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Tiny

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Posts posted by Tiny

  1. Chiming in with the others about having to be your own best advocate. I had a similar occurrence of a test ordered by a substitute doctor not being followed up and it delayed my recurrent diagnosis by about 2 months until I coughed up some blood. Mostly I'm mad at myself for not going to see about the scan results myself. When I didn't hear from anyone (the onc's office or my primary doc who had been cc'd), I wrongly assumed everything was OK. WRONG!

    Keep following the trail and try to get some answers. Best of luck on new scan and treatment options.

  2. It's a hard call. When I had my lobectomy and was staged IIa the standard of care was no chemo or rad; I had a second opinion and was given the same information. All was well for 6+ years. Just had a recurrence and have started Tarceva. Who knows if chemo would have negated the recurrence or extended remission??

    As others have said, the pathology reports may be very instructive. I went into surgery as a Ia and came out a IIa.

    One thing we DID do was make darn good use of those interim years!

  3. This is a tough road to travel, but you can have support on the way by visiting here.

    We used Hospice for both my parents at the end, and they are WONDERFUL. Get them on board ASAP and be honest about needs, concerns, pain, etc. No question is too insignificant. They need you to communicate with them so that they can do their best job and help the family too.

    So sorry. :cry:

  4. CT/PET results in January confirmed a recurrence of my cancer with multiple new nodules showing up in both lungs, lymph nodes, and a spot on the liver. Yesterday I had a bone scan and do not have the results from that yet.

    I started TARCEVA last night. A whole different story is that the insurance company has refused to pay it because I've not failed another line of chemo first. We contacted the Genentech and they were going to try to help get some while the insurance thing is being contested, but we earned $6000 too much to qualify for free help :roll: , so we went ahead and bought a month's supply ourselves to get started. Hope we don't have to do that too often :!::!::!:

    I will certainly be posting and reading faithfully now! If there are any Tarceva posters out there with good hints and information for me, please post or send me messages. Any and all help appreciated.

    Bruce and I put the almost seven-year respite to good use . . . traveling, building a new house, visiting friends and family. We're on a new journey now.

    Love to all!

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