Merilee Posted January 20, 2016 Share Posted January 20, 2016 Diagnosed adenocarcinoma lung cancer stage2A. 5/2015. Surgery to remove tumor 6/2015,followed by chemo x4.completed 9/2015. Now scans every 4 months. Joining online support to connect with others going through the same. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted January 20, 2016 Share Posted January 20, 2016 Hi Merilee. I remember all so well the emotions and hopes and fears you are having. You can read my profile below which sounds much like yours.I wish you the very very best and never lose HOPE. Thoughts and prayers for you. Mike in Nebraska Quote Link to comment Share on other sites More sharing options...
CindyA Posted January 20, 2016 Share Posted January 20, 2016 Hi Merilee, Welcome to the LCSC message boards. Here is a link to the HOPE Summit page. As a new attendee, you may qualify for a travel grant. I hope you will register and meet A LOT of our members! http://lungevity.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=583 I look forward to getting to know you. Cindy Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted January 20, 2016 Share Posted January 20, 2016 Welcome Merilee! Surgery, dust up chemo, and recurring scans. The words "recurring scans" are easily said but they weigh on you as time goes by. I had quarterly scans for 4 years after my NED finding in 2007. Then in 2011, I graduated to 2 scans a year but a PET scan that turned out to be inflammation put me back on the quarterly schedule. I now see my oncologist twice a year but only have one scan a year. And, tomorrow is scan day. So I'm in the "scanziety" zone. That feeling of uncertainty never goes a way, at least for me. Hope it does for you and that your future scans are NED! Stay the course. Tom Quote Link to comment Share on other sites More sharing options...
Merilee Posted January 21, 2016 Author Share Posted January 21, 2016 Thank you so much for sharing and commenting on my introduction, I read your profile and found it very interesting and hopeful. I went for another scan the other day due to me still having pain,which us now thought to be due to.my surgery. There was an enlargement of a few lymph nodes which scares me. Before this dx., I had been on three antibiotics the past year for Mac. I am hoping it I'd inflammation. But as all of you know everything is questioned..Will update after i see pulmonary Dr. Take care all Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
bjacksontex Posted January 28, 2016 Share Posted January 28, 2016 Hi Merilee and welcome. Keep us posted. Barb Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted January 28, 2016 Share Posted January 28, 2016 Merilee - looking forward to a positive update.... Quote Link to comment Share on other sites More sharing options...
Merilee Posted February 4, 2016 Author Share Posted February 4, 2016 Update enlarged nodes biopsied cancer in 2out if the 8 biopsied...saw radiation oncologist today, my oncologist referred me....at present thought to be local recurrence. Rad Dr wants a MRI and PET done to make sure not anywhere else.CT done a few weeks Bach which only showed the enlarged nodes. ? Suggested radiation daily 5-6 wks and chemo 1x a week for 5 wks. Dr said cells were microscopic and obviously were not seen before ? At surgery they removedb7 nodes along with the tumor and 2 node removed was cancer.....guess the chemo didn't get rid of all of it...now worried about this treatment and us it still curable and will this work. ???? Many questions. I hate having to think and worry about this all the time.my life seems to be all about cancer, don't enjoy it even want to do things like I use to.I'm sure many of you feel the same... Will keep updating..MM Quote Link to comment Share on other sites More sharing options...
Merilee Posted February 4, 2016 Author Share Posted February 4, 2016 Sorry don't know how to change the size of my post...small I know.. Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted February 4, 2016 Share Posted February 4, 2016 Merilee, Sounds like your treatment is first line (conventional radiation with adjunct chemo) and your question is will it work. Yes, it can work. None of us can tell you it will work. Today, I celebrate 12 years of life since my diagnosis date. I've had the same "will it work" question you've had. I've failed a lot of treatments. But finally, one worked for me and I believe one's attitude toward treatment and outcomes is essential to successful treatment. So, I encourage you to believe your therapy will work. I also am well acquainted with the feeling that your entire life revolves around cancer. That you can control. If you choose treatment, then one of the beneficial effects of treatment is extended life. I'd forgotten that important point. Don't let cancer treatment take over your life. Look at your forehead everyday in the mirror in the morning. If you don't see an expiration date stamped on your forehead, resolve to have a good day. Stay the course. Tom CindyA 1 Quote Link to comment Share on other sites More sharing options...
CindyA Posted February 8, 2016 Share Posted February 8, 2016 Merilee, Tom's words are perfect. We are here for you. Please let me know if you would like any information on LUNGevity's support programs. www.LUNGevity.org/LifeLine Thinking of you, Cindy Quote Link to comment Share on other sites More sharing options...
Merilee Posted February 13, 2016 Author Share Posted February 13, 2016 Thank You all for your compassion, it means a lot. Well had Pet Scan and an MRI of the brain....all ok so at present have to worry about the two lymph nodes on chest. will be having radiation consult next week Tuesday and Chemo teaching next Wednesday. I will start the Chemo the following week Taxol/ Chesplatin ( or something similar to that spelling) ? I think the radiation will also start then..hate the thought of going through the chemo and getting poked so much....very tiny gains..but don't want a port so...Herr we go again...hope for no bad side effects. This is considered local recurrence I guess thats good..if there can be any good here ..Will update thanks again. M M Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.