michellep
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Posts posted by michellep
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Funny you would mention the diarhea .....Since it comes suddenly right after eating I told him I was going to serve him all his food while sitting on the toilet! We are scheduled for a scan in about 6 weeks. I hope to see improvement......dear god please!
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"Patti B"]Michelle-
Unfortunately, Tarceva did not work for me so I had real side effects. I would, however, not take a chance and give the doc a call first thing in the morning. Better to be safe than sorry!!!
Hugs - Patti B.
What side effects did you have Patti?
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Okay, we're on day #19 now and yes the rash is here. I've kept lotions on it in addition to antibiotic creams and managing. My concern now is that his symptoms are just like the ones he had during the beginning of his diagnosis. Extreme SOB, fatigue and semi-high heart rate. Even with the gemzar/carbo he was breathing better than this. So, this morning he was trying to get to the bathroom and had to stop and rest because his O2 dropped to 80 and needed to sit down. I've turned his oxygen up from 3 to 5 and he still feels SOB. Has anyone else had these issues with Tarceva or do you think the disease is progressing? Hopefully I can catch the PA this week when we go in for lab.
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I'm so very sorry for your loss. It seems your husband had a difficult battle in his journey and I know how much you miss him...it's clear in your post dear one. I know what you mean about Sundays. Those have always been special days for us too, at least until this journey. Please take care of yourself and come back here and post often. There are many here who care and truly want to help.
((((hugs)))))
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Randy......I'm trying to lose some weight and then I read your post about all that BBQ food! ughhhhhhhhhh Maybe I can find some carrot sticks in the frig?
Today is nice here too! It seems a tad bit cooler than our usual 100+ days so I think as soon as hubby is settled with his football games I'll go do some gardening. hummmmm Maybe Pizza for dinner? See what you did to me Randy? LOL
Enjoy your day! -
Interesting post. My hubby just started Tarceva about 3 wks ago and he has shortness of breath, fatigue and a spasm type cough that he can't control along with a high heart rate. I was told to watch the heart rate closely and compare the blood pressure readings. If the blood pressure is on the low side while the heart rate is high it could be a PE.
I really was hoping that the Tarceva would be easier on him but so far it's difficult.....although at least we don't have to have weekly blood transfusions right? I just wish that he felt better. The two week break we took before starting the Tarceva was just wonderful. He was walking all around the house without assistance and barely needed any oxygen. He's really frustrated now
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"lilyjohn"]Good morning all. I awoke to overcast skies this morning also. Just a slight chance of showers but maybe a better chance tomorrow night. Everything is so dry. We really need the rain. Temp got up to 104 yesterday but I am hoping that was Summer's last hurah.
Lately the Canadian Geese have been flying over in larger flocks both morning and evening. They never all leave but you can tell they feel Fall in the air. I went to lunch with some neighbors yesterday and noticed a slight change in the color of the leaves. It won't be long until there is a riot of color.we get some beautiful fall colors here but not nearly as much as I saw in Washington with Johnny. after living so long where the only seasons seemed to be hot and wet I am really enjoying all of the seasons.
Enjoy your rain Dawn and Michelle I hope you are cooling off too. Where do you live?
Lily....I live in the high desert of California.....Apple Valley. We just moved her 5 years ago from Pasadena. Sure is different here!!!
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Dawn....I'm so jealous of your rain! I don't remember the last time we got any here
It's averaged 100+ for a few months now. I have a lot of gardening that needs to be done here, so I try to do it in the early morning hours. Not possible lately with all the care my hubby needs.Today I'm hoping to just be plain lazy. I walked past the laundry basket and just told myself...maybe tomorrow. I'd love to just stay in my pj's and watch TV all day!
Have a good one and enjoy your beautiful rain!
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I'm an accountant (or was till the diagnosis) and was getting ready to take a mandatory class I had that day. Hubby had already left for work ( he was an aerospace engineer for NASA till retirement). Anyway, the first thought I had was my husband's family because most of them still lived in NY. I tried calling for many hours but all the lines were busy. It was a very difficult and emotional time for many that day. I still have a hard time watching television shows about all the sadness. As it turns out all the family was safe but my heart still breaks for those who were lost and the loved ones left behind.
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OMGGG That is the BEST news! Congratulations...and please tell your Mom how happy I am for her! Now go celebrate and relax.....you certainly deserve it!
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MY MY MY Randy! Should I ask how you managed to stumble across this one? Did you see how that interviewer kept such a straight face? Tooooo Funnny.....although I was disappointed at the end. They only want to perform exams on young women. That leaves this 50 yr old out!
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Thank you for telling me about you and your husband Jean. It's odd in a way because just this morning when took my hubby his breakfast and started to walk out of the room....he asked me to stay. He said he felt lonely with me running around the house doing things and he was all by himself. I understand and am very glad that you told me your story....thanks dear!
(((HUGS))))
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Kelli.....I'm very sorry to hear about your dad. You've found a wonderful place to come and meet others who can give you advice or just let you vent your fears. You sound like a wonderful caring daughter. Please let us know how the tests come back and if you ever need someone to talk to....we're here!
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"Suzie Q"] Lack of sleep can cause psychosis, you know! I'm sure he does not want a psychotic wife taking care of him!
Karen
I can't wait to run in there and say this to him! LOL
Let's see how much sleep I get tonight! I'll keep ya posted 
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Ohhhhhh Barb...I'm so happy that you got some good news ! Stay positive my friend and keep up the fight......there is so much power in prayer isn't there? Bless you both dear one!
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"Eileen"]I guess what I am trying to express is "feelings about those personal feelings about cancer do not fit all" It is ok to post what you feel but not to tell everyone how they should feel?
Sorry if I have offended anyone but I feel the post should have been about "how I feel about cancer"
thanks for listening
That post was given to me by the City of Hope Cancer Center......they "believe" in a positive attitude. They do not believe that given the "diagnosis" is an automatic death sentence and therefore live in doom and gloom.
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Patti...thank you so much for remembering me and asking. That was really sweet......no surprising since you're such a sweet lady anyway!
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Dana.....I hope you'll post a pic of your Mom tattoo as your avatar
Kewl -
Susan.....you're a wonderful loving daughter! I bet your mom is so very proud of you. I hope the fatigue just passes her by this time!
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You know me....all crossed too! You're strong...it will be good!
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Dear Lord,
Every single evening
As I'm lying here in bed,
This tiny little Prayer
Keeps running through my head:
God bless all my family
Wherever they may be,
Keep them warm
And safe from harm
For they're so close to me.
And God, there is one more thing
I wish that you could do;
Hope you don't mind me asking,
Please bless my computer too.
Now I know that it's unusual
To Bless a motherboard,
But listen just a second
While I explain it to you, Lord.
You see, that little metal box
Holds more than odds and ends;
Inside those small compartments
Rest so many of my LCSC friends.
I know so much about them
By the kindness that they give,
And this little scrap of metal
Takes me in to where they live.
By faith is how I know them
Much the same as you.
We share in what life brings us
And from that our friendships grew.
Please take an extra minute
From your duties up above,
To bless those at LCSC
That's filled with so much love.
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Ohhhhhhhhhh Dana! She sounds like a wonderful woman!
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I got the megace for my husband too. When I gave it to him he said....how can this increase anyone's appetite....it makes me want to puke. So, I called the pharmacy and asked if they could add flavoring to it. The have raspberry, cherry, strawberry and green apple. Now he takes it happily!
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Last night I gave him a xanex and waited. When it appeared that he was beginning to sleep I went into the room next to his instead of the same and laid down. I knew that if he saw me trying to sleep it would trigger something in his mind and he would keep me awake. I don't know why, but he does. I have a baby monitor and we also use two-way radios so he can always reach me. I actually slept for 5 hours straight! Probably doesn't sound like much to many but it was indeed a lot for me.
I don't know if I've ever told anyone here but I also have a disabled son who lives with us. He isn't "totally disabled" though he can do many things himself, but yes sometimes he needs my assistance.
I feel like all I'm doing is complaining....I don't mean to honestly. I'm just so darn scared and emotional plus the lack of sleep I have had is adding to everything.
This morning when hubby woke up he said he couldn't stand up that everything hurt. I have no clue why that would be. But in trying to help him stand to use the plastic urinal thing I hurt myself I think....oh dear. Hopefully it will work itself out.
Thanks to all of you for your kind words and advice. I appreciate all of you more than you will ever know my dear friends.
Enjoy your day!
It's averaged 100+ for a few months now. I have a lot of gardening that needs to be done here, so I try to do it in the early morning hours. Not possible lately with all the care my hubby needs.
5 years tomorrow
in HOPE
Posted
wOOT..........I'm so happy for you! Now go celebrate the good news. Can't get enough good news around here.....hope it spreads!
((((Nonni)))))