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Posts posted by mamasbabygirl
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I remember that trip you took Kim...
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I am so glad to be part of your cyber family!
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Well, Ralph I hate to hear this. I hope that there is a treatment option that kills that sucker ASAP!
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Yep yep. The memories are so vivid. I can remember what my mom was saying during the meals we had together, the look she had, all of the Dr. conversations, but sometimes I live my life like a chicken with her head cut off.
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I think it is the patient's decision to make and as long as you are honoring that, then you are doing the best you possibly can.
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Grace,
I think this is so wonderful that 2 women can see because of your kindness. I pray that when my son needs a kidney, he will be as blessed as those two women! Way to go girl!
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Tapioca
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scan results
in HOPE
Awesome awesome news Marie!
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She is definitely a tough cookie, one I'd be proud of. Try to take a minute for you, but I know how hard that is. Hugs and prayers, as always!
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I am so so sorry this is happening to your young family.
I will pray that the radiation helps the pain enough that you can make that trip happen. Whatever work is involved in making it happen, it will be worth it-for him, you, everyone involved. HUGS AND PRAYERS
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Your poor mama. I hate that she feels so bad.
I will keep you both in my prayers.
(((MISSY and SUE)))
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I volunteered for Road to Recovery during my mom's illness and it was very difficult for me at the time. The last time I did it a woman that was in her late 70s was told she needed to call her family (who all lived out of town and were not involved at all in her life) bc she was going to die very soon. I was devaststed and had to stop doing it. I have been reconsidering starting it up again though. Maybe I'd be stronger this time. It is a very worthwhile program, one that is very needed in most communities. The people who call to arrange the visits are very flexible and nice. I say go for it!
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Great news-yipppeeeee!
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I have not heard of this treatment being denied and I strongly encourage you to appeal it. Try the patient advocate foundation. They were pretty helpful with my mom's appeal.
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I am so glad that this is over and that is was only a tiny incision. That is great news! Will she have therapy or just resume normal activities?
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Bon Anniversaire Ry!
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Yep, we all understand each other and this place has been a life saver for me, there is truly so much hope here.
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Absolutely! She has my prayers for a quicky recovery and that the tumor is gone forever!
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Sorry I missed this one Mar! Joel is certainly in my prayers, as always-great results please oh please!?!?!
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Good, I am so glad you got it all worked out to come see him. Are your kids coming too?
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Wowee, this is a hard one for sure.
I have to be honest and tell you that I do not think your mom should be putting this strain on you or your dad. If she is comfortable enough to be his primary caregiver, she should definitely be comfortable enough to make the call to your dad herself and offer up her help and/or talk about her concerns. If I were you, I would tell my mom to make the offer herself and that you do not want to be the one rocking the boat/in the middle.
This is just my opinion Amy. How is your dad feeling lately? I know he was not doing so great last time you wrote...
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Sue,
You have been here for us this past year, that is for sure, even with all that of your own suffering. I send my love to you today to get through it, it is hard I know, but we're here...thanks for all you have done for me/us. XOXOX
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Oh Grace. I am just so sorry. You are doing a good thing to write this stuff down, talk it out and let us help support you. It hurts and I am so sorry.
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Many many hugs (((ANN)))
Not doing enough?
in CAREGIVER RESOURCE CENTER
Posted
I second what Val said and although you live far away, I guess I keep thinking back to the old adage "If you want something done right, you gotta do it yourself." Maybe her siblings that live close are doing what they know how (taking her to Dr. visits and supporting her in the day to day things) and aren't even aware of the types of questions they should be asking or how to advocate for her.
This would be a perfect opportunity for you to use your knowledge learned from here and online to advocate for her. You can at least offer to her that you have learned alot about the disease and that you would be willing to write out all of the questions that need to be asked at her appointments. Whoevr is taking her can jot down the answers and give you a full report. It would keep you in the loop, give you a little more control, and let your mom know you care what happens to her. If she accepts, that is...