Justakid
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Posts posted by Justakid
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David-
Karen called me today and told me................although I am beating my own head against the wall.....I am still here for you guys. My problems are minimal in comparison.
Lets see what the scans show and go from there. I'm thinking about you guys, let me know what I can do!
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Reading a magazine in the Oncologist office today..........stop the hiccups by sucking on a lemon?! I was just a little blurp about hiccups and thought of you!
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Fay-
You are so right! Sometimes it's just not worth it! Hang in there!
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Oh my gosh! You have been through enough!
Good luck and keep us posted as to what they find out.
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Most of the hospitals in Richmond, VA are linked together and the tests can be pulled up by computer. If not, I would pick the scans up from the place where it was done and make an appt with the radiation doc for a consultation.
When my cancer returned in 02/05, the Oncologist and PCP said no more surgery. I picked up all scans from 12/04 (when I was clean) and new scans from 02/05 and took them to MY surgeon for him to tell me he couldnt cut it out anymore and what he would do if it were him. I trusted my surgeon with my life for two surgeries so to me it was his call.
Everyone seems to have their own insite/expertise on things....the more eyes and opinions the better!
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Hey Dee-
What about faxing it to the radiation doctor and having him look at it too. remember PET can give false positivies but if it were me.....I'm so scared of my own shadow I would be having everything done to make sure.
Good luck! Call if you need to and KEEP US POSTED!
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Melanie
Just hought about checking this section, may be too late..........but hope you are doing better. Your in my thought!
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Lori-
It sounds like my family!
Your Dad made his wishes known, if you are willing to pay for it alone. Screw your brother, thank your Mom for the offer and do what he wanted.
As I said earlier, it sounds like my family and I have told them they better do what I wanted and not act like fools should the time come. We are all adults, we need to honor the person who died the way THEY wanted it, not what makes us adults MORE comfortable.
Sorry if I'm being harsh, but I have a brother like yours and I know mine can just jump off a bridge when it come to getting his way when things have already been discussed.
Good luck and I support whatever you decide to do.
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Hi Dawn-
I still remember my Nurses face when she made that call for me to the surgeon once I was dx at my PCP office. Poor lady!
Keep searching till you get the answer you need!
Oh and welcome, sorry you have to be here!
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Pam and Ruby-
Just read your post and reread your bio at the bottom. In a matter of 4mths you have gone from stage 3A to mets in the bones. This sounds sick but I feel like I have found a friend. Mine was not as quick as yours, I was dx 04/04 and ended treatment 10/04 and it returned 02/05. I had 4mths off before the crap came back.
We have not done a PET scan yet, when the cancer came back it was in all my remaining lungs lobes but one (the right middle). We are trying Alimta (3 treatments) before we do additional scans. I can say with some certainty that it's in a few bones, only the scans will tell but your own research can help you determine what is happening to your body!
I can say that I have been having a lot of pain in my jaw and left rib cage. Like Ruby, I didn't mess around, let's get up do what needs to be done, etc. Now that I have had my share of severe pain over the past year, my resistance is down and I'm not as capable of dealing as I was.
I guess I'm just trying to say thank you for sharing your story, I'm so sorry for the bone mets, pain, suffering, for everything. BUT it's nice to know that someone else is out there that I feel closer too because I didn't get a real break. I don't think I am saying this the right way but hope you understand what I am trying to convey! I don't feel so alone and desperate today, because of you!
Thank you and hope that Ruby gets some relief!
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I'm with you kid! Ready to run away, but I can't get away from myself. Everything that you and Dave are feeling is running through me (except the optimism I know Dave has - ain't got that).
We gotta hang in there cause there is nothing left but to hang on! Kyle is sick again and here I am unable to truelly take care of him like I should. He knows how guilty I feel for it and just hugs me and tells me it's OK.
Hang in there Karen I'm not far away and understand!
Dave have chemo Monday? I go for sound three on Wednesday!
Went to buy "fat" clothes today, went up 4 sizes! Had to go in a wheelchair, could barely walk! Exhausting!
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Leave it to the federal govt to mess with you when your at your lowest anyway.
I had my social security disability call and I told them by the time they decided that they agreed with my doctors and sent me a check I would be dead. Poor girl didn't know what to say!
CALL AN ATTY!
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Towards the end of my initial treatment NOTHING would stop the nausea, I had to deal with it, my doctor gave up (I did change docs after that). Once I the cancer came back I told the doc I had a full feeling like the food was coming back up too and pushing on my throat, he gave me metolopramide 10mg 4x a day, says it's for belching?! Seems to help with fullness.
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WONDERFUL!!!!!!! Glad that stuff is working for someone!!!!!!
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Prayers coming your way!
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No not the hiccups! I was thinking that there was something they can give you for the hiccups though!
My reload #3 is this coming Wednesday. No nausea at all! Last treatment I did: ice cream, ice chips, slurpees and lots of small meals. I always kept a little food in my stomach....24/7....that seemed to help alot!
Praying everyday for you, this is gonna work for us! Keep us posted! Hang in there!
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Good luck Melanie, get fixed and come back.....we all need you! Tell your Husband to get his camera work done! It's important and we will look for updates if from no one else then Ry having spoken to you or hubby!
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WOW, three years, I'm so jealous!
I got 4mths clean! You'll be fine, because there are people like me who need you to keep plugging along clean so we can follow!!!!
Good luck and let us know!
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Too cute, keep the pictures coming!
Now the kids want to have baby kittys, I keep telling them that ours are fixed and we can't (yeah). They are too cute!
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Many prayers on the way!
We all need out special LC buddys to get through this, in addition to everyone here!
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The Alimta has not caused nay hair lose on me like the the last treatment, EXCEPT my eyelashes! My eyes are the most perfect part of my body (and it's saying alot to give myself a complement) and my damn eye lashes are falling out!
Go figure! l would almost rather be bald but with my long beautiful eyelashes. Oh well, I'm alive. We can find some tiny ones and use mascara when I get desperate! -
I was very careful to follow the one hour before or two hours after measl sticker on the bottle which was hard because I graze when I eat, it's the best way to keep the nausea under control and now I'm use to it. Good luck!
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Pat and Brian-
You can do it, try to get some rest and drink lots of fluids!
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Take a deep breath!
Always get a 2nd opinion and ask the doc to go over the report with you. It's hard looking it up on the internet and trying to figure it out yourself.
My last report I had the "nodules" the size of CM not MM, boy that made a difference!
I obtained copies of all my med records since cancer, it's very hard to read without crying. It's hard to read about the surgey without getting emotional. But now I understand everything that has been done to me.
Hang on! Come here for support. PM or email if you need me!
Go figure! l would almost rather be bald but with my long beautiful eyelashes. Oh well, I'm alive. We can find some tiny ones and use mascara when I get desperate!
My Alimta 3 update
in NSCLC GROUP
Posted
Why do doctors act like we (the patients) should know what to do?! My doctor just figured out that I was NOT using inhalers for wheezinng and made me feel like I should know that I needed them...........anyway, that made me a little mad!
Had Alimta #3 today, feeling rough....little nausea and cranky from the steriods. Gained more weight (surprise!).
Am having a pelvis and abdomonal CT Scan on 04/11 to see where we are with the Alimta. I asked if the chemo was working how many treatments there would be and he said since it's so well tolerated we would always do it, now he didn't say how long in between treatments, right now it's three weeks.
Other then that, not much to comment on. Here's to Alimta working and getting rid of all my junk!!!!!