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mamasbabygirl

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Posts posted by mamasbabygirl

  1. I second what Val said and although you live far away, I guess I keep thinking back to the old adage "If you want something done right, you gotta do it yourself." Maybe her siblings that live close are doing what they know how (taking her to Dr. visits and supporting her in the day to day things) and aren't even aware of the types of questions they should be asking or how to advocate for her.

    This would be a perfect opportunity for you to use your knowledge learned from here and online to advocate for her. You can at least offer to her that you have learned alot about the disease and that you would be willing to write out all of the questions that need to be asked at her appointments. Whoevr is taking her can jot down the answers and give you a full report. It would keep you in the loop, give you a little more control, and let your mom know you care what happens to her. If she accepts, that is...

  2. Yep yep. The memories are so vivid. I can remember what my mom was saying during the meals we had together, the look she had, all of the Dr. conversations, but sometimes I live my life like a chicken with her head cut off.

  3. Grace,

    I think this is so wonderful that 2 women can see because of your kindness. I pray that when my son needs a kidney, he will be as blessed as those two women! Way to go girl!

  4. :cry:

    I am so so sorry this is happening to your young family.

    I will pray that the radiation helps the pain enough that you can make that trip happen. Whatever work is involved in making it happen, it will be worth it-for him, you, everyone involved. HUGS AND PRAYERS

  5. I volunteered for Road to Recovery during my mom's illness and it was very difficult for me at the time. The last time I did it a woman that was in her late 70s was told she needed to call her family (who all lived out of town and were not involved at all in her life) bc she was going to die very soon. I was devaststed and had to stop doing it. I have been reconsidering starting it up again though. Maybe I'd be stronger this time. It is a very worthwhile program, one that is very needed in most communities. The people who call to arrange the visits are very flexible and nice. I say go for it!

  6. :shock: Wowee, this is a hard one for sure. :shock:

    I have to be honest and tell you that I do not think your mom should be putting this strain on you or your dad. If she is comfortable enough to be his primary caregiver, she should definitely be comfortable enough to make the call to your dad herself and offer up her help and/or talk about her concerns. If I were you, I would tell my mom to make the offer herself and that you do not want to be the one rocking the boat/in the middle.

    This is just my opinion Amy. How is your dad feeling lately? I know he was not doing so great last time you wrote...

  7. Sue,

    You have been here for us this past year, that is for sure, even with all that of your own suffering. I send my love to you today to get through it, it is hard I know, but we're here...thanks for all you have done for me/us. XOXOX

  8. Oh Grace. I am just so sorry. You are doing a good thing to write this stuff down, talk it out and let us help support you. It hurts and I am so sorry.

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