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Justakid

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Posts posted by Justakid

    About David C

    in GENERAL

    Posted

    I don't want to upset Karen or Becky or Dave's family but felt the need to post.

    David C is not doing well, he is in the hospital. He needs all the prayers we can give him!

    Avastin being paid for by Insurance Company

    in GENERAL

    Posted

    My doctor called today as soon as I got home from port-a-cath surgery. My insurance company is going to pay for Avastin.....I can't believe it! He was shocked too!

    Port-a-cath went OK, the surgeon tried to put it on the left side but could not access the vein (go figure!) and put it in on the right.

    I woke up in the OR hysterically crying, the kind where you make funny noises and are gasping for air. I was screaming that yesterday was a bad day and that I had LC and didn't think the new treatment would work. Everyone was so nice and told me to let it out and cry all I wanted too. Funny how things happen. Of course there was one lady who kept telling me to live everyday to it's fullest and do anything I wanted.....that made me uncomfortable...I was like why do YOU think I'm going to die?! I don't pull punches with people! She said no she thought it would work. Apparently everyone read my chart completely and I had a copy of CT Scan sent over there so they had it.

    No breathing problems, talked to the Anasthesologist (sp?) about my worries and he was real nice and said he understood and would take care of me, not to worry.

    I hate going into an OR fully awake....it's scary! But I'm home now with more scars. I laughed at the doctor and told him that if I ever lost my head they could ID my body with all the scars! :)

    No gallbladder surgery, it's worse

    in GENERAL

    Posted

    Thanks everyone!

    Trying to believe that the 5th time is the charm. To answer a couple questions.........Avastin is not approved for lung cancer only colon cancer, so my doc feels the insurance company will not pay for it, he is also going to contact the drug company to see if they will cover it. Hopefully since they are still doing trials they will pay for it and include me in theor study from here.

    I am scheduled for chemo round #7 on the 22nd so the doc is hoping to get everything cleared up by then. He is worried about side effects and said they would be watching me closely. With my past history.......

    Can't believe I can't get the gallbladder out! Doc said I would have to wait 4 weeks if I did the gallbladder to have the Avastin because it can cause bleeding and that the cancer was more important now then the gallbladder (that's kinda scary!) I am getting the port-a-cath put in tomorrow though. We already have the OR reserved so I might as well get it in.

    No gallbladder surgery, it's worse

    in GENERAL

    Posted

    The doctor called, there are more nodules in the lungs and more lymph nodes in the center of the chest that are infected. Gonna try Avastin if we can get someone to pay for it. Can't have gallbladder surgery. It's worse and I can't believe it!

    I knew it was bad, trying to hang on, it's hard.

    Need good thoughts and prayers

    in GENERAL

    Posted

    Here I sit waiting for the doctor to call with my CT results. I tried to go on the board and only read the good stories but they are hard to find "at a glance", can't read any "not so good stories today".

    Read Lucie's and Frank's bio and am trying to draw strength from them, they are so strong. I keep telling myself that no matter what the news, I'll deal with it. But I'm terrified and crying (as usual). Thinking about David C and that makes me sad and scared for him.

    Today is my daughters 14th birthday and we CAN'T have bad news on this day.....14yrs ago the most beautiful girl was born and nothing can ruin this day! My baby deserves the best day ever and that includes a healthy Mom!

    Looking out the window at the trees around the house, they are so full and green. Spring is like a rebirth.....I want to be reborn too!

    Thanks for listening!

    Need good thoughts and prayers

    in GENERAL

    Posted

    Here I sit waiting for the doctor to call with my CT results. I tried to go on the board and only read the good stories but they are hard to find "at a glance", can't read any "not so good stories today".

    Read Lucie's and Frank's bio and am trying to draw strength from them, they are so strong. I keep telling myself that no matter what the news, I'll deal with it. But I'm terrified and crying (as usual). Thinking about David C and that makes me sad and scared for him.

    Today is my daughters 14th birthday and we CAN'T have bad news on this day.....14yrs ago the most beautiful girl was born and nothing can ruin this day! My baby deserves the best day ever and that includes a healthy Mom!

    Looking out the window at the trees around the house, they are so full and green. Spring is like a rebirth.....I want to be reborn too!

    Thanks for listening!

    Painful weekend for David

    in GENERAL

    Posted

    I'm just floored that they can't get his pain under control! I hope the morphine kicks in soon.

    Becky please let me know if there is anything I/We can do, although I have surgery on Tuesday....please have Karen call my husbands cell phone (she has the number) if there is anything.

    I'll be thinking about him him while they are hacking out my gallbladder!

    Need good thoughts and prayers

    in GENERAL

    Posted

    Thanks everyone. I made it through the CT Scan, started to get upset at the end when I knew the doctor was reviewing everything to make sure the scan was clear. Just can't make it through things like I could before. Been through too much.

    Oh yeah, while I'm asleep have the gallbladder cut out I'm getting a port-a-cath. That has me a little upset, haven't wanted one of thoughs, still don't but it makes sense to do it.

    Lots of firsts with this whole cancer thing!

    The barium (from the CT) and my gallbladder don't like each other! Oh....lower intestinal distress! :)

    Thanks for the support, I'll try to think about everyone on Tuesday so I don't get upset....just keep thinking that because of my breathing I'm gonna wake up on a ventilator or not at all. Oh well, gotta stop thinking about that!

    Thanks!

    Need good thoughts and prayers

    in GENERAL

    Posted

    Well, it's that time. I have a CT Scan tomorrow to see if the Alimta is still working. Of course I'm terrified cause I've been coughing a lot lately. Trying to stay calm, doesn't work! Will get results on Monday.

    Have gallbladder surgery on Tuesday. Terrified about this also. I'm weak and am scared that something is going to go wrong. My breathing isn't that good and I won't say everything else I have thought of that can happen. :cry:

    Need to know that everyone is with me through this nightmare, I'm not handling it well.

    Bad news for Dave

    in GENERAL

    Posted

    Karen and Dave-

    It doesn't matter what everyone else wants to hear.........it is what it is and I am a realist, there is always hope BUT lets also call a spade a spade.

    Your in my thoughts! Hang on Dave.

    Hello from Manitoba Canada

    in INTRODUCE YOURSELF!

    Posted

    Jeanbell-

    I think that bra's have a lot to do with it too. If your bra touches the scar I think the pain lasts longer. Be free and go braless, it helped me a lot with the pain. It took a while to get used too, I'm not a small girl. It's been a year since my surgery and I still have some pain every once in awhile.

    Keep your chin up!

    Alimta #6

    in GENERAL

    Posted

    Had Alimta #6 today....nothing to tell, everything went smoothly. Scheduled for CT Scan to see what's happening on 06/14.

    Was also told I couldn't do gallbladder surgery for two weeks.....I was hoping for next week but the oncologist just killed that one.

    Still have pain in my torso, thank goodness for pain pills and not those crazy one's I took yesterday that had me all upset and trashed! No more Nuerontin (sp?) for me!

    Doc says that as long as Alimta is working we are going to keep going every three weeks. Hurray!

    Will keep those interested posted!

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