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Taking action for the cause - SUGGESTIONS


Welthy

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I probably should be posting this in a different catagory, but here goes anyway. This issue seems to raising its head around here lately and maybe we should build on the momentum.

Below are some ideas and suggestions to highlight awareness of lung cancer. What are your ideas?

Maybe a celebrity spokesperson to back the cause. There just isn't anyone out there with a big name who has survived to speak out, the same way you see breast cancer survivors speaking out. My sister-in-law came up with a great idea. She said that Ellen DeGeneres is pretty outspoken about her struggle with quitting smoking and has again embarked on trying to quit. Given her history and ability to stand up for who she is successfully, do you think she might adopt lung cancer as a spokesperson? I've logged into her website and am writing her to ask for help, but maybe if more people requested her it may help our cause. Just a thought.

Secondly, I've begun a letter writing campaign to any companies who are going "PINK" (Ford Motor Co., Safeway (Dominick's Food stores)) this month to ask them what special promotions, etc. they plan on doing in November for Lung Cancer Awareness Month. I point out the disparity in the survivorship rates of breast vs. lung cancer and the high numbers of ALL Americans afflicted by lung cancer.

My next goal will be to target AIDS statistics vs. Lung Cancer. In 2004 the Centers for Disease Control reported that the cumulative estimated number of deaths of persons with AID's was 529,113 since the beginning of the epidemic (1987). During this same 17 year period, I conservatively estimate that over 2,500,000 Americans have died from Lung cancer. Hmmmm... quite a shocker. Now, if people with AIDS are able to overcome that stigma and have so much attention focused on research and cures, surely Lung Cancer can overcome it too! But HOW? I know we have some VERY creative people on this board -- one only has to read the witty posts to see that.

It is up to those of us on this board to hammer home the point in volume. We can have an impact even from our desks at home via the internet. I firmly believe the LCSC are the largest cohesive numbers.

Write and email the President, Senators, Representatives, Corporations, etc. etc. etc. Our voices must be heard. It is the squeaky wheel that gets the grease.

I've also sent the Chicago Tribune article to everyone I know asking them to please write their Reps. regarding lack of funding for lung cancer.

I've forwarded information on our local walk this Saturday to everyone in our Lung Cancer Support Group that our hospital sponsors. (Sadly, there is not that many people who regularly attend.) Also PLEASE sponsor our Walkers here on this board. And give a big "Thank-you" to the individuals who took the time to have their home state proclaim November as Lung Cancer Awareness month.

We need to develop a "mantra" of statistics that can be drilled into the social conscience of America. Maybe a slogan.

I'm sure many of these measures have been tried in the past, if so, I'm sorry. Obviously I've been on a bit of a rip lately. (And I didn't drink too much coffee either)

Welthy

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How about a letter targeting companies that may be willing to promote or help with funding? Someone with really fine writing skills could draft a letter that could be used--we as a group could work on distribution.

What do you think?

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I do think we need to stop reinventing the wheel over and over. We need to work together to get the best letter, slogan, email, etc. and have everybody use it at least as a starting point. Several organizations do this, e.g. American Cancer Society, Tobacco Kids, and others. Maybe we could come up with a theme for each day or week in November to keep it at the forefront of various key media organizations, corporations, hospitals, etc.

I'm going to try to get media coverage in November donating a DVD player to another chemo facility/facilities. What do you'll think?

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JYoung,

Great idea! Any takers???

Email site for Ford Motor Co:

https://secure.ford.com/en/support/emailUs.htm

Email site for Safeway Co:

http://shop.safeway.com/superstore/defa ... e=corphome

Let's keep adding to the email sites for companies currently sponsoring breast cancer promos to push for the same type of support for Lung Cancer.

Another thought -- how about 8 1/2 x 11 signs to be distributed to every oncologist's and Doctor's office to promote lung cancer awareness in November. How about posting them on the real-life bulletin boards at the grocery stores? The Lung Cancer alliance has three ads that can be downloaded and printed for hand-outs or posting:

http://www.lungcanceralliance.org/pdf_docs/LCA_ad_1.pdf

http://www.lungcanceralliance.org/pdf_docs/LCA_ad_2.pdf

http://www.lungcanceralliance.org/news/ ... nal_ad.pdf

Also, the Lung Cancer Alliance has an on-line petition that you can sign. Awhile ago I downloaded a hard copy and circulated it around to friends, family and neighbors. The website is: http://www.lungcanceralliance.org/

The Chicago Tribune article is located in the Family/Caregivers section under "Lord forgive me...PINK" posting. This can be cut and pasted and emailed to anyone you might want to help raise awareness.

Welthy

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Celebrities With Lung Cancer currently includes Suzanne Pleshette And Benny PArsons who is NED currently and donated 10,000 dollars to his med facility. Every Dollar Counts.

As most of you know, I contacted my :Local State Rep who losrt her husband to Lung cancer 5 years ago and with help from The North Carolina Lung association also the opldest in the country have created the North Carolina Lung Cancer awareness License PLate. Available next year. Hwere is a list of the Companies that support Lung Cancer Alliance financially:

Donors

The Lung Cancer Alliance is profoundly grateful for the donations made by individuals, corporations, foundations and other organizations. Without this financial and in-kind support we simply could not serve our mission of eradicating lung cancer - this most lethal, stigmatized of all the cancers. Thank you for sustaining our patient support programs and enabling our work to raise lung cancer awareness to continue.

We would like to express our deepest appreciation to the hundreds of individuals who made contributions in honor of loved one. As a result of your generosity, thousands of dollars of absolutely critical funding support - approximately 1/3 of our overall funding - came to us in this way.

We would like to acknowledge the corporations and foundations that have served as partners, providing support to important Lung Cancer Alliance programs and initiatives:

Partners

American Legacy Foundation

AstraZeneca Pharmaceuticals LP

Biomira, Inc

Bristol-Myers Squibb Company

Cell Therapeutics, Inc.

Eli Lilly & Company

EMD Pharmaceuticals, Inc.

G.E. Healthcare

Genentech, Inc.

Health Policy R&D

Millennium Pharmaceuticals, Inc.

Motion Picture Association of America

Novartis Pharmaceutical Corporation

OSI Pharmaceutics, Inc.

Pfizer Inc.

Sanofi-Aventis

Willams and Jensen

WilmerHale

We would also like express our sincere appreciation to the many companies, foundations and organizations which have made donations to the Lung Cancer Alliance during the past year:

Organizational Donors

A.C. Israel Foundation, Inc.

Advanced Surface Technologies

Alan Berry Design, Inc.

Amy and Barry Baker Family Fund

Baker Engineering and Risk Consultants, Inc.

Bank of America United Way Campaign

Bardeen-Greytak Family Foundation

Bay Medical Center

Birmingham Country Club

Blacks in Government

Boy Scout Troop No. 61

Brown Smith Wallace, LLC

Buckeye Packaging Co., Inc.

Business Services International, Inc.

Cave Spring Veterinary Clinic

Charlotte and Jospeh Gardner Foundation, Inc.

Cleveland Clinic Health System

Credit Suisse

Denver Area Folk Dancers

Disabled American Veterans

Distance Education Dept., Univerity of of Nebraska - Omaha

Doctors Hospital - Massillon, OH

Exeter Assembly

Fairfield Emblem Club No. 439

Federation of Rowan College Educators

Fleet

Ford Yacht Club

Fox Chase Cancer Center

Frontier Health

George Campbell Nisbet Foundation

Harris, Brown & Klemer, Inc.

Hinden & Sievers, LLP

Honors Bridge Club

Imclone Systems Incorporated

Infectious Diseases Society Of America

Institute for International Economics

Joseph Marchiano Lung Cancer Research Foundation

Judy and Mark Lerner Family Foundation

Kappa Sigma Fraternity

Kaskaskia College Federation of Teachers

Macy's West United Way Campaign

Maimonides Medical Center

Mark Krueger & Associates, Inc.

Merck Partnership for Giving

Microsoft

Montgomery Country Club Golf Association

National Endowment for Democracy

Nicole, Michael & Aidan Cadogan

Ocean City Golf Club

Off the Record Research

Order of the Eastern Star

Peer Music

Prudential Financial

Race For Breath

Roger Sherman Elementary School

Rowan University Department of Theatre

Safeco Insurance

Schmeltzer, Aptaker & Shepard, PC

Sellers Kuykendall

Shaw's Market

St. John's Mercy Medical Center

Sutter Medical Center of Santa Rosa

The Arlington Community Foundation

The Community Foundation for the National Capital Region

The Gates Corporation

The Longhill Charitable Foundation, Inc.

The Patterson Club

The Pleczynski Foundation

The Roybal Corporation

The Sunshine Club

The United Way

United Way of Pennsylvania

United Way of Elkhart County

United Way of Indiana

United Way of New York City

United Way of Silicon Valley

United Way of Los Angeles

US Alliance Credit Union

Utica National Insurance Group

Van Buren Public Schools

Vangaurd Charitable Endowment Program

Veterinary Clinic, Inc.

Volkswagon Credit, Inc.

The Washington Post

Wednesday Oyster Bay Men's Golf Club

Wharton-Smith, Inc.

Wilhide Draperies, Inc.

Woodworking Machinery Industry Association

Privacy | User Agreement | Site Map

© Lung Cancer Alliance http://www.lungcanceralliance.org/

Lung Cancer Hotline: 800-298-2436 (US only);

202-463-2080; info@lungcanceralliance.org

The information presented in this Website is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you get from this Website.

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Has someone done research to see specifically where the fundraising dollars go that go to Lung Cancer Alliance?

I knew exactly where they were going when the group used to be called ALCASE, but since the org. changed their name, mission and location, I haven't kept up.

Thanks,

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Good thought Katie. From what I see, they are mostly an advocacy group providing the following:

From the Lung Cancer Alliance website:

Our programs include the Lung Cancer Hotline, a toll-free information and referral service for people with lung cancer and their caregivers, the Phone Buddy program, a peer-to-peer support network, Lung Cancer Awareness Month, a national education and advocacy campaign, Spirit & Breath, our quarterly newsletter, and Advocacy Alert, where advocates can receive alerts to participate in or respond to important lung cancer issues.

As the only not-for-profit organization dedicated solely to helping lung cancer survivors in the United States, the Lung Cancer Alliance relies on your generous donations.

Support from you, the patients, survivors, family members, friends, and healthcare professionals -- makes it possible for us to create and maintain the programs we offer.

We treasure our donors. You make it possible for the Lung Cancer Alliance to serve people today and to continue expanding our lung cancer advocacy work.

I am not sure, but it looks like most of their money goes to lobbying (a good cause in itself for lung cancer), but not toward research. Does anyone have further information?

Disclaimer: I'm not advocating financial support of this group, but I like their advertising style to get the word out.

Welthy

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I'm not sure about the Lung Cancer Alliance but my money is with LUNGevity at the moment .... I think personally, they are closer to following what I want which is more immediate funding for lung cancer research... Also, its easy to meet on this board which is now part of LUNGevity.... :wink:

If I can just add a suggestion to the excellent ones above, (one I just received recently in an email which I'm plagarizing)- while its more than important to solicit companies for the cause - please don't forget to use those companies who already sponsor lung cancer, and to tell them how important it is that they are doing so. I am going to risk a personal example here. Not too long ago I complained on the board about a company that I am involved with having a product that donates 10% toward breast cancer research. I posted how it was difficult for me to sit still during the meeting presenting the product..

Well, Ry had asked me if they could donate to the Boston Walk and they did- all I had to do was ask, they are really awesome, and they are shipping between 300-400 cookies. While 300-400 cookies isn't a cure, this is a catalog company that is part of a larger corporation. So basically, while everyone is emailing people, it probably wouldn't hurt to email a quick "thank you for recognizing lung cancer" http://www.cherylandco.com/contact.asp , along with any other companies that you know sponsor lung cancer in any way, shape or form. IF companies see a big email response, they will continue to sponsor lung cancer events, and perhaps even increase their sponsorship when they see that there is a large market out there that they haven't tapped into. In turn, other companies will see that there is money to be made.

Oh well, that's my 2 cents!!

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Excellent Debi!!!!! (Looks like more emails for me tonight) :D

I also like the LUNGevity Foundation (Maybe it's a Chicago thing, LUNGevity, Da Bears, etc. :D ) I refer all of my email recipients to LUNGevity.org for further information on how they can contribute to make a difference in the fight against lung cancer.

I was just showing the Lung Cancer Alliance because of their aggresive Washington focused advertising campaign.

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I personally think these are all excellent ideas and focus. They are all needed for us to further our cause for research and support.

Welthy: Would you mind sharing your email content so we can plaugarize from you?

What do you'll think about making this thread a sticky so we can keep adding companies, organizations, etc. to it?

Thanks and take care.

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My two cents: I understand the first mention of the Lung Cancer Alliance because of their focus on advocacy. I don't know a lot about them, but I'm sure they're doing good work. I think most advocacy has the ULTIMATE purpose of getting more dollars for research for a cure. Since LCSC has recently merged with LUNGevity, and raising funds for research is their mission, I think we'd be wise to work with them. They probably have the kind of template of statistics, etc. that we're talking about, too.

And speaking of working with them... Since they do fundraising, including corporate donors I'm sure, we probably should talk with them about who they're approaching and how we can best help -- and let them know who we're approaching, so they can add their weight to ours. A united approach might make a big difference -- and they may have leads we can build on. Does anyone from LUNGevity's (fundraising) staff read our posts? We're open to that, aren't we?

I think it's great that so many companies support breast cancer causes, but like you, I cringe when I see so many of them and none for lung cancer. We may be most successful in targeting companies that are not already committed to another cause in a big way, though.

Last, good point, Debi! When someone DOES do something for lung cancer, we need to support them and let them know that people are seeing and appreciating it. Maybe LUNGevity could give us names of companies now and then to thank, too.

Welthy, I say go ahead and keep drinking that coffee - I don't think you've had too much yet -- LOL!

BeckyCW

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Excellent points Becky. I was hoping that there was some "standard" literature, etc. that could be downloaded from LUNGevity.org, but I don't see any on their site. As long as we are connected with them, I agree that we need to put our heads together and come up with mutual slogans, posters, etc. I hope Katie can help us coordinate with her contacts there. Between the two groups, we could be a force to be reckoned with!

My concern right now is getting things out there for November and capitalizing on the pink craze right now. (Of course my PRIMARY concern is looking after Tony!)

As for form letters -- I haven't come up with any, I've just been shooting from the hip for each company I've been contacting. The concept of getting our own "fomal" letter to be sent could work with us or against us. It would work for people who don't have the time to put statistics, personal stories, etc. into their own letters, but I could see a disadvantage if everyone sent the same letter that it could be white noise to the receivers. Maybe not -- it's probably worked well for other causes because it is a numbers game.

More random, non-coffee related thoughts from...

Welthy

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