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Justakid

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    DAVID C in hospital - Prayers needed

    in GENERAL

    Posted

    Had a nice dinner with David C and Karen last night......but he didn't feel good. Went to the ER and they admitted him.

    Karen called this morning and they are pumping him with fluids, can't remember is it's sodium or potassium that is low.

    Apparently they met a really good ER / Intern / General Doctor last night who sounds real upbeat and supportive. He seems to be a little bit more "well rounded" educaton wise then just a "regular" doctor from what Karen told me. Hopefully he can jump start Dave and get him back on track!

    Prayers for Dave needed!

    P.S. - his parents are here to take care of Faith (thank goodness)!

    Middle of the night / tired / alone / SOB / scared

    in GENERAL

    Posted

    Thanks Sue! The doc had told me to cut back to 20mg but if it was too hard to go back to 40mg. I settled for 30mg (I though cutting in half was too harsh), I do notice a difference in the SOB and pain around the ribs at the different levels of steriods (they must be amazing drugs!).

    The SOB is fine when I sit still or just go to the bathroom or something lightweight. I'm sure part of it is anxiety, when I think too much about everything I have an anxiety attack.

    I think I may wake up my Husband and see if he wants to watch a DVD with me, guess it better be a comedy!

    THANKS!

    Middle of the night / tired / alone / SOB / scared

    in GENERAL

    Posted

    Although after reading some of the posts, I have a lot to be thankful for.....it's the middle of the night. 3:47am, little pain, SOB, scared, alone....you know the usual.

    Cut my steriod doseage down and the SOB is worse, can't keep up at 40mg a day of prednisone, I have gained so much weight in two weeks part of my SOB could be the weight. Have more pain now in my rib cage, took pain meds cause I have them and maybe I'll be able to fall asleep.

    Guess I really still can't complain! Just so scared, don't wanna wake up my Husband and don't want to call me Mom, just wanted someone to talk too who would understand. I know ya'll are out there and in a few hours the board will come to life again, wish someone was here to talk to in person but I can deal with typing. Haven't really had a bad night (Upset) in a while so guess it's time for one!

    I think in my next life (should I be granted one) I want to be a doctor so I can understand what is going on, what can happen next, why, etc. I want to know all the answers next time (well more then I know now).

    I stopped biting my nails, why does this matter? Who knows other then I'm too old to bite them, they look pretty good in the dim light of the computer flying over the keyboard........of course my fingers look like sausages.

    I know that looks don't matter and I should be glad that I'm alive, but they do matter right now. I feel that somewhere in this mind/body that I am in there (the old me). The Cancer has made me disappear and I don't like what is left. I'm inside screaming to get out of this huge body and worried mind. Who is this person with short hair, round face and YES finger nails......oh yeah....the new me....the Beth with LC (might I also add NOW stage 4).

    Gonna try to wake up in the morning with my short hair, round face, lavendar finger nails.....put on my stretch pants and try to find the "old" me that is hanging out somewhere underneath it all. As for now.....I'm gonna go be upset and get it all out before the sun comes up and go back to bed. Thank God I'm not alone and that stretch pants still do fit!

    Thanks for listening, as usual when I go off on these little episodes of mine. Gonna take a Xanax, I think this might mean I'm having some anxiety! Hope everyone else is having a good night! :?

    House Stuff

    in GENERAL

    Posted

    Hey guys, life changes and it's not always for the best.

    We are selling our lake front property that we bought years ago. Schools suck and with me being sick, it doesn't make sense anymore. It is so hard.......we have an acre on a huge beautiful lake and we were going to build there and live happily ever after! It was our dream for over 10yrs. Now our dreams are health and many years together.

    All that matters now is that we are all together! It could be in a tent and I would be happy!

    We still need to get together! Hope Mom is doing well. Hang in there Karen you can do it!

    New to this world. Only 27. Stage IIIb Squemous Cell Carcino

    in INTRODUCE YOURSELF!

    Posted

    Listen to me, I know about the strange stuff.......

    When I was just rediagnosed (02/08/05) from Stage 3A to Stage 4 I took everything to my surgeon, my CT Scan shows "nodules" in every lobe now (I have had surgery, radiation and chemo - then after only 4mths and Tarceva treatment I had a bad scan). They are small and the radiology report says cancer. Well they don't know that without actually taking a sample, they couldn't.

    All nodules are too small and the largest is sitting on the diaphragm and could cause too much damage. My doc said that there is a slight possibility that it is a fungal infection (hystoplastmosis) BUT because I have lung cancer it will be treated like cancer. After my additional chemo we will see where we are and go from there. I agree with him because I don't want to mess around with this......let's try to kill it and maybe go from there. I'm young....bring on the poison!

    BUT YES I HAVE HEARD OF THIS BEFORE!!!!!!!!!!!!!!!!!!!!!!!!! I also recently found out that my Step-Father's Father was dx with LC years ago and was treated with chemo for 4mths.....turns out it was NOT cancer but this fungal infection! That was back in the 70's though.

    I pray it's all FUNGAS for you!

    PM me if you would like to talk further

    Sharing the Details....

    in GENERAL

    Posted

    Fay, I so hope that the Tarceva works for you!

    I also had a horrible nasty red bumpy rash behind my knees that went sown to my ankles. Was actually quite painful as well. Also appeared on my elbows. And mouth, groin...(sorry) all the "hot spots". Once the doseage was decreased to 100mg I did a little better. ANd the doctor did tell me it could take up to 6+ months to get adjusted to it.

    My rash did not itch but at times was so painful I would take a pain pill.

    It has been several weeks (can't remember the date) when I stopped taking it and my skin is still so dry it's nasty. Keep moist, it helps. Praying that it works for you!

    Graphic is best.........it helps everyone!

    New to this world. Only 27. Stage IIIb Squemous Cell Carcino

    in INTRODUCE YOURSELF!

    Posted

    Welcome and sorry you had to come here!

    I was 36 at dx and turned 37 (one mth later) between surgeries. I was Stage 3A and am now Stage 4. Still plan on beating this thing, too young for this garbage and have two kids to fight for.

    It's a crappy disease and I know you feel that it's young to affect you.

    Looks like there are more of this out there then I thought. WHen I was first dx it was very important to me to find people my own age to relate too, I thought it would be hard, unfortunately it wasn't.

    Good luck and keep us posted!

    Oxycontin and Dave

    in CAREGIVER RESOURCE CENTER

    Posted

    I took Percocet and Neurontin together and just OD'ed when I was having all my bone pain and the pain that radiated from my bone marrow to each hair folicle. That was the time that I looked at my kids like they had two heads and my husband and mother watched me for 12 hours straight making me walk and eat and drink and tell them my name.

    Ended up we could not find a happy medium, either pain or vegetable, I blame the doctor for that one (now we have the good doc!).

    The notebook is a good idea and the pill cases. I have the dailey pill cases incase I am unable to administer my own meds. Everyone has an updated list of what I am or can take and what it is for. I also provide the doc with an updated list everytime I see him with the current date, just in case! Allergies too and that morphine doesn't work for me. They seem to like that.

    I noticed that when I am extremely upset and taking the Xanax (as directed) I get confused. What day is it, what am I supposed to do today, what day is it again, etc. Put on the cabinet, today is .......... write down walk the dog 5 times and each time Dave does it he can mark it off. Kinda of like Weight Watchers and drinking 8 glasses of water, color in the circle when you do one. I have also found that this helps when I get a little confused.

    Also only put out how many pills he can have while you are gone, I would forget if I took one and want to take another (not good).

    Hang in there guys!!!

    Just began PCI

    in SCLC GROUP

    Posted

    Mark

    You can do this, come here often when you are feeling low and unable to cope. As far as having not quit smoking, there are lots that have not quit after dx. Honestly since my cancer has come back......if I could breath, I would have started back again! (Don't tell anyone!). I can't breathe though and I miss my friend that was able to calm me down!

    Hang in there!!!

    Question about food

    in SCLC GROUP

    Posted

    My doctors told me to eat anything that I wanted. I couldn't do the Ensure or Carnation or any of those drinks because they are nasty tasting. My esophagus problems where severe and I had to force myself to eat (couldn't even do anything that was cold). My husband and mother went to the ends of the earth to get me any kind of food I would agree to eat.

    Try to get the nutrician in but eat whatever will go down and stay down. That's what I did!

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