of the pain meds now but do take them occasionaly when i am really uncomfortable (like yesterday)the pain manag specialist said it could take up to a year for it all to go away even on the meds.. what i can say for sure is my pain management team in the hospital for surgery let me down big time.
got progresavily better over the week but it will start all over again tomarrow with more chemo tomarrow. am trying to eat small meals that dont smell before you cook them. bananas/jello/salty foods/gingeraile/ if any one has any other suggestions it would be great. feeling tiered too. guess that goes with the territory. including tomarrow 8 more therapy's to go............. 
Just wanted to give all you wonderful people a little update on what is going on with me. I will let you know in a few days how my body takes the toxic waist 
as always my prayers are with you all my heart shares your recent loss and i send luv & light to all- ITS A BEAUTIFUL DAY 
I saw a pain management specialist today because I continue to have problems with pain in the chest and under arm area& back. 
apairentyly(sp) due to nerve /muscle trauma. I am currently reserching thoracic oncologist in my area to get an opinion about where to go from here. Thank you all for all the good advice and prayers. I did everything from your good advice which paid off. and your prayers were answered , Many thankss
TBone update
in NSCLC GROUP
Posted
T
ask your onc to lay the red carpet out to the pain management specialist
I should imagine the onc should be able to bump you up in line so you could get this taken care of. there is no reason you should be in the ER with Docs that are not familiar with you. As a matter of fact i would imagine your onc could get you in there STAT.