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cindi o'h

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Posts posted by cindi o'h

    Marijuana

    in GENERAL

    Posted

    Oh yeah, Shar,

    You can grow it in Australia if you blokes/mates/sheilas have enough water to keep it alive!

    (bummer for the drought)

    good luck with the tennis/soccer/footy/ mate! 8)

    Cindi o'h

    BRONCHOSCOPE DISSAPOINTMENT

    in MEMBER UPDATES

    Posted

    oh okay.

    Back to that submandibular lymph node on the PET...

    That one is probably resulting from an oral infection/inflammation yes?

    It seems to me if the cancer cells go up they would be loving your supraclavicular lymph nodes and not the submandibulars. Again. Just a guess. Do you have pain/bleeding gums/dental infection on the side that lit up the PET?

    I am thinking it might be a good thing the bronch wasn't able to find ca. What if ca isn't there? Can you stand it? What about waiting another month for a CT scan follow up. Would you be able or willing to do that?

    I am hoping that the interpretations are way off base. It's been known to happen before, you know.

    XXXX for all to go the best direction for you, Barb.

    Cindi o'h

    BRONCHOSCOPE DISSAPOINTMENT

    in MEMBER UPDATES

    Posted

    Hi Barb,

    I went back and re-read your CT and PET interpretations.

    There is no mention of size of questionable mets in either one. No mm or cm references.

    Secondly, there was a submandibular lymph that lit up on the PET. This would be an easy mark from which to take a specimen? And that is a question.

    Now.

    What is the NEXT step from here?

    Everything is going to be okay! I'll rustle up 3 or 4 of Eppie's squirrels with bats!

    Cindi o'h

    Officially 9 years of Survival!

    in HOPE

    Posted

    Donna G,

    This is fabulous! There is hope for the newly dx and those going through treatments. It can be done. Lung cancer CAN be survived. Thank you so much for posting your inspiration survival... NINE years! WOW!

    Congrats!

    Cindi o'h

    Newbie

    in INTRODUCE YOURSELF!

    Posted

    There will be a way for him to get properly diagnosed and treated.

    You have a really good start with the resource that Ernie provided.

    Sunday is a difficult day to try to do anything via the telephone.

    Make a list today of the agencies you want to contact and tomorrow get on the horn.

    He needs to have a thorough workup including all the tests to determine if there are metastases.

    We will try to help along the way.

    Sheesh! I cannot imagine your level of frustration getting a big stop sign before your Dad even gets started.

    Cindi o'h

    Marijuana

    in GENERAL

    Posted

    Aaron,

    Have you tried your oatmeal with a tablespoon or two of frozen apple juice and a dash of cinnamon? That suits me. I was an oatmeal eater during chemo/rad too... how 'bout that? Nice with a little bran sprinkled on for firm bm's.. 8)

    I had much trouble with sleep too. I was up to 3 ativans at a time and they began to phase me not. oh-oh. I had tizanadine added to my playlist too. Good sleep doesn't come easy for many who are going through it. Keep reaching in your pockets for something different. And then cycle through those things that you find work for you. Be sure to discuss your sleeplessness with your doc. I think that we need our sleep to rest and rebuild, don't you?

    And I think Aaron should be rewarded with at least all 3 on his list! What month of the year will it be when you are finished with your treatments? How about a vacation someplace sunshiney; a hotel with a great masseuse and a motorcylce rental shop named Dan's Bigass Motorcycles For Rent right next to your beach hotel?

    Cindi o'h

    update to ER post

    in MEMBER UPDATES

    Posted

    Joanie,

    Sounds like you are in the right place at the right time. Good treatment from a good facility. Everything is crossed for complete remission for you.

    I just love that your family is here along with you and in your fighting corner! GO TEAMJOANIE!

    Cindi o'h

    I think Mark's death has caught up with me..

    in GRIEF

    Posted

    Oh Donna,

    He was such a special light in your life. Mark was the best friend and brother and mentor. He held a very important role in your life. Of course you are empty without his presence. Naturally it will take a long time to adjust your life without his vigor and guidance.

    I went to see a grief counselor a couple of times. I think it helped me get over a bump or two. Cried my puffy eyes out, I remember that much. Faucets full blast.

    Hope you can find a way to see yourself through. Remember... if what you have been trying doesn't seem to be helping, then try something else. Okay?

    love,

    Cindi o'h

    Am I second quessing myself? Help

    in MEMBER UPDATES

    Posted

    Hi Mar,

    I have read different places and at different times that many people have cancer cells that are inactive. I don't know where I read that, but I believed it. I don't know if they were tumors or just cells. Cells, I think.

    Second guessing. I've done plenty of that myself. I just want to be sure to make the "right" decisions for the future. And we learn from our mistakes, right? I would do things a little differently myself if I had as good foresight as I do hindsight..

    How 'bout another martini with a couple of plump olives, hun? mmmmmmm! (and a glass of dark red for Joel!)

    Cindi o'h

    Update on Jeffrey

    in CAREGIVER RESOURCE CENTER

    Posted

    Good to see you post again, Trish.

    As with all others here, condolences on the passing of your father. And with all that was going on with Jeffrey your heart must have been pulled apart over the miles. You are a survivor too aren't you?

    Glad that Jeffrey is feeling better. He looks the picture of health again in your new avatar.

    Stop in more often with more updates!

    Cindi o'h

    I've already posted

    in INTRODUCE YOURSELF!

    Posted

    Hi Mitchell.

    Every one of us has gone through the fears that you describe. The farther out from diagnosis, the smaller they become. What helped me with the fears was a tiny pill called ativan. Another was the fact that so many people were praying for me. Even from great distances. Even people that I didn't know. That was nice. Something else that helped was a gutt feeling I had that I was going to survive this thing. I don't know where that feeling came from, but it saved me alot of worry.

    Too bad Mom is hurting and having a tough time with her breathing. This doesn't help with the fear factor. As you plan for and become involved in her adjuvant tx, you both will feel a whole lot better.

    I am going to be sending my now retired radiation oncologist a note of thanks for burning the dickens outta me 4 years ago! I was stagelllb; Too late stage for lucky surgery.

    Glad you posted!

    Cindi o'h

    First Time Posting

    in GENERAL

    Posted

    stage lllb is advanced lung cancer I would say. It is treatable and it is beatable, not by everyone but by some. I wish we knew WHY some people are able to survive it but not all. I wish all could survive it.

    Sometimes there are no answers.

    Cindi o'h

    Got past today

    in INTRODUCE YOURSELF!

    Posted

    Hi Robin,

    I just read your previous posts. Welcome! I hope that by now you have taken Blaze's advice and talked with your primary care doc.

    I too had plenty of lc in my family.

    I decided very early on that I was not my brothers. I didn't have to have the same outcome/results they did. I hope that if it is determined that yours is cancer, that you can find that honesty within yourself too. This is a survivable illness.

    Cindi o'h

    How good does it feel to be off chemo?

    in GENERAL

    Posted

    It feels really good when the chemo stops, Aaron. Mentally, it feels better than the body. It takes awhile for the body to catch up to the mind.

    I was told that it would take a year before my body felt like her old self.

    Before that year was up, there were times I found myself thinking, I feel sooo good. Just good! I couldn't describe the physical feeling of having an elated body as my shell. I still get that feeling sometimes. It is one that either I never paid attn to before chemo or never experienced. In any event, if I were to compare it to anything it might be what I imagine what heroin feels like.

    It does take awhile to get your enegy back. It was a slow go for me. I tried to cut that year time in half.."HA! they don't know me! I'm superwoman!" In reality, I think it may have taken twice as long for me to get my umpf back... I am not so sure I have ever really gotten it back, Aaron.

    But, Lance Armstrong found his mojo pretty quickly, didn't he?

    How are you doing, Aaron? Are you on the couch? Staring into space? What is it about chemo that makes so many of us do that?

    Keep up the good attitude.

    Cindi o'h

    Godfrey's Vat's biopsy "NEGATIVE"

    in HOPE

    Posted

    So glad for Godfrey and you, Tracey. Whatever else it is, I am hoping it's easily treatable. Please keep us appraised. I, for one, am very interested to know.

    You are not the first ones to come here with a diagnosis of lc only to find out that it is something other.

    Cindi o'h

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