JustMe Posted October 25, 2017 Share Posted October 25, 2017 Hiya. After two first line treatments + 10 rounds of radiation didn't work, my husband is starting a clinical trial in Boston next week. Keytruda + AMG820... Has to do a massive screening first with CT scan, labs, brain MRI, more biopsies, etc...then we will have to be in Boston (2 hours away with no traffic...there's always traffic) on days 1, 2, 5, 8 and 15 of every 3 week cycle. Nervous, hopeful. In the meantime, he's felt better than he has in ages after stent placement. Tumors are growing though... Cancer blows. Loads of love to you all. Jennifer Quote Link to comment Share on other sites More sharing options...
Steff Posted October 25, 2017 Share Posted October 25, 2017 Jennifer- I'm happy to hear that your husband is feeling better with his stent! You are right on target with your statement that cancer blows...sorry you two are having to battle this thing called cancer. I am hopeful for the clinical trial - had he received Keytruda in one of his other treatments? Quote Link to comment Share on other sites More sharing options...
JustMe Posted October 25, 2017 Author Share Posted October 25, 2017 Yes he did (keytruda+carboplatin+alimta)...and I questioned why we would use it again considering it had no effect last time...but apparently the AMG820 is supposed to encourage the keytruda to work better...hopefully faster... I hope you're doing well Steff... Quote Link to comment Share on other sites More sharing options...
Steff Posted October 25, 2017 Share Posted October 25, 2017 WOW, I am so happy to hear that there is another treatment possibility for him. I wish you and your husband the best in this new part of your journey. Maybe you can get books on tape/cd/etc to make the long trip a bit more bearable?? Take care! LaurenH 1 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted October 25, 2017 Share Posted October 25, 2017 Jennifer, Many hospitals have very reasonably priced "hotel-like" rooms for folks undergoing outpatient treatment that requires an extended stay. Call the trial hospital and see if they have this form of accommodation. Moreover, there is the Boston Hope Lodge that provides reasonable accommodation pricing for cancer patients and family members. Here is the link. I hope this makes the process easier for you. Stay the course. Tom LaurenH 1 Quote Link to comment Share on other sites More sharing options...
JustMe Posted October 25, 2017 Author Share Posted October 25, 2017 Tom, thank you SO much for that link... Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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