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Elaine

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Posts posted by Elaine

    Question RE: Change In Symptoms While On Chemo

    in NSCLC GROUP

    Posted

    Bill

    I recently developed the "involuntary gasp" that you speak of. I had never heard of it before. I think it might be the same thing. It's like a sound that comes out like babies make at the end of a cry? Is that what you mean? Anyway, I was told this might be an indication of worsening SOB. I see you were given a different explanation. Hmmm.

    I sure wonder what it DOES mean.

    I pray that your wife responds well to the treatment. The other thing I want to add is this:

    Cancer by its very nature seems to give symptoms that are worse on some days and seemingly disappear on the next only to return again. I have had NO treatment, and I find that to be the case. So, some of what your wife is experiencing, may have little or nothing to do with whether or not the chemo is working.

    love and fortitude

    elaine

    Can "hope" be given or taken away?

    in GENERAL

    Posted

    I was up most of the night thinking about the word, "Hope" and somehow "knowing" that David A was not going to make it. I only "knew" this because I think he "knew" it, too, based on his last post. I don't know how I feel about what I thought I "knew" but I did find this article, written by a Dr. that talks about "Hope" as if it were a prescription that Drs. need to prescribe, and it talks about overdosing on "Hope"-- It's long, so I will only post the link to it.

    I think it is a very "hopeful" article. I know sometimes people write that their Doctors have taken away a patient's hope--I guess it depends on the definition one uses of "hope"--. I haven't come to my own definition of "hope," and I am trying to do it. I often wish for someone to hash these things out with. I have spent my whole life hashing ideas out with people, and find that the journey I am now on (actually have been on since my birth, not that I realized it) is a very lonely one.

    If you find the first part of the article kind of hard to follow (like I did), go ahead and skip down some and read that first. Later I went back and deciphered the medical terminology.

    http://www.cancerlynx.com/usehope.html

    love and fortitude

    elaine[/b]

    David A

    in GRIEF

    Posted

    I never met your dear David A. But I do want to let you know that over the past six difficult months since my own DX, he brought many smiles to my face. It wasn't just the silly jokes he posted. It was in just his way of being--his enthusiasm, his sharing of his great joys and his overall exuberance for this life, in the face of the difficulties he was facing.

    We were probably two very different people, who wound up finding more in common than we could ever have thought possible. He showed me a lot about grace. We are both relatively young to face lc, and I have been truly blessed to have his light shine on my path.

    I am going to miss him. My loss pales to the loss his dear children, wife and extended family will face. May you find comfort knowing that he lives on in your memories of him and the smiles he surely gave to your faces.

    love and fortitude

    elaine

    One for the women.

    in JUST FOR FUN

    Posted

    Mr. Ry-- We just might have to make you an honorary woman--! :shock::D

    Not sure how Mrs. Ry will feel about that--but let's just say Honorary Woman for the Distinct Purpose of Providing Jokes that Expose the Truth about Men"

    That's a heck of a long title to put on your resume, huh? 8)

    Hope--could be a potentially sensitive subject

    in GENERAL

    Posted

    I was up most of the night thinking about the word, "Hope" and somehow "knowing" that David A was not going to make it. I only "knew" this because I think he "knew" it, too, based on his last post. I don't know how I feel about what I thought I "knew" but I did find this article, written by a Dr. that talks about "Hope" as if it were a prescription that Drs. need to prescribe, and it talks about overdosing on "Hope"-- It's long, so I will only post the link to it.

    I think it is a very "hopeful" article. I know sometimes people write that their Doctors have taken away a patient's hope--I guess it depends on the definition one uses of "hope"--. I haven't come to my own definition of "hope," and I am trying to do it. I often wish for someone to hash these things out with. I have spent my whole life hashing ideas out with people, and find that the journey I am now on (actually have been on since my birth, not that I realized it) is a very lonely one.

    If you find the first part of the article kind of hard to follow (like I did), go ahead and skip down some and read that first. Later I went back and deciphered the medical terminology.

    http://www.cancerlynx.com/usehope.html

    love and fortitude

    elaine[/b]

    Carleen and Keith I'm thinkin' of ya!

    in GENERAL

    Posted

    I hate to sound like a stalker, too. But I did see Carleen on the board early this afternoon. I quickly pmed her, but by the time I sent it, she was off the board. My Pm has not been opened. So anyway, Carleen, if you read this, pls don't hesitate to post. We are here for you, so let us help if we can. I know it seems like we can't do much....

    And if it's good news, let us know too. You know how minds can wander and wonder...

    love and fortitude

    elaine

    David A Update

    in GENERAL

    Posted

    I don't know, but does this sound OK? I guess I don't know what it means but the fact that they think he will be coming home soon is pretty good news. Thank you Ry. The earlier post had be completely undone.

    elaine

    My former oncologist.....

    in GENERAL

    Posted

    Glad to hear at least two of your doctors have your best interests at heart.

    Maybe I am speaking the obvious here, but I do want to make sure that you have checked out the side effects of each of the supplements you are on. It's difficult if not impossible to do that kind of check on the effects of combinations, but you still might find something that could account for some of your issues.

    Also, your new diet may have caused the weight loss. (Can you tell I am tryng to ease your mind?)

    Though high blood pressure can be dangerous, it's actually low blood pressure that is often more dangerous. Usually high heart rate and low blood pressure go together. Well, they do for me anyway. It's a condition I have-- can't remember the name. But it sucks.

    Anyway, if it gets too high, then pls go to ER. Pls.

    love you lots

    elaine

    2nd rounds of treatment and lost in the woods

    in NSCLC GROUP

    Posted

    Not to mess things up, but has your dad already had WBR? If so, I do think they tend to leave whatever is left alone until it causes symptoms unless there is one-- or maybe two small ones that can be treated with gamma knife--usually they only like to do WBR once but will do it twice if it can be shown to be of benefit. But WBR is usually only done a second time as a last resort effort as it can have some bad side effects.

    This is just info I have learned from being on this site and reading the many posts of others.

    Hope you get things worked out.

    love and fortitude

    elaine

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