AnneBurris Posted November 26, 2003 Share Posted November 26, 2003 Hi all, I posted previously asking if anyone had taken Gleevec because my mom was a possible candidate for the drug thats part of a clinical trial. She found out today that she qualifies for it (in order to take the drug you have to have a certain gene matchup). Anyhow, she is going to take that indefinitely. It's another source of hope anyway. We had been pretty discouraged because after 6 months of chemo, her cancer started growing back pretty aggressively and she's been very uncomfortable with the pain the cancer in the liver is causing. Anyhow, that's the news for now. Quote Link to comment Share on other sites More sharing options...
betplace Posted November 26, 2003 Share Posted November 26, 2003 Anne, I hope the new drug will help your Mom, I will pray for her and that it helps. Betty Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 26, 2003 Share Posted November 26, 2003 Anne, I hope, too, that the clinical trial will work for your mom. Don Quote Link to comment Share on other sites More sharing options...
Guest canuckwebgrrl Posted November 26, 2003 Share Posted November 26, 2003 Anne, I'm so glad to hear your Mom qualified for the Gleevec trial! Quote Link to comment Share on other sites More sharing options...
Sam'swifeShirley Posted November 26, 2003 Share Posted November 26, 2003 I'll be praying for your Mom. Gleevac is a powerful drug and we need more options with LC. Sam Quote Link to comment Share on other sites More sharing options...
Tiny Posted November 26, 2003 Share Posted November 26, 2003 Anne, So glad that your mom qualified for the Gleevec trial, but regret to hear that she has been miserable with pain. I'll be praying that the pain abates and that the new approach brings good results. Quote Link to comment Share on other sites More sharing options...
karen335 Posted December 2, 2003 Share Posted December 2, 2003 Anne, Prayers for you and your mom. Hope the Gleevac works. I answered your previous post. Sure hope this works for your mom. Prayers for your mom and you. God Bless Karen Quote Link to comment Share on other sites More sharing options...
Maria Posted December 3, 2003 Share Posted December 3, 2003 Anne, I was happy to read your post that you mom can take Gleevac (the gene that they have detected in her is likely the c-kit gene). I did a lot of research (what is out there) on Gleevac and was so hopeful and excited about it for my dad. Unfortunately, he did not have the c-kit gene present in his SCLC so Gleevac ended up not being an option. It has been amazing with CML and gasto-intestinal cancers so hopefully it will show some success with SCLC (especially because there is just nothing out there to treat recurrent SCLC effectively). I lost my remarkable father in April -- You, your mom and family will be in my thoughts and prayers. I hope that Gleevac will prove to be a blessing to you all! Please keep posting with updates. take care, Maria p.s. I posted last Spring (probably in Feb and March) with links to articles re: Gleevac -- you might want to do a search to see if they are still on the message board. Quote Link to comment Share on other sites More sharing options...
AnneBurris Posted December 3, 2003 Author Share Posted December 3, 2003 Thank you everyone for your support. Right now my mom is REAL sick. I am so worried for her. The gleevec makes her vomit, even with anti-nausea pills, well actually now she's taking supositories (sp?) for her nausea. She is VERY weak and tired and has no appetite. I hope she pulls through. I've heard of others having real low times like this, but I'm beginning to wonder whether she will pull out of it. She doesn't seem to have much will to live right now. I'll keep you posted. Anne Quote Link to comment Share on other sites More sharing options...
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