ksflwrpetals Posted December 8, 2012 Share Posted December 8, 2012 I was just earlier this week rediagnosed with recurring NSCLC now stage 4. I had the surgery Apr 2011 for BAC, removing the lower rt lung, as it was completely filled and overtaken with the tumor. They said they got it. The testing came back negative. I knew it could reoccur, but somehow thought the chances were slim. As this is in the upper 2 lobes, (2 noduals and a mass) it is classified as Stage 4, inoperable. We are waiting on the ALK mutation testing to come back to determine treatment. I know the basic options of positive vs negative. I am having a hard time understanding if I am looking at months or years. I am scared beyond words and can't get a real grasp on things. There is no one around here to talk to that I know of that has had this particular kind. In the last couple years I have had several friends die from cancer so that has me unbalanced...terrified would be the accurate word. My oncologist said this is so rare (BAC) that it is hard to determine or know how it will act and react. I am information oriented, so have been trying to read and educate myself, which only makes it worse at this point. I am keeping myself busy...getting my affairs in order, cleaning and organzing what I didn't already have in order in my house. Input appreciated (someone from ACOR NSCLC recommended this group) Quote Link to comment Share on other sites More sharing options...
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