[TBone Update 7/26]

Thank you for letting us know how TBone is doing.

I am saying prayers for all of you.

Jane

[Tests are back!]

Nina,

Congratulations! Hopefully NED will stay a very looooooong time

Jane

[Hello]

Memere,

Welcome to this site. Everyone here is really supportive and you can get a lot of good information and feedback.

Jane

[Met with Dr. Nemunaitis, My hope has been restored!]

Cheryl,

I'm so happy for you!

Jane

[FALSE ALARM, FALSE ALARM, FALSE ALARM!!!]

Margaret, Dave, & Karen,

YEAH!!!!!!

[Effusions and Metastatic Disease]

Dear Cheryl,

When do you see your onc? The sooner, the better so you can have some answers. I totally agree that you will feel better when you have a plan of attack.

Meanwhile can you do anything to take your mind off it - even for just a little while? Things that work for me: trashy magazines, rented movies, or even dumb games on the internet - my favs are Zuma and Collapse at MSN.

I've also been doing some Reiki sessions. After a session, I have alot more emotional energy to deal with this stinking disease. I'm also a very strong believer in the visualization of wiping out the invading predators.

I'm saying prayers for you.

Jane

[Update on Rob's pain]

Dear Tess and Rob,

I am so very sorry you are having to go through this.

I am praying for you both.

Jane

[Bad MRI]

David,

I am soooo sorry.

I vote for the names "gone and goner" (sorry, don't remember who suggested them).

You are so much stronger than they are - you can beat them!

Jane

[Apricot Kernels]

Is anyone taking apricot kernels or laetril? If you do, how many kernels a day do you take?

I've started taking them for about a week but I'm nervous about them. I have felt more fatigued but that seems to come and go no matter what.

What's everybody opinion on them?

Thanks for your input-

Jane

[Potential Side Effects of some herbs]

Elaine,

Thanks for the information. I'm taking tons of supplements too. I just added several more but have been having some concerns about how they're all interacting together.

Jane

[Do you believe in Miracle's ????]

Thank you all for your stories. I came to the site tonight to ask how to deal with the fear and anxiety I was feeling (which always seem worse late at night). Your stories made me feel soooo much better and reminded me I'm not alone.

Thank you for sharing your miracles and the power of God's love-

Jane

[The importance of pathology]

Thanks Elaine - good info!

[Need Information on Chemos and Treatment]

Cheryl,

I've heard good things about the combo of Avastin and Tarceva (sp?) too. I'm currently in a trial taking Avastin along with and after 6 carbo/taxol cycles. I wish I would have known more when I was making my decision about what treatment/clinical trial to use because I think you're right, doctor's often promote the trials they are involved with. It may be because they're not aware of some of the other trials that are out there . . . or (hopefully not) it's because they do get money from the drug companies for each patient they enroll in the clinical trials they are involved with.

Hang in there. I think it's great that you're so proactive.

Ginny - Thanks for the website. I've bookmarked it for future use.

[CT vs Chest x-ray Need Opinion]

I agree with everyone else. I would request a CT of the chest and abdomen because this disease can be pretty sneaky and there can be mets in other places while the chest can look OK. You have every right to get the very best care possible.

I wonder . . . if he was the one with lung cancer, would he think a chest x-ray was sufficient?

[Does sugar feed cancer]

There's more and more evidence in the medical literature that people with diabetes (therefore more likely to have high blood sugar levels) are more likely to develop cancer. To me, this supports the idea that sugar feeds cancer. I'm trying to really limit my sugar/simple carbohydrate intake (easier said than done).

[low blood pressure/fluid]

I don't think you should ever hesitate to call the doctor/nurse/PA if you have a question or concern. I'm a diabetes nurse and I always tell my patients, "if you're wondering whether you should call the doctor or not, the answer is always YES." Alot of times it's easier to talk with a nurse or physician assistant rather than the doctor (but that could be the nurse in me talking ).

[Jerrye our daughter is with God]

I am so, so sorry-

[TBone Update 7/12/04]

I am praying for TBone and your whole family. I'm glad he's seeing the pain specialist tomorrow - I just know they can get the pain under control.

[Reaching Out]

Hi Everyone.

I have been visiting the site since 11/03, joined in 03/04, but this is my first post.

You all have been such a blessing to me. I have learned a lot and have felt comforted by the support here.

I'm not sure why it has taken me this long to post. Part of it was a lack of energy (physical and emotional) - fighting cancer is hard work! I would also sometimes have to take a break from reading the messages because I would be overwhelmed with some of the struggles and the passing of some of people here. This disease really sucks!

I am now ready to be an active member of this group.

A little about me- I am now 45. I am married with two sons (ages 20 and 15). I am a nurse specialist for people with diabetes. I'm still working very part-time in the diabetes clinic. I have also been working on my PhD in nursing. I've finished coursework and am getting ready to start on my dissertation.

Thanks to all of you. I hope to be a member of this group for a very long, long, long time.