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michellep

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Posts posted by michellep

    My meltdown last night

    in CAREGIVER RESOURCE CENTER

    Posted

    Well, I'll try to reply through my tears here:

    Dana: Yes, I called the doc today and requested xanex....for BOTH of us! :cry:

    Patti: If the only way I can change my man is if he's in diapers...then I think I'll get some for him. :D I'm imaging this! And yes, a middle of the night chat works for me...if I can see straight! :?

    Ned: Have your wife call me?

    Just feel sad

    in GRIEF

    Posted

    Yes, we do all have those sad days. I wish we didn't, but having some fun with friends or doing something you enjoy can help. Please have fun and your book club! :D

    My meltdown last night

    in CAREGIVER RESOURCE CENTER

    Posted

    It's been 8 months now and I think I've kept it "together" for the most part until last night. I try so hard to be patient with my husband knowing what he's dealing with, I really do. But it seems that the more time that passes the harder it is to please him with "anything". He's better since they stopped the prior chemo and doesn't have the nausea or fatigue anymore...that's good, right? He's on Tarceva now and the famous rash has started, but it doesn't seem to bother him. So, why am I getting so stressed out you ask? I haven't had more than 3-4 hours of sleep per day since this journey began. I'm TIRED...I need some sleep. I'm beginning to think that just the "idea" of me sleeping and not being on watch is what scares him. I don't know! I'm not the kind of person who can sleep during the day (he does) I never have been able to do that. So.....last night he was resting nicely and I started to get ready for bed. He sits up and says to me " I think it's going to be another one of those long nights because I won't be able to sleep". Suddenly I just started to cry and cry and cry. I was so tired! I asked him why couldn't he sleep and he just said because I'm worried about my heart rate (it's been a bit high....not dangerous at all). So, I explained to him that the constant worry is what's keeping it high and that if he would just relax he'd be fine and able to sleep. He actually wanted me to stay awake "again" just to watch. Now mind you, his hospital bed is flush with mine and I always wake up to check him but for some reason he just doesn't want me to sleep! I don't know what will happen if I just drop from sheer exhaustion. Who will take care of him? I can't seem to get him to understand that I also need rest. Maybe 5 hrs a day would be a treat? Sorry for going on and on...but as we all know sometimes just putting feelings on here helps a lot. Thanks.

    Had you smoked or quit?

    in GENERAL

    Posted

    "Connie B"]There is a study that does state the % of non smoker, ex-smoker, smokers but I don't know right now where it is. It did state there are MORE ex-smokers that get lung cancer. That's from an older study, because I have heard this over seveal years now.

    This is the reason I started this thread. I too have heard that the majority of LC patients were actually former smokers. My husband quit 2 years before diagnosis and it had nothing to do with any type of cough etc. He watched Dr. Oz on television and saw pictures of the lungs etc from smoking. It wasn't until 2 years after quitting that the cough began and the diagnosis was made.

    I'm certainly not saying that smoking is a good thing, far from it. I just wonder about why so many doctors assume smoking is the cause. This can't be true since we have many who have never smoked at all. Many things can contribute I believe.....I mean look at the exhaust fumes while driving etc.

    Connie, if you ever see that site you mentioned I like to know ok?

    Had you smoked or quit?

    in GENERAL

    Posted

    I would like to know how many LC survivors were diagnosed at the time they were still smoking or had they previously quit. I'd also like to hear from people who had never smoked. I'm very curious about this subject because whether it's true or not, I heard that the majority of LC survivors were actually diagnosed "after they had quit smoking". Please tell me your story?

    7 Keys to Surviving Cancer

    in GENERAL

    Posted

    "Eileen"]My view is a little different

    attitude cannot defeat cancer; and for many saying you have to have a positive attitude does nothing but hurt the people when their loved ones died of cancer. A positive attitude does not cure cancer.

    For many with stage 4 cancer, it does not matter how happy or positive they are, it will not cure them and implying otherwise is not really helpful.

    Everyone needs to do what they have to do to get by; one rule does not fit all . For some, it will be ignorance, for others acceptance--but please do not post like this were a gospel rule for everyone to follow

    regards

    You're certainly entitled to your opinion.....just as others are. :roll:

    Sunday's Air

    in JUST FOR FUN

    Posted

    Have a great time Judy! Now you have me thinking of a BBQ and potato salad :D But, I would end up eating it all myself. Hubby only eats "soft foods" these days although I don't understand why.....must be mental? hummmmm I wonder if they have baby back ribs on sale today.

    Have a wonderful holiday all! And think of me while you're eating all that good stuff. Randy....what are you cooking?

    Reece or any tarceva user

    in GENERAL

    Posted

    Thank you all....I guess I just start to panic sometimes with this journey. I also wonder about giving myself a stroke. To be honest, this is the most difficult time of our lives and sometimes it's such a roller coaster. You have weeks of panic from things happening and suddenly you have "good days" and you really want to believe that it will just go away during those good days. It doesn't really happen does it? :cry:

    Saturday's Air

    in JUST FOR FUN

    Posted

    I'm so jealous! Staying at your friends place with all the animals sounds just wonderful.....almost as much as a girl's pj party :D Sorry about the Almita and I understand about the day naps....I can't do it either. Just enjoy yourself, rest and come back soon.

    I'm sitting here thinking about shopping today myself. It's very rare for me to get an hour away from home, but our son is here. I'm hoping he can sit with hubby for a bit while I do something fun. I want one of those fancy coffee makers that makes one cup at a time.....some German name. Has different flavored coffee in these little containers. Sounds fun!

    I have laundry, dishes, and general cleaning that needs to be done, but heck, I deserve some fun right?

    :idea:

    Alimta-SOB and fast heart rate?

    in NSCLC GROUP

    Posted

    I haven't experienced Almita but I did read a brochure in the doc's office about it and yes it did say it causes SOB although I don't remember about the heart rate. My hubby has used gemzar/carbo, tarceva and zometa with both those reactions to all of them. Any fever or chills? Once I can break the fever his heart rate goes back to normal.

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