Hebbie Posted November 12, 2003 Share Posted November 12, 2003 Anyone ever hear of this one??? (Like we don't have enough to contend with.....) My oncologist told me today that the symptoms I described to him actually have a name: "Lhermittes Syndrome". It's apparently caused by radiation. Here's what it is: When I walk (not just walking around the house or work, but actually walk a few blocks, or walk on the treadmill), if I bend my head down, I get a weird zinging kind of numbness that goes all the way down to my feet. (Not good while walking on the treadmill! The first time it happened I thought I was having a stroke or something!) After a few minutes of ending whatever activity I am doing, the numbness sensation subsides and I can bend my head/neck down without getting that feeling. And -- if I walk on the treadmill and focus on keeping my head UP, it doesn't happen . . .only when bending my head down. . . .so strange. In any event, he says that this, while not common, is "normal" and is caused from the way the radiation hits the spine. Supposedly temporary..... Anyone else ever have/hear of this? Couldn't really find much information on the web. Quote Link to comment Share on other sites More sharing options...
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