Justakid
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Posts posted by Justakid
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Have him go out tonight and pull a vampire on someone! Maybe he can boost platlets that way!
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As usual I'm late! Can't we just put him in the hospital, do the chemo and handle each problem as it comes up till he gets through it?
Is that totally stupid?
Call me if you need me!
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Oops, double posted!
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I was told that you can go down to half of one lung and survive but will have major breathing problems. Perhaps that is why they feel they can not do chemo. Seek a 2nd opinion?
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Melanie-
We are here for you! BIG HUGS!
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Pat-
The only thing that was wrong with me when I was initially dx was was I needed to diet.
I went through surgery, radiation, chemo and more chemo and was on the final leg believing that I was cured and within 4mths of treatment it's in both lungs.
I DON'T BELIEVE IT! I still stink it's something else. BUT the doctors say we have to provide it. The additional stains and testing I had done from my initial surgery did confirm (again) that it is lung cancer. We can't get any samples of the new stuff, it's in bad places. They would have to stop my breathing to get a piece of it and don't want to do it.
Have the pathology slides read by several people, have another bioipsy done if you want, I do understand your feeling though. PM me if you want to talk more!
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WOW, I'm the poster child for side affects when it comes to treatment. Lots of people don't have radiation problems but I did from week one.
Good luck!
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Pam-
I know that when I started to do the taxotere/taxol treatments with the carboplatin (after radiation) that the pain was so bad that I begged my husband to put me out of of my misery. Now that being said, once the chemo ended the pain slowly started to subside. I did not have a very good oncologist then and have since switched. The pain felt like it was down in the bone marrow and just radiated out, my hair even hurt to touch.
There is a way to get the pain under control, just got to figure out the right combo of drugs. But know that you are not alone when it comes to her pain. Nurotin (sp?) helped me (it's like a nerve pain drug) when it was taken with percocet, but it's very easy to over dose on it.
Good luck!
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I did the same thing. When I had surgery I had hair all the way down my back, I had it cut up to my ears in anticipation of it all falling out. Plus I didn't want my 8yr old to freak when it went from real long to bald (figured stages were better)
Once the hair started to come out in handfuls (all over!), we shaved my head to the Marine do.......but it still kept coming. We pulled out the razor. I did develop a rash all over my scalp. I talked to my (worthless Oncologist at the time - I've changed Docs since then) and she said don't shave your head again (thank for the help). Anyway, I used a cortisone cream and it cleared up. Luckily I didn't have to shave it again.
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I LOVE the prednisone beast!
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I decided who I look like yesterday when we were driving in the car, I looked over in the side mirror and .....................I'm Marlon Brando with thicker darker hair!!
hahahaAnyone see the remake of the Island of Doctor Marao (sp?), it's me and I don't mean that young tiny looking tiger girl who danced all around. I'm talking the fat guy in the Moomoo!
I love Prednisone!
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Frank-
Give us an update (or did I miss it?)
How you feeling, how is the stint in the windpipe? etc, etc
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TAnn-
HAPPY BIRTHDAY! Every birthday seems to be more special now!!!!!
Do something fun and relaxing!
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Your right, I don't think we get all the answers/information either!
We gotta stick together and pray for a cure in OUR lifetime!
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I like the new cancer staging............we can call it Stage 3BC (stage 3 Beth's cancer).
Kings Dominion was fun today and couldn;t have asked for better weather. I was tired BUT am still up at 1:14am Est time, so how tired could I be. Those damn middle of the night blahs.
Kinda getting exciting about Thanksgiving. I'm the anal type that makes lists of what to pack and logs of car rental expenses, etc (no me be anal?!), I'm ready to start my lists already, 8mths out. Boy am I a control freak!
Nigt everyone.....................oh yeah I decided I looked like Marlon Brando cause of the steriods!
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I have taken a more whimpy way out, I have an Advanced Directive that names both my Husband and Mother, I know that these decisions can not be made by my husband alone, he couldn't do it.
The only instructions I left was that I didn't want to know it was coming and I didn't want to feel it. The rest is up to them, if they want to try a ventailor to see if there was improvement, I better be inconscience.
I feel sorry for them having to make those decisions. I did speak with my mom abou the earlier post from Sharon (my Mom has a medical background) and explain the whole morphine thing to me. Sharon did not kill he father.....LC did!
Life is hard and I am finding that your own death is just as difficult should you choose to get involved.
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Welcome!
I was on Tarceva and at 150mg I looked like an alien. Used all the lotions, finally cut back to 100mg and took antibiotic and non-fingal meds everyday with the Tarceva. Tarceva also caused yeast in fections in my throat.
My doctor told me it could take months to get "use to it" and I agree about the rash, you can't even go out without people treating you like a monster.
Tarceva did not help me, I hope it helps your dad and you can get things under control, perhaps a lower dose and antibiotics will help (I took Clindamicin twice a day and Diflucan for the yeast)
Good lucK!
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OK, I'm trusting you guys! You keep saying for me to live my life, well even though I went from Stage 3 to Stage 4 in a matter of months, AFTER MAJOR TREATMENT.......I'm going to believe that I will make it.
In addition to planning my carribean trip (after this most current treatment and hopefully clean scans). I just planned a Disney Thanksgiving week vacation for me the husband and kids. I told the rest of my family if they wanted to go fine and gave them the dates. Mom and Dad of course already have attaching timeshare rooms with my family, so they will be there. I have decided that you only live once and I want my children to have happy lasting happy memories and one day they'll say......remember that year we spent at Disney for thanksgiving.....even though mom may have been sick....it was great........and something we may never do again or maybe we can take are kids in remember her there..............
I made my husband swear that even if I should die the day before, he will take the children and go......not worry about money, eat, drink, shop, enjoy and not look back. Well he will have to put me on ice first!
I have lived most of my life is a depressed state and this cancer shi_ hasn't helped much, it is too important to me to make a wonderful lasting memory with the family. Kyle and I played Ninentdo 64 yesterday (and I suck at most of them - I'm great at the old ones), he laughed so hard at me he said his sides hurt.
We bought seasons passes to Kings Dominion Theme Park here in VA and we are going tomorrow....the kids are pumped, I'm scared that it will be too mentally exhausting BUT we are taking my Mom's wheel chair and O2 just in case and oh yeah the Xanax......I'll take it one breath at a time and watch my family ride the rides and enjoy themselves. Of course, I'll have to get a funnelcake! And ride the merry-go-round if I don't get too dizzy, videotape everything, you know the normal Mom stuff.
I'm trusting in ya'll and making plans for my future, not just what I'm going to wear tomorrow. So all you believers out there who have gotten me through this so far......get me through my Thanksgiving extraviganza (sp?). No turkey this year for us! Maybe the RainForest Cafe Restuarant for thanksgiving (awesome place!)
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Can't sleep. Well won't say that I can't, I could! But the coughing and SOB and lack of bladder control are putting a crink in my ability.
It all seems to happen at night, even if I sleep sitting up. Borrowed my Mom's O2 and don;t see that that make a difference. WIll talk to the doc again about it.
Have a new snack food I'm addicted too....peanuts and sunflower seeds, there are shells all over the place (keep missing the trash can).
Lonely, wish there was an angel who would come down and tell me whats gonna happen and when. Trying to be very careful and take my cough pearls, cough syrup, Xanax and pain pills just at the right time. Made a chart and watch the clock, hope that if I take everything right at the appropriate times, things will get under control and I will fall asleep. Even got the heating pad on warm tp relax back musclse.
Thanks for listening, back to my 4hr hour schedule. Gonna go watch show old 70's TV shows.....Maude and Barney Miller....try to rememmber to happier times from my childhood while I hopefully drift off to sleep!
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SO glad she is doing better, yeah! Keep up the good work!
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I watch my mother fight everyday to quit smoking. I ask myself everyday why don't you start smoking again now that you are stage 4, your dieing, might as well get your friend back to help you get throught your fears.
I know how hard it is, I know how hard the stress is! I know that it's almost 1am and I'm sitting here wondering what to do, wishing for a cigarette and it;s been 10mths but i'm stressed.
Hang in there and try again!
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Welcome -A-
Hang in there, what may not work on some will work on others. I have had two surgeries, 33 rounds or chemo with radiation, two additional full strength chemos and then 4 mths later the cancer was back in both lungs.
I have to believe that I will win this time with the chemo. I have a 8 and 13yr old who need me and am willing to go down fighting this beast to win. Everyone is difference and responds different!
Hang in there!
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I ask what everything is and what it is for when I get it. Even chemo, this new doc given heperin (sp?) during chemo which is fine, but tell me everything! Of the three hospitals I have been in, in my area the Nurse ALWAYS wakes you up for meds, even in the midle of the night and if she soesn't specifaclly tell me what is is or it looks different, I ASK. I also have a major IV bubble phobia that most Nurses know about....I'll stop the IV (with the little divider thing) and make them take the air bubble out. All in all I do everything I'm told and am very little trouble, just tell me whats happening and no bubbles!
I also learned back in Decmeber that 2 ambien and 2 cough pearls make me see things and talk to myself. I know to tell the doctor only one cough peral unless it's bad or I'm just in the mood to see things floating through the air
.I also refuse to stay alone for a second in the hospital, mostly my mom stays with me so my husband can be with the children, BUT I WILL NOT BE ALONE, not for a second. It took 4 nurses one hour to get an IV on me this past December (my mom has a little medical back ground - she use to be the manager of a medical lab in a hospital) and she kept telling them the IV was messed up. Once they left and I went down for the CT Scan she told me to tell the technicial that my IV hurt really bad. The Technician checked it and my vien blew up, can you imagine if that had been dye?! Needless to say Mom told everyone off when I got back upstairs. Told them we weren't idiots and to listen to a patient. You rock Mom!
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What a ride! It's hard but wait for all the tests and "smears" to be done! When I was first dx I was talking to a lady about her brother-in-law, there was something growing on his lung and they thought it was lung cancer, they did exploratory surgery and when they got in there his lung had this stuff growing on it. They carefully peeled it (like an orange) and his lung inflated and he is fine today. They monitor him as if he has cancer with scans and such.
Doctors thought my husband had bone cancer right around the 09/11 attacks, durring exploratory surgery they found that he was growing "armour plating" around his spine (that's what they called it), they broke it all away and monitor him like a cancer patient.
There are somethings that may just have to be treated and have no "name". It's a mess! But strange things happen.
Hang in there!
wfshaw update
in INTRODUCE YOURSELF!
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Bill that is awesome! Surgery was a lot easier for me then the radiation and the chemo!
Suggestion- put your drainage box (the thing that your chest tube drains into) in a wheelchair and walk around the Nurses station as soon as you can. It beats carrying it and the box is below your heart where it's supposed to be! And you get your stregth back fast.