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Tiny

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    Hello, again

    in GENERAL

    Posted

    Randi-

    Sorry you have a need to be back, but know you will find a lot of comfort and information here. I understand your taking a recess...I take them myself at times!

    A different "C"

    in HOPE

    Posted

    We have to celebrate every morsel of good news and hug it to our chests to buffer us against the more difficult times. Wishing you and yours continued good news and better days.

    CT scan detection by accident

    in NSCLC GROUP

    Posted

    I was hospitalized with recurrent abdominal pain and the scan detected the tumor in my lung. The stomach problem turned into a non-event, but I'll always be thankful for it because I was completely asymptomatic in relation to the LC. Surgery allowed me to recently join the ranks of the 5-year survivors even though I had no follow-up chemo (the accepted protocol at the time).

    NED?

    in NSCLC GROUP

    Posted

    Eileen-

    I haven't been on the boards for a while, but I am one of the original posters and feel privileged to say I am still here five years later and enjoying life to the fullest (right up to a short while before each scan and until I know the results!!! :shock:) So your feelings are totally normal. I must say the anxiety has lessened with the passage of time, but I still experience it at moments.

    Sending you my best.

    5 years & counting

    in HOPE

    Posted

    Hello All!

    I guess I get to be entered into the 5-Year-Survivor-Record Book!!! :D I just had my checkup and scan, and the results were "no recurrent or metastatic neoplasm is identified on today's examination." The doctor was thoughtful enough to have the nurse tell Bruce & me the good scan results right away, so that we weren't sitting in the room imagining the worst.

    Life continues to be good for us. We've been doing a lot of travelling: a Panama Canal cruise in November, 2 weeks in Puerto Vallarta with our daughter and SIL in March, and looking forward to a 3 week small-ships Great Rivers of Europe trip in May. In between we've managed some ski trips. We're trying to get the yard in shape now, and Bruce put new tires on the motorcycle this weekend in anticipation of the weather being nice enough to take some rides.

    It's been a while since I've written, but you are all on my mind and in my prayers.

    All my best.

    Mom, 40, Stage IIB

    in NSCLC GROUP

    Posted

    Hi Mitchell-

    I want to provide some positive energy here as a stage IIa survivor of 4+ years. I had 2 lymph nodes involved. My surgery was 2/02 and at that time follow-up chemo was not recommended, so I didn't have it. I would jump at the chance to change that because research has shown that adjuvant chemo is very beneficial in preventing recurrence. The pain after surgery is VERY significant, but continues to abate each and every day. One thing that really helped me was to start a walking exercise program as soon as possible. My first baby steps were to the end of the driveway, but I went further every day. My heart goes out to your mom and all your family. Feel free to ask any questions.

    My best,

    Tiny

    Lung Cancer in Pittsburgh, PA

    in GENERAL

    Posted

    John-

    I would recommend 2nd and/or 3rd opinions ASAP, along with as much info as you can dig up on your own. The best time to make decisions is BEFORE treatment begins; otherwise participation in a different clinical trial that you might decide is more appropriate may be negated. Good luck and keep in touch; we really care.

    Attn: Western WA members

    in GENERAL

    Posted

    Linda-

    Fred Hutchinson specializes in bone cancers, leukemias, etc., it does not treat lung cancer in and of itself. However, it is part of a multi-discipline consortium called the Seattle Cancer Care Alliance that includes U of W, Children's, and Fred's, and lung cancer is treated there, mainly through U of W specialists, I believe. Below is the web address for SCCA:

    http://www.seattlecca.org/

    I haven't utilized any help on the west side, but will go there for 2nd opinion if the cancer returns. I, too, have heard good things about Dr. West.

    Best of luck.

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