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eric byrne

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Posts posted by eric byrne

  1. Robert Lowe,A very special Lung Cancer Survivor,

    I have just received a phone call from Robert's daughter-in-law,Sarah, who passed on to me news I really did'nt want to hear,my dear friend and inspiration, Robert passed away this morning just after 10am.Robert's recent surgery to remove cancerous tumours from his stomach and throat,was completely successful,he died cancer free,his passing was due entirely to an infection he picked up post surgery,with his weakened state, his body was unable to overcome this infection.Robert celebrated surviving both SCLC and NSCLC for twenty years,which represents such an inspiration to many thousands of Lung Cancer survivors not only here in the UK,but world wide.Robert dedicated his entire survivorship as a lung cancer advocate,he was tireless in giving encouragement and support to lung cancer survivors,he co-founded the Stobhill Lung Cancer Support Group,with a lung cancer nurse Penny Downer,which remains today a successful testimony of his advocacy for lung cancer causes.Robert also set up and maintained a vibrant Stobhill Lung Cancer Survivors website,he was proud to acknowledge the many thousands of "Hits" his site attracted.Robert was also a keen advocate for the Roy Castle Lung Cancer Foundation,whose aims matched Robert's in the raising of awareness of lung cancer issues.Robert recognised Lung Cancer being a Cinderella disease,despite it having a mortality rate greater than the combined total of deaths due to Breast,Prostate and Bowel Cancers,it receives only 4% of research funding and public donations.Robert also fought against the stigma that is attached to Lung Cancer by the general publics perception that lung cancer only effects long term smokers,as he would say,anyone with lungs can get lung cancer. Roberts work will continue to be an inspiration to many survivors,families,carers and friends,goodnight Robert,you did us all proud.

  2. Good Evening Everyone,

    OK I know its not quite Thursday here in Bonnie Scotland,its just gone 11.30pm,but by the time I finish this post it probably will be LOL.

    I take Alans point about the guys being a bit more proactive in posting,I do visit daily on most occassions,usually about midnight when I am tired,so tend to not post in.

    Our weather here is so changeable,we are back to Winter,snow and really cold,although we have had lots of bright sunny days too,however cold,something to do with the wind direction coming from Russia,last year in March I can remember sitting out back in my lounger reading,the weather was gloriously warm and sunny.

    Janet,best wishes for finding a suitable clinical trial in Boston,love that City,probably my favourite one I visited on my voyage around the USA a couple of years ago.Love your new bird,I used to have a budgie some some years ago,I spent hours training it to speak,I so wanted it to say "Betty is a Wally",my mother-in-law is the Betty in question,we got on so well,I knew she would love the joke,however my scheme did'nt come to fruition,the budgie could say "Bettys a pretty budgie boy" in my Scottish accent.

    I am still gymming and swimming and yoga-ing,I had my 6 monthly check up about four weeks ago,part of the routine I get weighed,I sat in the weighing machine chair,whilst the assistant fiddled around with the scales behind me and announced 101kgs,I asked what is that in English? 16st 2lbs,good grief,I thought, I am now 3 stones heavier than I was at my dx in 2008,this will not do.I have changed my eating habits,porridge every morning,yogurt for lunch,one main course in the evening,and so far 10lbs lost-hurray,theres nothing like success to spur you on,so hopefully this weight loss will continue,this also means cutting out my Peronies and cutting down on my Whyte and Maykays,well I cannot really give up completely on my favourite wee dram,and mans got to have some pleasures?.

    Still working my front of house at Airdrie and Motherwell,last night I was in the Theatre watching the "Circus of Horrors",typically routine circus acts,guy throwing knifes at a girl tied to a rotating disc,trapeze,balancing acts on a plank set up on several cylinders,the horror bits,were a girl being sawn in half with a buzz saw,plenty of phoney blood on show to spice things up a bit,strangely a bare breasted girl assistant appeared on stage,to lent a hand with the acts,all in all it was a pretty poor show,although the audience seem to be impressed by goings on,perhaps assisted by drinks they had in the bar?.

    Well as I thought,12.05am,its Thursday,I am tired its off to bed,I will read a few pages of my new book before off to sleep,its a biography of Ava Gardner,its a good read so far.Good night everyone.

  3. Good Evening Jody,

    My apologies for my late welcome to LCSC,goodness knows how I managed to miss your introductory post?.Sorry to hear of your dx,I really dislike Docs playing God giving out unsolicited expirey dates,wonder why they do that?,must give them a buzz,knowing they are on the other side of the dx?.Its certainly been my personal experience being told by my Doc and my lung nurse that I had only 2 years to live max,well that was almost 5 years ago.Diane and Janet are further examples of success of living with lung cancer,my buddy Robert Lowe is in his 20th year of surviving SCLC and NSCLC,having originally been given in 1993 only two months to live.

    Its a pleasure to meet you,I look forward in getting to know you as you continue to keep in touch with us here.Best Wishes.

  4. Good Afternoon Everyone,

    I have posted an update on my friend Robert Lowe today in facebook,I thought I would share it with here also,since some of you may not be on facebook.

    To all my facebook friends who are aware of my friend Robert Lowe ,lung cancer survivor of 20 years,who was recently undergoing some serious surgery to remove cancerous tumours from his stomach and throat.This surgery was a total success,his medical team announced that all the tumours had been removed and that Robert was now cancer free.Post op,Robert was poorly,his doctors were fearing the worst,his family were called to his bedside,then against all expectations,Robert makes a remarkable recovery,so much so his doctors have named him Lasarus.Have been in touch with Roberts son last week for an update,unfortunately Robert has relasped again and is back in the Intensive Care Unit on a ventilator.I have just been on the phone to his daughter Hazel today,for an update,Hazel had some sad news to share with me,Robert who is in an induced coma at the moment,has been told that Robert despite being on dyalisis,his liver and kidneys are beginning to fail,it seems he is unlikely to regain consciousness.Hazel had returned home from Pennsylvania USA,last year when Robert was dxd with these new tumours,she left her two young children behind with her husband,sadly having been back to Scotland only a couple of days ,when she received news that her husband had just died from a blood clot in his leg,he was just 46 years old.

    Like · · Share · Promote · 7 minutes ago ·

    Bill Culbard This is really sad Eric. We just keep praying for Robert.

  5. Congratulations Jerry on your seven years survivorship,I just love good news stories.I am really impressed with your running abilities,dont think I would manage to run to the front of my garden.Do drop by more often,LOL.

  6. Good Morning Bruce from a beautiful sunny Scotland,spring is just around the corner,snowdrops and crocuses are full out,days are lengthening,is'nt life just great?.Congratulations on another NED,long may these continue for all of us,thanks for sharing this good news.Not heard from you for a while?,hows the farm going?and the animals?

  7. Hi Janet,

    Crivvens Jings,I am so sorry to hear of a disapointing result from your scans.I concur with Janes post about meeting the Doctor from LUNGevity,always good to consider an alternative viewpoint about further treatments.This meeting may help you to make decisions about where best to go from here,I do wish you well and hope that whatever you decide leads to a successful path to recovery.

  8. Hi Bob,

    I just want to welcome you to LCSC,its a great place to be,lots of caring, sharing buddies to communicate with with.This October I will celebrate my fifth year of surviviorship,despite my appointed lung nurse and Doctor giving me only two years maximum.I am really sorry to hear of your dx,we do have many stage four survivors here,doing really well,so dont throw in the towel.I just love getting to know new arrivals,tell me about yourself,where do you live?,are you married?,do you have a family?,gosh so many things I would like to know.I live in Airdrie,Scotland,about 15 miles east of Glasgow,I am also retired,I used to be a College Lecturer,married to Sally,I have a daughter Jennifer,she also taught at the college I retired from,(dont mention the word nepotism)she is currently doing a post-grad course in Secondary Education,hoping to teach English and Drama in the Secondary School sector.

    I like contributing to the Just for Fun Forum here,its all about a group of friends sharing their experiences of everyday life,they have become my extended family.I am also a keen amateur photographer,so if you visit the forum Family Album,you will find lots of pics of mine showing off my beautiful Scotland and also my travels around the USA.

    Looking forward to sharing some posts with you.Oh by the way,Scotland is 5 hours forward of EST in the USA,so its a couple of minutes to midnight here,time for my bed,so goodnight,bye for now.

  9. Good Evening Everyone,

    Beautiful day in Scotland today,sunshine and blue skies the entire day,frost of course tonight with no cloud base above,snowdrops and crocuses are fully out,Spring is just around the corner.

    I really enjoy reading the daily air,be a shame if it were to become defunct,I really must try to support it by posting in more days.

    I had a real family weekend,Saturday at my sister Irene's in Cumbernauld,with grandchild Max (7) and the recent newcomer Zane,he is a brilliant baby,always gives me lots of smiles when I hold him.Max is right into Astronomy at the moment,on meeting me the first thing he asks me,Uncle Eric,what is Nebulae?,so its a discussion on Gas clouds in space,he absolutely loves hearing about black holes,supernovas,pulsars and quasars,next he is out with the laptop and we are exploring space,all the Planets,pics from the Hubble telescope,he particularly likes seeing Jupiter and Saturn with its rings,by co-incidence these were the very things I was really interested in as a young boy.

    Sunday of to Glasgow after ABC,to visit Dot with her two grandkids,Sunday was just like today,sunshine all day,the kids were out in the back garden playing ball with Dots son Derek,we had a bit of excitement,Derek has to retrieve the ball after being hit into some bushes at the bottom of the garden,he discovers a ladies handbag he brings it indoors and searches through its contents,purse containing credit cards,house keys etc,off he goes to the Police station along with the co-finder-Emma (11) this is all very exciting for her and wants to go with Derek,they are actually gone for over 3 hours,seems the handbag was forcibly taken in a street robbery on Friday Evening last,this is being investigated by the CID,so it would seem it is quite serious,perhaps the owner has been assaulted too?.Both Emma and Derek had their DNA sampled and fingerprints to eliminate them for handling the handbag,the police also visited Dots garden to look for further clues.Gemma was as high as a kite with the excitement of it all,bettcha it will take her some time to get sleep at night.

    Got to go everyone,Uni Challenge just started on TV,bye.

  10. Good Evening Everyone,

    Special hello to Lillian,good to see you back,you are so right about JudyKW not forgetting so many others who used to contribute regularly to Just For Fun,happy times,now you feel you are having a monologue,so dear reader,if you are not a regular postee to here,why not? jump in the waters lovely,it can bring a bit of happiness to someone who may be feeling a wee bit down at the moment.I know this from experience,on several occassions in the past just reading everyones posts cheered me up no end.Sermon over.

    Was working last night,at the Motherwell Theatre,front of house,I had no idea what I was covering,turned out it was the musical Oliver,really good production,I am back tomorrow at 1.30pm for the matinee.Talking about music,Glasgow is having a new venue built,its a super duper theatre/arena,bit like the Colliseum in Rome,completely circular in plan it is being called The Hydro ,anyway my young sister sent me a link to be put on the theatres mailing list,one advantage by doing so,you get your choice of seats two days before the general public,well I do like a good seat,the main attraction on the link was Andre Rieu,he is coming to Glasgow in December,well I got onto the link to book my seats,guess what,half the blocks of seats were already gone??,corporate hospitality obviously got 2 days advance warning prior to my two days advantage grrr.Anyway I did book a couple of good seats in what I could make of the floor plan provided,a bargain for a new theatre £184 ($270 approx),well, what the heck its Christmas time.

    I have posted here before about my remarkable buddy Robert Lowe,the UKs longest duel lung cancer survivor,he celebrates his 20th year of survival this year,well we met up at the lung cancer survivors support group meeting on Wednesday,he had some bad news for us,I knew previously his doctors had discovered he had cancerous tumours in his stomach and his throat,Robert was convinced it was still curable if he got surgery,however he told the group that his lung function test feedback was his lungs were not up to surviving such an arduous operation.I was so disapointed for him,I mentioned cyberknife,his doctors brushed that option aside,since Robert had already suggested it,Scotland dos'nt have such a machine,England apparently has a few?,Robert sent me the following day a story about these machines being underused so many patients being denied access due to government cut backs,seems each time its used costs about £10,000,which is strange since patients can have access to drugs like Iressa and Tarceva which are even more expensive? who can understand politics?.Good news,Robert had his lung function test redone,and his performance was 30% better than the previous.He had asked his doctors for a second test,since he offered to go on a intensive exercise programme for a few weeks,and it worked,what a survivor he is,so he is having a operation on both his stomach and throat on Monday,I did wish Robert best wishes for a successful op and speedy recovery.

    Got to,time to sit back and watch some TV before bed,bye for now.

  11. Hi Matilde,

    Welcome to LCSC,sorry to hear about your mothers dx and of her feeling depressed.Lung Cancer conjures up such a frightening picture when a diagnosis is first announced,this takes me back over 4 years ago,my reaction was much the same as your mothers,it was the feeling of being robbed of a future,there would for the rest of my life be a dark cloud hanging over me,threatening my final demise.My sleep patterns were so disrupted I could'nt get a good nights sleep.I soldiered on,but eventually good sense prevailed, I visited my GP,he prescribed sleeping pills and an anti-depressent,neither were addictive and after only a short period of time my crisis passed,my jangled nerves began to settle.I began to believe,maybe just maybe, I can survive this disease.Time is a wonderful healer,the first step in my road to recovery was discovering LUNGevity and LCSC,this was quite by accident,I was online looking for positive stories about people dxd with LC that had become long term survivors.I began to post in regularly to this site,each morning I used to wake up,my thoughts used to be,I have lung cancer and its going to kill me and in the not so distant future,now this thought was overtaken by another,I wonder if there has been any replies in LCSC to my post yesterday in the "Just for Fun" forum.

    My next step forward was one day I picked up a popular Scottish newspaper called the Evening Times,in it was a feature about a guy who was starting up a lung cancer support group with a lung nurse,he was called Robert Lowe and lung nurse Penny Downer,I had to laugh at the surnames not perhaps the happiest of names for a lung cancer group,Lowe and Downer, but what caught my eye was Roberts history,dxd in 1993 with SCLC given two months to live,has his treatments and to the astonishment of his Doctors he makes a full recovery,then in 2007 he is now dxd with NSCLC,has treatments,makes a full recovery.I am not long home today from the lung cancer support group meeting,Robert was there,we enjoyed a few laughs together.I have so much to share with you about my cancer journey,I like to say,lung cancer may have rained on my parade,but it sure came with a great big silver lining,I am enjoying life to the full as I did prior to my dx.I look forward to getting to know you,sorry about the time taken for my reply to you,I really must do better LOL,bye for now.

  12. Good Evening Everyone,

    Its almost time for me to attach this post into Wednesdays Air,woke up this morning early to discover 4 inches of snow outside,had to spend some time to clear the drive and car,no gym today,9.30am visit to Monklands Hospital,its my six monthly check up time,we dont do CT scan follow ups here,Docs are satisfied with a chest x-ray,good news is I was given the all clear,thats now 4 1/2 years post dx,six months to my last check up,then hopefully LC is History,nice dream is'nt it?well my buddy Robert celebrates his 20th year of surviving SCLC and NSCLC.I will see Robert tomorrow at the Stobhill Hospital Lung Cancer Support Group meeting,the Marie Curie organisation have recently opened their new building within Stobhill and we have been provided with accommodation within it,its all very plush,a good improvement to our previous room provided in the old building of Stopbhill.

    Not long home from the indoor bowling,this is the second Tuesday in a row we have beat the other teams,wonder if we can still win the league?(no chance).We had live coverage of the super bowl on BBC TV the other night,I did start to watch the game, though I have to admit I have'nt the foggiest idea of what was going on,the coverage started at midnight,I did try to stay up to watch the entire game but my eyes had other ideas,I nodded off,woke a bit later, then off to bed.I was a bit disappointed at the 49 ers losing I had decided thats the team for me to support since I was born in 1949.Och well theres always next year.

    I dont know if your media covered this story about a skeleton that was dug up from under a council car park,this happened some weeks ago,I remember some bright spark of a archaeologist saying it had striking similarities to the physical description of the deformities of King Richard 111 the last of the Plantagenet Monarchs,he died in 1485 in the Battle of the Roses.Well I scoffed at the idea of anyone being able to confirm this possibilty,I scoff no more,a male and a female decendant was traced back to Richard,samples of their DNA were taken along with Richards taken from his skeleton and all three samples of the DNAs were shown on TV,amazingly all 3 matched,what a conclusion,the skull was reconstructed to include muscle,tissue and skin to reveal his actual likeness,real handsome guy he was too,would you believe theres now an argument brewing over where he should be formally buried,some want Westminster Abbey in London,since Richard was a Yorkshireman,their council want him interred in Yorkminster,wonder who will win?.

    Time for bed,goodnight everyone hope you are having a good day,bye.

  13. Good Evening Everyone,

    Greetings from a blustery, wet Scotland,it has got a bit milder this week, 8-10 deg C,think thats around 45-50s F,I have never got used to the centigrade scale since the UK went over to the metric system in the 1970s.The worst of the weather,heavy snowfalls in England,Wales and about everywhere in Scotland but my little enclave on the West Coast,now that its milder,we are getting reports of flooding all over the UK.

    I am still gymming,swimming and yoga-ing, I was at my niece Lynsey's 21st birthday party last Saturday,it was tinged a bit with sadness since her Mum,my youngest sister Linda had passed away last Nov.Linda had made all the arrangements for the party,booking Cumbernaulds new town hall,organising the buffet and the DJ.All the usual suspects were there,so a great time was had by one and all.

    Missed my indoor bowling last night,I was called to a training session at Motherwell Theatre,it was a feedback session on the Panto season,seems the front of house staff had received lots of email compliments from the public about how well we had added to an enjoyable evening out.We had been unknowingly been selected by Disablement Scotland to survey how well we looked after disabled patrons,our manager was pleased to report,that the patrons experience was first class from the moment they arrived at the Theatre until they left.We had some fun acting out some scenarios aimed at dealing with problems that may arise with patrons in the Theatre,not everyone participated,everyones name was put into a hat,then a victim would be randomly drawn from it,yes,I was a victim,my scenario,this meeting was held in the theatre,I had to demonstrate,escorting a patron (manager) to her seat,so far so good,upon sitting down,she rises immeadiately to scream, her seat is soaking wet,what am I going to do about it,boy,did she stay in character,think I will nominate her for the academy awards.It was a good evening with lots of fun too.

    I went into the supermarket for some groceries today,I went to the Deli,to buy a roast chicken from the hot counter,the assistant asked,would you like one from the hot plate of the table behind you?,whats the difference? I enquire,well all the chickens are exactly the same,although they are £5.49 from the hot plate,but £4.49 from the table.guess which one I took?.We have a purchase tax called VAT in the UK,its set at 20% on all purchases,there are exemptions eg,food and childrens clothes,however this Government decided to put VAT on prepared hot cooked food,this is the supermarkets way of avoiding customers having to pay the tax.

    Dinner time,got to go,enjoy the rest of today everyone,bye for now.

  14. Good Morning Everyone,

    Just after 1am here in Scotland,not tired yet,despite all my exercising this morning.Temps here down to minus 5C (approx 7F).Heavy snow predicted for Friday,fingers crossed its dos'nt get too deep by the time it reaches Airdrie.

    Busy week,yes again,yesterday at the SIGN group meeting in Edinburgh,they had sent me the completed report (1st draft) the management of patients with lung cancer,the purpose of the meeting was to review each submitted section,which was done in turn,my section Information to Patients was largely as was submitted by myself although they had left out a section Changes in Lifestyle,this was about smoking cessation,exercise and diet,after some discussion,everyone agreed this section should be reinstated, they also agreed with me to include a piece on clinical trials

    Yesterday I also received an email from the guy(Jack) who filmed me at home some months ago for a project he was doing on people who had gone through a life changing experience.A series of DVDs will be produced to be used in secondary Schools throughout the UK to enable kids to see these films and comment on their contents as a class lesson.

    Jack asked me to watch my film and return my comments

    on it to him.I thought with his direction and editing skills it

    made me look quite articulate and coherent,it was also a frank and honest account of the serious consequences that could result in taking up a career in smoking cigarettes,it would be just great if by seeing my film it stops even one child from taking up the habit.I will try to post the film here later, if there are no copyright issues attached to it.

    One of my friends in the ABC died from breast cancer last Friday,she had lived with the disease for over three years,unfortuately it was'nt contained and she deteriorated until eventually Bob her husband was bringing her to church in a wheel chair,Anns funeral service is tomorrow.Friday I will miss my yoga class,I have been invited into Anniesland College for a gourmet meal,cooked and served by the catering students,always scrumptous,and at a cost of £7.50 a bargain,there goes the diet again.Diet gone again on Saturday morning,its mens breakfast time,I do the serving cleaning up and drying the dishes,but I also get,the full fry up,bacon,eggs,sausage,tattie scones etc,1 million calories/plate.

    Janet before I go off to bed,best wishes with the scan tomorrow, er today?.Bye everyone.

  15. Hi Sammi,

    Welcome to LCSC,I am a lung cancer survivor myself,I was dxd in 2008,still here and thriving despite my appointed lung nurse and GP giving me a maximum of two years to live.I can well understand the anxiety you are feeling at this moment in time,gosh it so takes me back to 2008,this dx does take a bit of time to absorb and adjust to.

    I promise you,there is light at the end of the tunnel,lung cancer can be survived,my friend Robert Lowe was dxd with SCLC in 1993,given two months to live by his medical team,he asks for the best treatments available to extend his life,he has a chemo regime of such strength he is hospitalised during its administation,on more than one occassion his family were called to his bedside,since his Docs did'nt think he would see the next day,well to their amazement Robert makes a full recovery.Then in 2007 Robert is dxd with NSCLC,has his treatments,makes a full recovery,Robert celebrates this year 20 years of survivorship.Needless to say i want to follow in Roberts footsteps.I have since discovered many new friends who are long term survivors of lung cancer.

    There are many lung cancer survivors here on this site,I am sure will be along soon,each with their own lung cancer experiences to share with you,I have so much to share with you,that I am sure will encourage you,in the meantime,please pass onto your Mother my very best wishes to her for a successful outcome to her tests and the recommended treatment plan devised by her medical team.Bye for now.

  16. Good Morning Everyone,

    Well its almost 1.30am here in Scotland,thought I would start the Tuesday Air.Festive season over,Christmas Tree and Decorations boxed and put away in the garage until next year.All my family and friends gloomily resetting those alarm clocks for getting up for the return to work,Tee Hee,not so for yours truely,although I dont lie in that late,got to be up and out for my gymming,swimming and yoga-ing by 9.30am.

    Tuesday ,yoga-ing , swimming,steam room and jaccuzi then indoor bowling at 7pm tonight,gosh this retirement lark sure is hard work.Last Panto Friday last,back to being unemployed,there is'nt much on in theatreland January and February in Airdrie or Motherwell,maybe I should look for another wee part time job in the meantime,since I am supporting my daughter with her living expenses whilst doing her post grad in Secondary School Teaching-English and Drama(she is too busy studying to find a part time job)ho hum ,the joys of being a parent.

    My diary for January is pretty thin,I have a SIGN committee meeting in Glasgow on the 15th,Lunch in the Training Restaurant in Anniesland College on the 18th and an invitation to another extended family gathering on the 26th to celebrate my great nieces 21st Birthday,that should be fun,I so enjoy these get togethers.

    I am so looking forward to the spring,winter,with its short daylight hours just dont go down well with me,strangely though for the last week or so our temperatures are in the 50Fs plus,apparently this is due to winds coming up to us from Africa,wind direction to change shortly,but still to be mild since its to come from the South Atlantic,just praying it stays away from the North and East (Artic and Russia).Well the inks run a bit dry in my pen,bed calls,I will read for a wee while,started a new book,its really interesting,its about the discovery of a batch of letters found in Canada somewhere,whose contents have been edited into a book,its about a young English courting couple during the First World War,Vera (19) at the start of the war is a student at Cambridge,boyfriend Roland (23) joins up in the Army and is sent to the trenches in Belgium/France borders.Well Vera as the war progresses takes up a position as nurse to wounded soldiers sent home for care,both Vera and Roland continue to exchange letters of their daily lifes,really makes for interesting reading on a period of History I do not know much about.Goodnight everyone.

  17. Laurie,

    I am so sad to read of your mothers passing,please accept my deepest sympathy.I did follow all of your posts,I so wished things could have turned out otherwise for your mother.She couldn'nt have had a better daughter to share her cancer journey with,that despite this sad outcome, you both shared some special times together which will remain as memories that will live on in your heart forever.

    How unfair can life be? that at the same time your father is having such difficult times with his own health.My thoughts and prayers are for you and your family that your father can have his health restored to him.

  18. Hi Michelle,

    I am sorry for the loss of your husband,Christmas is always a time when we reflect on the absense of family members,this year was more reflective for me too,in the loss of my youngest sister just over a month ago.I do wish you a wonderful New Year,may 2013 be a vintage year for you.

  19. Hi Janet,

    Thanks to the buddies here,posting to your story,and what a remarkable one it is,I noticed only later it was a post you had made last year,and yet I must have missed it then,since I had made no reply to it.May you continue with your survivorship for many many years to come,you are a super example to survivors everywhere

  20. Hi Erica,

    Welcome to LCSC,let me first wish you and your family a Happy New Year,may it be a very special one for you all.I am really sorry to read of your Fathers dx,I am lung cancer survivor myself this October is my 5th year from my dx,I noticed you mentioned your Doctor being obliged to make a time forecast on your Dads survivability,I have to tell you both my appointed lung nurse and GP,without any solicitation from me,told me I had a maximum of two years to live,how kind of them,they only succeeded in making me more depressed,fortunately only temporarily so.I have been appointed to a committee as a layperson by the Scottish Intercollegiate Guidlines Network (SIGN) to redraft a document called the management of patients with lung cancer,this document is a quality document which sets the benchmark for the care and treatments for lung cancer patients in Scotland,so ensure everyone has equality in their care and treatments,regardless of which hospital or centre they are receiving their treatments.This committee is made up with surgeons,oncologists,medical physcologists,pharmicists researches and reporters,my role is certainly not a passive one,I have written my first draft on a section of the document to be published this year called information to patients,I have made the comment that doctors should not arbitrarily make comment to patients about expirey dates,unless with the request by the patient diectly,even so,not to be too explicit,bearing in mind,doctors experiences in making there predictions are often so way off the mark as to be rediculous,I really think we should leave these decisions up to God.

    I do accept that my lung cancer may have been a direct result of smoking small cigars from my mid twenties until I was sixty,I did come as a complete surprise and shock to me,never thought I was doing any harm to myself,well,it did say on the packet mild cigars LOL,but my cancer may well have been caused by other factors,enviromental,exposure to chemicals,possibly even genetics.In your Dads case,working as a mechanic would have put him at risk by exposure to chemicals like diesel,fine dust from brake pads which were mainly formed from asbestos.I really think we should just forget about pondering why this has struck us and just get on with the fightback.I think your Dad is most fortunate in having such a support team in his corner fighting with him,yourself,sister and Mum,you will do him proud as his treatments progress,please pass onto him my best wishes for a full and complete recovery,and blow that expiry date Doctor a great big rasperry,your Dads going to prove to him otherwise.

  21. Hi becksco1,

    Welcome to LCSC,let first say Happy New Year,may 2013 be a vintage one for you.Congratulations on winning your battle with cancer at age 11,what a remarkable achievement,I just love good news stories.Sorry to hear about your current dx,I do wish you every success with your on going treatments.This October I will have clocked up 5 years success in surviving NSCLC,I have a friend called Robert Lowe who was dxd with SCLC in 1993,given 2 months to live by his doctors,has chemo,to his doctors amazement,makes a full recovery,2007,he is then dxd with NSCLC,has surgery and chemo,again makes a full recovery,we are now great friends who met through our lung cancers,Robert 10 years my senior by co-incidence we were both born up brought up in the same district in Glasgow,Springburn,we went to the same schools,we even, despite our age differences, shared many of the same teachers.You will no doubt appreciate, I wish to share with Roberts success in achieving,20 years as a survivor,I also wish the same for you,it can be done you know,despite all the doom and gloom statisics,I have since my dx in 2008,met up with many long term survivors.I like to say lung cancer rained on my parade,but it sure came with a hugh silver lining,in taking me to places I would have never dreamed of visiting,meeting so many wonderful new people,gosh I have so many stories of adventures I have had that I can share with you,to save boring everyone here for the umpteenth time,you can drop in on my website LUNGevity set up for me called travellingeric/facebook.I also have a lot of my pics here in the forum Members Photo Album,lots of the scenery and places of interest of my homeland-Bonnie Scotland.I do so look forward in getting to know you,bye for now.

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